Fundraising & Events

Kim Young is running the Maine Marathon on Oct 2nd!

By The EHE Foundation | September 20, 2022
Kim Young Maine Marathon

Kim was diagnosed with EHE in March 2021, and this is the second time she is running the Maine Marathon in support of The EHE Foundation. She is a champion for creating awareness for EHE, and we are grateful for her support. Would you like to be a part of this amazing event? You can […]

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Stronger Together on Giving Tuesday, November 30th

By The EHE Foundation | November 27, 2021
DONATIONS DOUBLED TODAY

As the season of giving and gratefulness is upon us, we want to thank you for being a part of The EHE Foundation family.  We appreciate you following our progress and investing in our passion: discovering effective treatments and a cure for EHE. We are thankful for our supporters, partners, and volunteers who make our […]

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2021 EHE Fun Run & Walk a Huge Success!

By The EHE Foundation | November 2, 2021
2021 EHE Fun Run & Walk

Thank you to our wonderful participants, supporters, and sponsors for making our 2021 EHE Fun Run and Walk a tremendous success! Together, more than 900 supporters across the nation helped raise more than $45,000. Thanks to the backing of our sponsors, every penny brought in for this event will go directly to EHE research. This […]

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