Latest EHE News, Events and Research

Stay up to Date on EHE by Reading The Pledge: Edition 16, Q1 – Jan-Mar, 2019

May 20, 2019

Click here to read the Pledge: Edition 16, Q1 – Jan-Mar, 2019

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4th Annual EHE Virtual 5K Run/Walk

REGISTRATION IS OPEN FOR OUR 4th ANNUAL EHE VIRTUAL 5K!

March 5, 2019

Registration is now open for the 4th Annual EHE Virtual 5K!  Click here for more information and to register. 100% of the donations and profits from this event will be dedicated to EHE research. We hope you’ll join us to make a difference as we look forward to surpassing the number of last years’ participants […]

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The EHE Foundation Giving Tuesday Bifold 2019

EHE Informational Bifold

November 28, 2018

During this past week, we have featured several touching stories of those affected by EHE (see below). These stories have one thing in common, which all EHE patients can relate to: there are no standard treatments for EHE. Money raised by The EHE Foundation during #Giving Tuesday (Nov 27th) will address this common issue and […]

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Maggie Cameron

Maggie Cameron

November 27, 2018

Hi, I’m Maggie Cameron. I’m a wife, mother, cousin, designer and Crohn’s and EHE survivor. I live just south of Pittsburgh, PA. I love to spend time with my family, work (yes, I love it), run and ski! My EHE story started with my diagnosis of Crohn’s disease in 2009. The imaging showed a “thing” […]

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Jennifer San

Jennifer San

November 26, 2018

“My name is Jennifer San. I was first diagnosed with EHE in Dec 2017 after having a biopsy on two tumors that were removed from part of my left lung. I’ll never forget the day and the look on the doctor’s face when he gave me the news. When he opened the door to the […]

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Jenni Kovach

Jenni Kovach

November 25, 2018

“Hi, my name is Jenni and I live in Columbus, Ohio. I am the mother of a wonderful, nine year old daughter and happily married to my spouse of 18 years. I enjoy camping, hiking, playing board games, and watching Ohio State Buckeyes football. I was diagnosed with EHE on December 29, 2018 after a […]

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Zebrina Lauridsen

Zebrina Lauridsen

November 24, 2018

“My name is Zebrina Lauridsen. I am 24 years old, and I am the mother of a beautiful 2 year old little girl.  I was born and raised in the smack-dab in the middle of the US, Joplin, Missouri. I graduated from cosmetology school, and worked in a salon for a few years. Then I got […]

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Fransheska Nazario

Fransheska Nazario

November 23, 2018

“My name is Fransheska Nazario, I’m 25 years old and I am from Bolingbrook Illinois. I have a daughter that is four years old and her name is Penelope and we have a pet rabbit named Clover. Spending time with my family is what keeps me going every day. I enjoy arts and crafts, cooking, […]

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Kathy Field

Kathy Field

November 23, 2018

“Hello, my name is Kathy, and I live near Kalamazoo, Michigan. I have taught migrant and bilingual students for more than 35 years. My EHE was discovered in the spring of 2018, in both lungs. I cried at first, scared and not sure what to expect, but I decided to be as emotionally strong as I […]

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John Lamb

John Lamb

November 22, 2018

“My name is John Wesley Lamb. I am 50 years old from rural South Arkansas. I say I am just an ordinary guy. I am married to my wonderful wife, Angelia, and have three children, Juliann (Married to Logan), Caleb (engaged to Rachael) & Joshua. We have two grandchildren, Elizabeth & Layton.  I love being […]

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