Latest EHE News, Events and Research

Cleveland Clinic Miller Family Pavillion

The EHE Foundation and Cleveland Clinic Receive $1M Research Gift from the Margie and Robert E. Petersen Foundation

August 14, 2019

FOR IMMEDIATE RELEASE Contact: LeeAnn Conner, leeannconner@fightehe.org Fundraising across the world will secure additional $1M through a matching grant from the Petersen Foundation August 15, 2019 (Hobart, WI): The EHE Foundation and Cleveland Clinic received a major gift from the Margie and Robert E. Petersen Foundation. One million dollars will be donated to Cleveland Clinic […]

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4th Annual EHE 5K Run/Walk Wrap-Up

4th EHE 5K Virtual 5K Run/Walk a Huge Success!

August 14, 2019

Once again many individuals and small groups of families and friends joined together in neighborhoods, parks, or local trails all over the nation to participate in the 4th Annual EHE 5K Virtual 5K Run/Walk. We surpassed our goal (to exceed last year’s participants) by leaps and bounds with 1,006 participants and $47,538 raised of which […]

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Stay up to Date on EHE by Reading The Pledge: Edition 16, Q1 – Jan-Mar, 2019

May 20, 2019

Click here to read the Pledge: Edition 16, Q1 – Jan-Mar, 2019

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4th Annual EHE Virtual 5K Run/Walk

REGISTRATION IS NOW CLOSED FOR OUR 4th ANNUAL EHE VIRTUAL 5K BUT T-SHIRTS STILL AVAILABLE!

March 5, 2019

Although most participants already completed their 5K, registration for the 4th Annual EHE Virtual 5K will remain open until all shirts are sold. Click here for more information. 100% of the donations and profits from this event will be dedicated to EHE research. We hope you’ll join us to make a difference as we look […]

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The EHE Foundation Giving Tuesday Bifold 2019

EHE Informational Bifold

November 28, 2018

During this past week, we have featured several touching stories of those affected by EHE (see below). These stories have one thing in common, which all EHE patients can relate to: there are no standard treatments for EHE. Money raised by The EHE Foundation during #Giving Tuesday (Nov 27th) will address this common issue and […]

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Maggie Cameron

Maggie Cameron

November 27, 2018

Hi, I’m Maggie Cameron. I’m a wife, mother, cousin, designer and Crohn’s and EHE survivor. I live just south of Pittsburgh, PA. I love to spend time with my family, work (yes, I love it), run and ski! My EHE story started with my diagnosis of Crohn’s disease in 2009. The imaging showed a “thing” […]

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Jennifer San

Jennifer San

November 26, 2018

“My name is Jennifer San. I was first diagnosed with EHE in Dec 2017 after having a biopsy on two tumors that were removed from part of my left lung. I’ll never forget the day and the look on the doctor’s face when he gave me the news. When he opened the door to the […]

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Jenni Kovach

Jenni Kovach

November 25, 2018

“Hi, my name is Jenni and I live in Columbus, Ohio. I am the mother of a wonderful, nine year old daughter and happily married to my spouse of 18 years. I enjoy camping, hiking, playing board games, and watching Ohio State Buckeyes football. I was diagnosed with EHE on December 29, 2018 after a […]

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Zebrina Lauridsen

Zebrina Lauridsen

November 24, 2018

“My name is Zebrina Lauridsen. I am 24 years old, and I am the mother of a beautiful 2 year old little girl.  I was born and raised in the smack-dab in the middle of the US, Joplin, Missouri. I graduated from cosmetology school, and worked in a salon for a few years. Then I got […]

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Fransheska Nazario

Fransheska Nazario

November 23, 2018

“My name is Fransheska Nazario, I’m 25 years old and I am from Bolingbrook Illinois. I have a daughter that is four years old and her name is Penelope and we have a pet rabbit named Clover. Spending time with my family is what keeps me going every day. I enjoy arts and crafts, cooking, […]

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