Latest EHE News, Events and Research

EHE Giving Tuesday 2019 Totals

Giving Tuesday 2019 WrapUp

December 27, 2019

We are THRILLED to announce that we surpassed our #GivingTuesday donations from last year! We are excited to share the total on Tuesday, December 10th. We are beyond GRATEFUL! THANK YOU to our many compassionate supporters for giving hope to those suffering from EHE. It is inspiring to know that our grassroots fundraising will continue to advance […]

Read More
EHE Teleconference

EHE Research Update Teleconference – Nov 2nd

October 29, 2019

Please join us for our annual “EHE Research Update” teleconference on Saturday, November 2, 2019 from 4:00 pm to 5:30 pm Eastern Standard Time (US). Jane Gutkovich, The EHE Foundation’s Director of Research, will be going over these main topics: What is EHE? Or rather EHEs? Why we all are so different? What have we […]

Read More
International Sarcoma Kindred Study

International Sarcoma Kindred Study (ISKS)

October 11, 2019

What is ISKS? ISKS is . afree to participate global genetic, biological, epidemiological, clinical resource developed to understand the genetic basis of sarcoma in a population. ISKS has created a world first, one of a kind, database that is accessed by doctors, researchers and scientists across the globe. ISKS was developed by Australian EHE Medical […]

Read More
EHE Foundation Medical Advisory Board

EHE Foundation at ASCO 2019!

October 1, 2019

EHE Foundation joined over 30,000 cancer experts from around the world in Chicago, IL in early June to learn of the latest clinical cancer research impacting patient care. The theme of this year’s conference is Caring for Every Patient, Learning From Every Patient. EHE Foundation board members and staff participated in the patient advocate track […]

Read More
The Pledge Q2 2019

Stay up to Date on EHE by Reading The Pledge: Edition 17, Q2 – April-June, 2019

September 13, 2019

Click here to read the Pledge: Edition 17, Q2 – April-June, 2019

Read More
Cleveland Clinic Miller Family Pavillion

The EHE Foundation and Cleveland Clinic Receive $1M Research Gift from the Margie and Robert E. Petersen Foundation

August 14, 2019

FOR IMMEDIATE RELEASE Contact: LeeAnn Conner, Fundraising across the world will secure additional $1M through a matching grant from the Petersen Foundation August 15, 2019 (Hobart, WI): The EHE Foundation and Cleveland Clinic received a major gift from the Margie and Robert E. Petersen Foundation. One million dollars will be donated to Cleveland Clinic […]

Read More
4th Annual EHE 5K Run/Walk Wrap-Up

4th EHE 5K Virtual 5K Run/Walk a Huge Success!

August 14, 2019

Once again many individuals and small groups of families and friends joined together in neighborhoods, parks, or local trails all over the nation to participate in the 4th Annual EHE 5K Virtual 5K Run/Walk. We surpassed our goal (to exceed last year’s participants) by leaps and bounds with 1,006 participants and $47,538 raised of which […]

Read More
The Pledge Q1 2019

Stay up to Date on EHE by Reading The Pledge: Edition 16, Q1 – Jan-Mar, 2019

May 20, 2019

Click here to read the Pledge: Edition 16, Q1 – Jan-Mar, 2019

Read More
4th Annual EHE Virtual 5K Run/Walk


March 5, 2019

Although most participants already completed their 5K, registration for the 4th Annual EHE Virtual 5K will remain open until all shirts are sold. Click here for more information. 100% of the donations and profits from this event will be dedicated to EHE research. We hope you’ll join us to make a difference as we look […]

Read More
The EHE Foundation Giving Tuesday Bifold 2019

EHE Informational Bifold

November 28, 2018

During this past week, we have featured several touching stories of those affected by EHE (see below). These stories have one thing in common, which all EHE patients can relate to: there are no standard treatments for EHE. Money raised by The EHE Foundation during #Giving Tuesday (Nov 27th) will address this common issue and […]

Read More