EHE Rare Cancer Charity (UK)
EHE Rare Cancer Foundation (Australia)
CRAVAT Foundation (US)
Canada: Please contact Fiona Ross, Patient/ Advocate at fightehecanada@gmail.com
Sarcoma Alliance
Sarcoma Foundation of America
SARC
Boston Children’s Hospital - Vascular Anomalies Center
NCI Cancer Institute - Center for Cancer Researc MyPART - My Pediatric and Adult Rare Tumor Networkh
