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Latest EHE News, Events and Research
Poker Tournament in Memory of Brian Frank Raises $11,000
Earlier this month, Angela Osborn, along with numerous family and friends, gathered for a night of poker in Washington in order to honor her late brother Brian Frank. Along with the poker tournament, a silent auction was held, T-shirts and sweatshirts featuring Brian’s initials and birthdate were sold, and at the end of the evening, a staggering $11,000 […]
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Smoothie King Raises Money in Memory of Mandy O’Connor
Smoothie King in York, Pennsylvania, held its second fundraiser in memory of Mandy O’Connor on October 13. Sean and Nicky Krebs, Smoothie King franchisees and close friends of Mandy and Devin’s, once again donated 50 percent of their sales on what would have been Mandy’s 33rd birthday. Mandy died due to EHE on April 5, […]
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The Hershey Company Donates to EHE Research
The Hershey Company has made a generous donation to The EHE Foundation. The world-famous confections company in Pennsylvania gave $500 to support ongoing research efforts into the rare cancer. The Foundation would like to thank Hershey employee Serena Wang for the support. Serena was a personal friend of Mandy O’Connor, who died from EHE in […]
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Stay up to Date on EHE by Reading The Pledge: Sixth Edition
EHE is no longer some unknown rare cancer! The grassroots movement to raise awareness and help fund EHE research is now a worldwide effort! Thanks to Hugh Leonard, director of The EHE Rare Cancer Charity UK, for assembling EHE stories for the sixth edition of The Pledge. Download The Pledge here.
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The EHE Foundation Advisory Board
Meet the Men & Women Fighting EHE in the Lab
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The EHE Foundation Receives $10,000 Donation
The Bock Foundation, the philanthropic arm of Ernest Bock & Sons, Inc., a construction and hospitality conglomerate in Pennsylvania, has been making substantial contributions to charitable causes for decades. Back in 1992, a Bock employee was tragically killed in an automobile accident. The Bock family aided in funeral expenses, and quickly realized the organization could […]
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Funded Research Project Update: Use of pre-clinical EHE models to identify druggable pathways to treat EHE
Investigator: John Lamar, PhD, Albany Medical College Dr. Lamar was awarded a 3-year grant by The EHE Foundation in 2022, that aims to identify FDA-approved drugs that inhibit EHE cell growth, and then test them in pre-clinical mouse models for the treatment of EHE. What does this mean for patients? This could mean a shorter […]
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Funded Research Project Update: Repurposing an FDA-approved Drug for EHE Treatment
Investigator: Ajaybabu Pobbati, PhD, Cleveland Clinic – Lerner Research Institute In 2022, The EHE Foundation funded a grant to Dr. Pobbati for research that looks at a library of current FDA-approved drugs that act as TAZ-CAMTA1 (TC) or TEAD inhibitors, for use in EHE. What does this mean for patients? This could mean a shorter […]
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Championing Our Cause: How Patients Support Fundraising
Join us for EHE Community Connections as we discuss “Championing Our Cause: How Patients Support Fundraising.” Collaborate with other patients and caregivers to explore the most creative and effective fundraising ideas. Together, let’s talk about how to better engage our own community of donors, create awareness and raise money for this one-in-a-million cancer! This workshop […]
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