One-in-a-million people are living with EHE worldwide.

Our mission is to find treatments and a cure for this rare cancer by advancing research and driving collaboration between patients, researchers, and clinicians.

We envision a world where Epithelioid Hemangioendothelioma (EHE) is easily diagnosed and treatable. Join our dedicated community by subscribing to our emails.

Patient-Powered EHE Research

EHE Global Patient Registry

The EHE Global Patient Registry empowers people with Epithelioid Hemangioendothelioma (EHE) to join together to improve our understanding of this ultra-rare sarcoma. We need every EHE patient to join this critical tool used to support researchers searching for treatments and a cure for EHE.

EHE Biobank

Patients are the key to finding new treatments for EHE! Researchers need tumor tissue and fluid from EHE patients to understand disease progression and speed the development of new drugs and therapies.

As the leading research advocacy organization dedicated to finding treatments and a cure for epithelioid hemangioendothelioma (EHE), the EHE Foundation is committed to funding innovative and transformative research that will improve outcomes for individuals diagnosed with EHE.

Latest EHE News, Events and Research

ESMO 2022 Congress

ESMO 2022 Congress

By The EHE Foundation | September 13, 2022

EHE champions were on the global stage on September 9th, at the ESMO2022 Congress in Paris, France. ESMO, the European Society of Medical Oncology, is a leading professional organization for medical oncology education and information. Dr. Silvia Stacchiotti, a leading EHE clinical expert (Italy), and Hugh Leonard, Chair of Trustees of the EHE Rare Cancer […]

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The Pledge: Edition 29, Q2 – April-June, 2022

The Pledge: Edition 29, Q2 – April -June, 2022

By The EHE Foundation | September 6, 2022

Together, the US, UK, and Australia EHE foundations team up to strengthen the force against EHE. This group provides a quarterly update, which is led by the UK and includes research news, patient and fundraising stories, and much more! Click here to view the most recent edition of our online EHE newsletter, The Pledge.

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2022 Research Grant Cycle Update

2022 EHE Research Grant Cycle Update

By The EHE Foundation | August 2, 2022

A pillar of The EHE Foundation’s mission is to seek treatments and a cure for EHE by pursuing scientific research, and one way we do this is by funding the most impactful EHE research projects possible. To support our mission, the Foundation issues a call for research grant proposals each year from the global scientific […]

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EHE Foundation Advisory Board

The EHE Foundation Advisory Board Annual Meeting

By The EHE Foundation | July 17, 2022

The EHE Foundation’s Advisory (Ad) Board met with the Foundation’s research team in June for their annual meeting. The Ad Board is composed of nine renowned clinicians and researchers who generously give their time and talents to advise The Foundation, in addition to the countless hours they spend during their ‘day jobs’ with patients, research […]

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Dr. Tamara Vesel & Dr. Maeve Baechler

Continued Discussion on Integrating Cancer Identity Into the Self

By The EHE Foundation | June 23, 2022

Drs. Vesel and Baechler facilitated our very first Community Connections event on May 14th. The topic was, “Who am I now? Integrating the cancer identity into the self.” Attendees discussed their own experiences with their diagnosis and how they’ve incorporated EHE into their identities. This will be a continuation of that topic and more! Dr. Vesel is […]

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Jane Gutkovich, EHE Foundation Board Member Emeritus

What Happened at ASCO? EHE Update with Jane Gutkovich

By The EHE Foundation | June 23, 2022

Jane is one of the founders of The EHE Foundation, and currently in the role of distinguished Board Member Emeritus. In this role, Jane works strategically with us to continue to support patients worldwide and recruit researchers to EHE. Jane recently attended the 2022 American Society of Clinical Oncology Meeting held annually in Chicago, IL. […]

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The Pledge: Edition 41, Q2 - April-June, 2025

The Pledge: Edition 41, Q2 – April-June, 2025

By The EHE Foundation | August 21, 2025

Publication of The Pledge quarterly newsletter is led by the EHE Rare Cancer Charity (UK). EHE patient advocacy groups from around the globe provide content including research news, patient and fundraising stories, and much more. Click here to view the most recent edition of the online EHE newsletter, The Pledge.

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Tissue donation through the EHE Biobank

What You Need to Know About Tissue Donation

By Seth Haddix | August 21, 2025

By Seth Haddix, PhD | EHE Biobank Coordinator When patients are thinking about surgery, a new biopsy, or other procedure, their minds are filled with decisions and worry. Tissue donation isn’t usually top of mind, and for more common cancers, it is not something we think about as a priority. For an ultra-rare cancer like […]

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EHE Researchers at YAP/TAZ and TEADs Conference in Telluride, CO

Advancing EHE Research at the 9th Annual YAP/TAZ and TEADs Workshop in Telluride, Colorado

By The EHE Foundation | July 17, 2025

The 9th Annual YAP/TAZ and TEADs: At the Crossroads of Cancer workshop took place June 9-13, 2025, in the stunning mountain town of Telluride, Colorado. Hosted by the Telluride Science and Innovation Center and organized by Drs. Guy Weinberg and John Lamar, this unique gathering brought together top-tier researchers and clinicians from academia and industry […]

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