Fundraising & Events

Support Events that raise critical funds and bring awareness to EHE.


By The EHE Foundation | March 5, 2019
4th Annual EHE Virtual 5K Run/Walk

Registration is now open for the 4th Annual EHE Virtual 5K!  Click here for more information and to register. 100% of the donations and profits from this event will be dedicated to EHE research. We hope you’ll join us to make a difference as we look forward to surpassing the number of last years’ participants […]

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EHE Informational Bifold

By The EHE Foundation | November 28, 2018
The EHE Foundation Giving Tuesday Bifold 2019

During this past week, we have featured several touching stories of those affected by EHE (see below). These stories have one thing in common, which all EHE patients can relate to: there are no standard treatments for EHE. Money raised by The EHE Foundation during #Giving Tuesday (Nov 27th) will address this common issue and […]

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Day of Giving – Tuesday, November 27, 2018

By The EHE Foundation | November 21, 2018
Fight EHE Giving Tuesday Graphic

#GivingTuesday is a global movement to celebrate and encourage giving after Thanksgiving, Black Friday, and Cyber Monday. We are thrilled to announce that donations to The EHE Foundation will be DOUBLED on #GivingTuesday (Tues, Nov 27th) by our generous supporters. This is your chance to double your impact in helping those affected by this extremely rare cancer […]

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