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Latest EHE News, Events and Research
The Importance of Biobanking
Biobanking is a brand-new endeavor for us at The EHE Foundation. Researchers retain frozen and stored tissue and biological samples from surgeries, which usually remains within the institution where the procedure takes place. Today, biobanking is a game-changer for rare disease and patient-led organizations like ours. Biobanks accelerate research by safe-guarding high-quality, donated tissue samples […]
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Researchers Engineer Much-Needed Mouse Model of a Rare Vascular Sarcoma
Dr. Rubin used a novel approach to target the gene fusion that causes epithelioid hemgioendothelioma, engineering a novel, first-of-its-kind mouse model of the disease, which will help advance studies to identify new treatments. Click here to read the full article. Sharing exciting news highlighting Dr. Brian Rubin’s research at the Lerner Research Institute at Cleveland […]
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Leah Heinrich Participates on Scientific Peer Review Panel
For Immediate Press Release: SCIENTIFIC PEER REVIEW OF CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAMS’ RARE CANCERS RESEARCH PROGRAM FOR THE DEPARTMENT OF DEFENSE The Congressionally Directed Medical Research Programs’ (CDMRP), Rare Cancers Research Program (RCRP) consumer advocate Leah Heinrich recently participated in the evaluation of research applications submitted to the RCRP. Leahwas nominated for participation in […]
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The Pledge: Edition 23, Q4 – Oct-Dec, 2020
Together, the US, UK, and Australia EHE foundations team up to strengthen the force against EHE. This group provides a quarterly update, which is led by the UK and includes research news, patient and fundraising stories, and much more! Click here to view the most recent edition of our online EHE newsletter, The Pledge.
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Stay up to Date on EHE by Reading The Pledge: Edition 22, Q3 – Jul-Sep, 2020
Click here to read the Pledge: Edition 20, Q3 – Jul-Sep, 2020
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EHE Circle of Friends Monthly Giving Program Kicks Off!
We invite you to join our Circle of Friends! With so much uncertainty around us, your consistent support means more than ever. Why a monthly giving campaign? It’s Sustained Support: Monthly gifts allow us to predict our donations and plan ahead by expanding research and strengthen The EHE Foundation It’s a Community: Becoming an EHE […]
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The Pledge: Edition 41, Q2 – April-June, 2025
Publication of The Pledge quarterly newsletter is led by the EHE Rare Cancer Charity (UK). EHE patient advocacy groups from around the globe provide content including research news, patient and fundraising stories, and much more. Click here to view the most recent edition of the online EHE newsletter, The Pledge.
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What You Need to Know About Tissue Donation
By Seth Haddix, PhD | EHE Biobank Coordinator When patients are thinking about surgery, a new biopsy, or other procedure, their minds are filled with decisions and worry. Tissue donation isn’t usually top of mind, and for more common cancers, it is not something we think about as a priority. For an ultra-rare cancer like […]
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Advancing EHE Research at the 9th Annual YAP/TAZ and TEADs Workshop in Telluride, Colorado
The 9th Annual YAP/TAZ and TEADs: At the Crossroads of Cancer workshop took place June 9-13, 2025, in the stunning mountain town of Telluride, Colorado. Hosted by the Telluride Science and Innovation Center and organized by Drs. Guy Weinberg and John Lamar, this unique gathering brought together top-tier researchers and clinicians from academia and industry […]
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