All of our board members have been personally touched by EHE and are committed and dedicated to our Mission.
Jenni Kovach joined The EHE Foundation Board in 2018 and brings over 20 years of experience in the Human Resources field. She received her Bachelor of Arts in Communications from The Ohio State University and her MBA from the University of Phoenix. Jenni is also certified as a Senior Professional in Human Resources (SPHR). She currently holds the position of Chief People Officer at IGS, a privately held energy company.
Jenni spent time previously on a non-profit board supporting domestic violence victims. Her board experience provided her the opportunity to implement structure and process to this shelter that supports six counties in Ohio. In addition, she has been an avid supporter of Pelotonia, a grassroots bike ride, raising money for cancer research for the past nine years.
Jenni brings her passion for people, strategic mindset and her desire to continually make a positive impact to the EHE Foundation. She will concentrate her efforts as the Director of Development on identifying and cultivating the relationship with prospective donors as well as owning the grant proposal process.
Julie founded The EHE Foundation in 2015. EHE had affected her family and she was feeling helpless in the fight. She quickly realized that in order to move this cause forward, she and others needed to come together. At that point, the Foundation was formed and the Board assembled.
Julie is a veteran of the US Army and has a BA in Accounting. She brings to the Foundation experience in education, financial management and tax preparation. Julie's family has recently retired from the military and she dedicates herself full time to The EHE Foundation. Her ability to interact and support diverse people and cultures and her compassion and adaptability have been instrumental in the Foundation’s success.
Julie continues to provide support for central leadership of the Foundation. In addition, she focuses on national fundraisers and supporting grassroots events. She plays an integral role in communicating with donors, patients and caregivers including current EHE information and Foundation updates.
Jane is a founding Board Member of the EHE Foundation, which was established in 2015. Jane provides the foundation with vast experience in the medical industry. She has a degree in Civil Engineering from the Polytechnic College in Belarus and attended the Nuclear Medical Technologist program at the State University of New York. Jane has worked as a manager at a Nuclear Stress Lab for over 20 years and brings experience in process development, leadership and clinical research to the EHE Foundation.
Jane wears two hats for the foundation – Vice President and Director of Research. As Vice President, Jane is externally focused on representing the EHE Foundation to donors and other individuals that help the foundation achieve the mission. She is also instrumental in foundation operations such as fundraising and reporting.
As Director of Research for the foundation, Jane develops and implements the research strategy, oversees research activities, attracts new researches to EHE and manages the patient registry. She is instrumental in educating the medical and research community about EHE and promoting the foundation’s mission of developing effective treatments for EHE.
Sarah joined the EHE Foundation Board in 2017 with fifteen years of financial and business management experience with not-for-profit organizations. Prior to forming her company in 2008, The Bright Solutions, Sarah served as both the Director of Finance & Administration and the Patron Services Manager for The Washington Chorus. She holds a Bachelor of Music in Voice Performance from the University of Miami (Florida) and a Master of Arts in Arts Management from George Mason University. Sarah is a classically trained vocalist (lyric coloratura) and still performs for special occasions.
Sarah has direct accounting experience with all needs in the not-for-profit fiscal cycle. Sarah has worked extensively with not for profit boards for the past fifteen years. She has also served as Treasurer for not for profit boards in Washington, DC. In addition, she gives her time to the children’s ministry at her church.
Sarah excels in interpreting corporate culture, analyzing areas where there could be efficiencies, and problem solves in matters of accounting and organizational development. In her dual roles as Treasurer & Director of Finance, she will provide guidance on governance, structure and organizational development to the EHE Foundation along with budget preparations and financial management.
Dr. Casimir counsels clients in all areas of intellectual property including patents, trademarks, copyrights, and trade secrets. A major focus of his practice is in the area of patent prosecution, post-issuance proceedings, litigation, litigation avoidance, due diligence, business counseling, and licensing with an emphasis in the biotechnology, pharmaceutical, chemical, medical device, and business methods fields. Link to full bio.
LeeAnn joined The EHE Foundation Board in 2015. She draws upon 22+ years of experience and education in program management, marketing, human resources, executive-level leadership and budget management. She retired in 2016 after culminating her service as the Director of the United States Army Retention Program in the Pentagon.
LeeAnn’s roles in the Foundation is Director of Marketing and Operations. With her past military experience, LeeAnn brings structure, process and diligence to the Foundation. Her responsibilities include marketing, communication, database operations, and support with fundraising. LeeAnn has committed herself full time to the mission of The EHE Foundation since her retirement from the military.
Lisa De Young is a founding member of the EHE Foundation, which was established in 2015. She brings a wide range of professional expertise from a long career in Human Resources. She holds a Bachelor of Arts in Consumer Sciences from California State University Fresno. Lisa spent many years in the banking industry as an HR professional. She has vast knowledge in recruiting, benefits administration, employee relations and compliance. Lisa is currently retired and dedicates all of her time to the foundation.
As Director of Patient Services, Lisa is the first point of contact for new EHE patients worldwide and their families. Her true passion is to provide support, compassion and guidance to patients during a daunting time in their lives. Lisa is continually forging new partnerships and connections with the medical/research community and other sarcoma and cancer non-profit foundations. Her leadership, vision and ability to bring calm, during an uncertain time in an EHE patient’s life, has an immeasurable impact.
Lisa’s role provides her the opportunity to interact with sarcoma oncologists and EHE medical specialists on the frontline to bridge a gap with information on EHE research, clinical trials, and pain management. She has also been instrumental in identifying a platform for patient registry and case management that will provide needed information for both researchers and patients.
Denise Robinson joined the EHE Foundation Board in 2019 after serving the Foundation in a volunteer role supporting EHE research expansion and development. Denise has 18 years of clinical research experience, including Phase I-IV clinical trials across numerous rare and life-threatening diseases. Her efforts are largely focused on supporting oncology and hematology research, with a tireless passion to ensure that more patients and clinicians have opportunities to participate in meaningful research studies. Her operational experience and talents continue to provide volunteer support to advance EHE research globally.