Additional Resources

Our Global EHE Partners

The EHE Group is a collaboration of country-specific patient advocacy groups and established charities focused on one fundamental objective: to promote research into this rare disease. We pool resources and team up with patients, advocates, care providers, and researchers across the globe in a common cause to cure EHE.

Canada: Please contact Fiona Ross, Patient/ Advocate at [email protected]

Sarcoma Resources

Medical Resources

COVID-19 Information

The landscape of COVID-19 continues to change and evolve. Please click here for a page with links to the latest information.

NCCN Guidelines for Patients®

National Comprehensive Cancer Network

Click Here for NCCN Resoures

NCCN Foundation® empowers you to make informed decisions at each step of your cancer journey. The NCCN Guidelines for Patients are based on the same treatment information your doctors use and help you talk to your doctor about the best treatment options for your disease.

These step-by-step guides to the latest advances in cancer care, feature:

  • Questions to ask your doctors
  • Patient-friendly illustrations
  • Glossaries of terms and acronyms