This program is designed to be an ongoing collaboration of the entire EHE community. Guest speakers highlight EHE specific topics and issues. Each virtual session is truly unique in content and delivery. Some sessions are recorded, but others will remain private to those who register. Attendance is cost-free. The overall goal is to drive information dissemination while advocating for and improving the lives of EHE patients. We want patients to be able to share their thoughts and express the issues that matter most to them, while ensuring they have the tools to advocate for their personal care.