Latest EHE News, Events & Research

Courtney Bieghler

Courtney Bieghler

February 20, 2024

Who or what inspires you most to keep fighting for a cure, and why? “I fight for my family. My husband and my four-year-old daughter. She is too young to understand what cancer is and I need her to know that her mother is going to fight to be here for when she graduates from […]

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The Pledge (Q4 2023)

The Pledge: Edition 35, Q4 – October-December, 2023

February 6, 2024

Publication of The Pledge quarterly newsletter is led by the EHE Rare Cancer Charity (UK). EHE patient advocacy groups from around the globe. provide content including research news, patient and fundraising stories, and much more! Click here to view the most recent edition of our online EHE newsletter, The Pledge.

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IK-930 Orphan Drug Designation

IK-930 Receives Orphan Drug Designation for EHE

January 10, 2024

Ikena Oncology has shared that on December 14th, 2023, the Food and Drug Administration (FDA) granted Orphan Drug Designation to IK-930 for the treatment of epithelioid hemangioendothelioma (EHE). We are excited about this designation following initial positive data from the IK-930 Phase I clinical trial published in Ikena’s November 9th press release. What does this […]

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Giving Tuesday 2023 Raises over $160k for EHE Research

December 15, 2023

Thank you! Together, we raised more than $160,000 to fund critically needed research into epithelioid hemangioendothelioma (EHE). Rare cancers, like EHE, lack sufficient governmental and pharmaceutical funding sources available for more common cancers. Your donations support our work to level the playing field. A special thanks to: Thank you for joining us in our fight […]

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2023 EHE Foundation Research Grant Awards

2023 EHE Foundation Research Grant Awards Announcement

December 12, 2023

The EHE Foundation awards research grants to advance our mission to find treatments and a cure for EHE. With the guidance of our Research Committee, Advisory Board, and expert reviewers, we are pleased to announce the research grants awarded in 2023:   Ajaybabu Pobbati, PhD, Cleveland Clinic Lerner Research Institute Harnessing FDA-approved drugs to gain mechanistic […]

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The Pledge

The Pledge: Edition 34, Q3 – July-September, 2023

December 11, 2023

Publication of The Pledge quarterly newsletter is led by the EHE Rare Cancer Charity (UK). EHE patient advocacy groups from around the globe. provide content including research news, patient and fundraising stories, and much more! Click here to view the most recent edition of our online EHE newsletter, The Pledge.

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Brianna Carney

Brianna Carney

November 22, 2023

Brianna Carney was only 23 when she passed on December 22, 2022. She was full of life and lived it to the fullest. She was passionate about those she loved, her dogs, rescuing other dogs, helping people, and being the best version of herself through hard work. She was a first-generation graduate of Nova Southeastern […]

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John McFadden joins The EHE Foundation Board of Directors.

Welcome New Board Member John McFadden, Ph.D., CRNA, APRN

November 17, 2023

The EHE Foundation was founded by patients, for patients. Continuing that tradition, we aredelighted to announce that EHE patient John McFadden, Ph.D., CRNA, APRN, has joined ourBoard of Directors. With more than 35 years of experience in health care, Dr. McFadden has held positions as anurse executive, hospital and university program accreditation surveyor, faculty member, […]

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Together we give on Giving Tuesday

Giving Tuesday is November 28th

November 14, 2023

During the busy holiday season, The EHE Foundation asks that you join us in celebrating Giving Tuesday, not just on Tuesday, November 28th, but throughout the month of November. All proceeds will support our vision: a world where EHE is easily diagnosed and treatable. Retailers are bombarding us with Black Friday and Cyber Monday advertisements. Let […]

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Nick Scalora and Munir Tanas

Spotlight on Young Investigator Nicholas Scalora, Advancing the Science Behind EHE

November 14, 2023

The EHE Foundation is proud to have awarded the 2023 Fellowship Travel Grant to Nicholas (Nick) Scalora, a 5th year graduate research assistant in the Tanas Laboratory, at the University of Iowa, where the team studies the role of the Hippo pathway in sarcomas. Dr. Munir Tanas, expert pathologist and researcher, was first author of […]

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