One-in-a-million people are living with EHE worldwide.

Our mission is to find treatments and a cure for this rare cancer by advancing research and driving collaboration between patients, researchers, and clinicians.

We envision a world where Epithelioid Hemangioendothelioma (EHE) is easily diagnosed and treatable. Join our dedicated community by subscribing to our emails.

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Cedric Gegel is an actor, director, and screenwriter based in the New York City area. Watch our candid conversation recorded live on Facebook, where we talk about his EHE diagnosis, treatment, and the impact his diagnosis has had on his life. There's even a sneak peek of his work!

Our Giving Tuesday total is a staggering $183,737 and counting! That's $87,237 in community donations and $96,500 contributed by our Board of Directors.

Let’s keep this momentum going! If you haven’t donated yet, it’s not too late—every dollar makes a difference.

We are overwhelmed with gratitude—not just for your incredible support on #GivingTuesday, but for standing with us every single day.

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Stephanie was diagnosed with epithelioid hemangioendothelioma (EHE) in her liver, lungs, spine, ribs, and femur. It's not uncommon for EHE patients to present with metastatic disease. Unlike other cancers, metastatic EHE is not always correlated with a poor prognosis.

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Very recently diagnosed with epithelioid hemangioendothelioma (EHE) Lindsey is now on a treatment plan of "watch and wait" also known as active surveillance. She talks about the support she has received from her community and the responsibility she feels to spread awareness and advocate for people living with EHE and those who will be diagnosed in the future.

EHE Biobank

Patients Powering Research for EHE

Patients are the key to finding new treatments for EHE! Researchers need tumor tissue and fluid from EHE patients to understand disease progression and speed the development of new drugs and therapies.

EHE Global Patient Registry

Patients Powering Research for EHE

The EHE Global Patient Registry empowers people with Epithelioid Hemangioendothelioma (EHE) to join together to improve our understanding of this ultra-rare sarcoma. We need every EHE patient to join this critical tool used to support researchers searching for treatments and a cure for EHE.

Consensus Paper on EHE Management

The Consensus Paper is a powerful, EHE-specific resource for patients, caregivers, and medical professionals that answers critical questions regarding diagnosis and treatment. Patients are encouraged to read it to better understand EHE and facilitate more informed discussions and decision-making with medical teams.

Latest EHE News, Events and Research

EHE Highlighted in Recent Cancer Today Article

By The EHE Foundation | October 13, 2020

For their Fall 2020 issue of Cancer Today magazine, the American Association of Cancer Research profiled our director, Medha Deoras-Sutliff! Medha talks about her own journey and how she came to work with The EHE Foundation. Ever the diligent advocate, she insisted the writer include some information about EHE. Read the full article here!

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The Pledge Q2 2020

Stay up to Date on EHE by Reading The Pledge: Edition 21, Q2 – Apr-Jun, 2020

By The EHE Foundation | July 1, 2020

Click here to read the Pledge: Edition 20, Q2 – Apr-Jun, 2020

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EHE Foundation Virtual Conference

EHE Virtual Community Conference – April 25, 2020

By The EHE Foundation | May 26, 2020

You are important to us! The EHE Foundation invites its patient community to view our first Virtual Community Conference! Learn who we are, what we do, and most importantly, how we address the challenges COVID-19 presents to our work and to EHE research. To view the recording, please click here:

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Medha Deoras-Sutliff

Medha Sutliff Profiled by Global Genes

By The EHE Foundation | April 9, 2020

Our own Executive Director, Medha Sutliff was profiled by Global Genes Rare Foundation Alliance as a RARE Leader. Click here to read Medha’s full profile!

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The Pledge Q1 2020

Stay up to Date on EHE by Reading The Pledge: Edition 20, Q1 – Jan-Mar, 2020

By The EHE Foundation | April 1, 2020

Click here to read the Pledge: Edition 20, Q1 – Jan-Mar, 2020

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Rare As One Logo

The EHE Foundation Receives $450,000 Award from the Chan Zuckerberg Initiative

By The EHE Foundation | February 3, 2020

FOR IMMEDIATE RELEASE Contact: Medha Deoras-Sutliff, [email protected] HOBART, Wis. (Feb. 3, 2020) — Today, The EHE Foundation announced it will receive a $450,000 award from the Chan Zuckerberg Initiative (CZI) to drive progress towards treatments and a cure for Epithelioid Hemangioendothelioma (EHE), a rare vascular cancer. The award recognizes The EHE Foundation as part of […]

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2024 Research Grant Awards

The EHE Foundation Announces Grant Funding of $307,400 to Advance Research and Find Treatments for EHE

By The EHE Foundation | November 20, 2024

We are pleased to announce The EHE Foundation’s 2024 Research Grants Program awards, totaling $307,400, as part of our ongoing commitment to advance our mission to find effective treatments and a cure for EHE. Made possible by 2023 Giving Tuesday gifts, these grants support novel translational research projects that aim to identify and accelerate the […]

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Donating vs. Fundraising

Making a Donation vs. Fundraising for The EHE Foundation: What’s the Difference?

By The EHE Foundation | November 4, 2024

At The EHE Foundation, we are committed to finding a cure for epithelioid hemangioendothelioma (EHE), an ultra-rare and potentially aggressive cancer that affects one in a million people. Every contribution helps us advance groundbreaking research, support patients, and foster collaboration among clinicians and researchers worldwide. There are two impactful ways you can support our mission: […]

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EHEF Scientific & Medical Advisory Board

Scientific & Medical Advisory Board Collaborates to Improve Outcomes for People Living with EHE

By The EHE Foundation | September 30, 2024

On September 10, 2024, The EHE Foundation held a virtual meeting of our Scientific & Medical Advisory Board (SMAB). The meeting aimed to welcome new members, review current research projects, and discuss future needs and goals to advance EHE research. The meeting began with a warm welcome to new members of the SMAB: Tom Chen, […]

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