Latest EHE News, Events and Research

The Pledge: Edition 24, Q1 - Jan-Mar 2021

The Pledge: Edition 24, Q1 – Jan-Mar, 2021

May 24, 2021

Together, the US, UK, and Australia EHE foundations team up to strengthen the force against EHE. This group provides a quarterly update, which is led by the UK and includes research news, patient and fundraising stories, and much more! Click here to view the most recent edition of our online EHE newsletter, The Pledge.

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Patty Cogswell

The Importance of Biobanking

May 17, 2021

Biobanking is a brand-new endeavor for us at The EHE Foundation. Researchers retain frozen and stored tissue and biological samples from surgeries, which usually remains within the institution where the procedure takes place. Today, biobanking is a game-changer for rare disease and patient-led organizations like ours. Biobanks accelerate research by safe-guarding high-quality, donated tissue samples […]

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DNA

Researchers Engineer Much-Needed Mouse Model of a Rare Vascular Sarcoma

April 20, 2021

Dr. Rubin used a novel approach to target the gene fusion that causes epithelioid hemgioendothelioma, engineering a novel, first-of-its-kind mouse model of the disease, which will help advance studies to identify new treatments. Click here to read the full article. Sharing exciting news highlighting Dr. Brian Rubin’s research at the Lerner Research Institute at Cleveland […]

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Leah Heinrich

Leah Heinrich Participates on Scientific Peer Review Panel

March 2, 2021

For Immediate Press Release:  SCIENTIFIC PEER REVIEW OF CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAMS’ RARE CANCERS RESEARCH PROGRAM FOR THE DEPARTMENT OF DEFENSE The Congressionally Directed Medical Research Programs’ (CDMRP), Rare Cancers Research Program (RCRP) consumer advocate Leah Heinrich recently participated in the evaluation of research applications submitted to the RCRP. Leahwas nominated for participation in […]

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The Pledge Q4 2020

The Pledge: Edition 23, Q4 – Oct-Dec, 2020

February 17, 2021

Together, the US, UK, and Australia EHE foundations team up to strengthen the force against EHE. This group provides a quarterly update, which is led by the UK and includes research news, patient and fundraising stories, and much more! Click here to view the most recent edition of our online EHE newsletter, The Pledge.

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Rose Kalair

Rosemary Kalair

December 1, 2020

Rosemary or “Rose” was a compassionate, loving, caring person by nature. She was a nurse for 42 years, and retired in June, 2019. She began her career as a float nurse in the hospital, opened and managed an urgent care, amongst many other departments. She concluded her career as a Cardiac Rehab Nurse. Nursing and […]

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Amanda Roach

Amanda Roach

December 1, 2020

I am Amanda Roach from Gastonia, NC. I’ve been married to Philip for 12 years and my two children are Henry (age 7) and Lucy (age 5). I love spending time with my family, which also includes our two fur babies Gemma (a bulldog) and Dino (a husky/shepherd) mix. I’m a high school science teacher […]

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Amit Tandon

Amit Tandon

December 1, 2020

My name is Amit Tandon. I live in Katy, TX (suburb of Houston) with my rockstar wife (Rupali), daughter (Vrinda) who is 15, and son (Vansh) who is 16. We are big foodies and love all sorts of cuisines. I love spending time outdoors. I also enjoy running (although my knees don’t always play ball). […]

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Sandy Meaders

Sandy Meaders

November 30, 2020

I am Sandy Meaders from Laurel, Mississippi. My wife Barbara and I are retired from the general rental, hardware, paint business. We have four grown children and five grandchildren. We are also rescuees of a dog named Apple. During the pre-op for knee replacement, a tumor was detected in my chest. It was removed via […]

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Kari Kewish

Kari Kewish

November 27, 2020

Kari was only 44 when she passed away after fighting a two-year battle with EHE. We continue to fight in her memory and to honor her absolute pride and joy, her young daughter Serenity Paige. Kari always dreamed of being a mother, but wasn’t sure it would happen. When finally realized she was going to […]

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