2023 Fun Run Event Breaks Record

Thank you to every sponsor, participant, and donor, for helping us make the 2023 EHE Fun Run and Walk the LARGEST in our history with 1,156 registrations and more than 60 teams! Registration for the event went through the month of April and supporters participated in the virtual event across the country mostly in May and June.  Some teams were strictly virtual, while others gathered many people to complete the run/walk together. Other teams are planning to gather later this year.

A variety of all ages and abilities participated in this family fun event. Together, we raised over $60,000 to support EHE research. Those who registered received a “Shine a Light on Rare Cancer” t-shirt, bracelet, and “Just Live” temporary tattoo. Many supported simply donated to a team of their choice, too.

It is proven that rare cancers create awareness and attract science to their cause with grassroots fundraising and events. A special thanks to our 2023 EHE Fun Run and Walk Sponsors:

Platinum Sponsor
Mara Law Firm

Gold Sponsors
Hansen Distribution Agency
Huen Electric
Monticello, Warren and Dallas County Animal Clinics
The Bright Solutions

Silver Sponsor
V&P Hydraulic Products, LLC

We are already looking forward to our 2024 event.  If you would like to be a part of our planning committee or would like to host an event of your own, feel free to reach out to LeeAnn at [email protected]. Feel free to email her additional photos to add to this page, too!

Top Teams

When a group of individuals come together to Shine a Light on EHE, it’s an amazing thing! Teams of families, friends, neighbors, teammates, coworkers, classmates, and other supporters are coming together in a united fight against EHE. These teams have rallied top support for the 2023 EHE Fun Run and Walk by having 10 or more participants or by raising more than $300. Thank you for your passion, generosity and continuous support!

Jennifer Ness' team claimed our top team spot for this year’s EHE Fun Run and Walk. Jennifer was recently diagnosed with this one-in-a-million cancer. Even while navigating her new diagnosis and managing day-to-day life including two active children, she rallied a nationwide team of nearly 350 participants and raised almost $16,000!

More than 300 people also joined her local event on June 4th, 2023. The event featured a 5K run or a 1K walk, which concluded at a local NJ brewery, Kings Road Brewery. Friends and family enjoyed a DJ and brunch in the outdoor space. Brunch was donated by a local restaurant, Café Lift. Supporters could register for the EHE Fun Run and Walk, but also have the option to enjoy a beer, brunch, and a cookie for a suggested donation of $20 per person.

Jennifer said, “The event was a tremendous success and I’m so lucky to live in an incredibly supportive community! A special thanks to my walk organizer, Jill Lloyd, and fundraiser coordinator and sponsor, Lindsey Watson-McCarthy.”

Check out our social media pages for highlights of some of our other top teams.

Team NameNumber of RegistrantsTotal Dollars Raised
Jennifer Ness338$15,902
Delaney Wahl105$3,389
Aimee Liebert103$3,697
Jeff Falkner (Kiss My pEachHEs, cancer!)87$5,160
Jonathan Sousa (#jonathanswolfpack)62$1,930
Rick Harrington37$1,521
Matthew Frank (Team Matt)36$1,128
Brian Lackey32$1,326
Veronica Flores20$6,224
Carey Kato (Dickman)20$2,214
Caroline Swinyard20$1,040
John Lamb17$1,512
Amy Houston17$571
Team Michi17$540
Sarah Bright (Bright Lights for EHE)15$1,465
Kristen Carlton (Team Kristen Leigh)14$2,640
Brianna Carney (Breathe For Brianna)12$371
Barbara Vance11$415
Lamar Lab10$403
William Chastain10$301
Denise Zufelt (Team "Just Live Alberta")7$530
Tim Peer7$300
Sandy Meaders2$300