TISSUE DONATION IS CRITICAL TO FIND TREATMENTS! Click here to learn more.
A monthly gift allows you to invest in our mission at a level that works for you. Cancel or adjust your gift at any time.
Monthly gifts sustain the work it takes to facilitate critical research, develop impactful patient educational programming, and advocate for people living with EHE.
Recurring gifts provide sustained support, enabling us to invest in long-term, groundbreaking research that brings us closer to finding effective treatments and a cure for EHE.
Kelly Baug
Lael Bellamy
Jamie Butterfield
Maggie Cameron
Mary DeYoung
Patricia Kunkel
Brian and AnnMarie McConnell
Moira McGuire
Gewndolyn Nitz
Helen Patterson
Bonnie Ranen
Denise & Scott Robinson
Pamela Scott
The Sheeley Family
Steve Smit
Berit Stromberg
Carl Stromberg
Amit Tandon
Jesus David Torres
Shane Wegener
Bart and Lynn Weitzenberg
Dennis Wiklund
Ryan Yoho
We are honored to share The EHE Foundation 2023 Impact Report, illustrating the significant progress made in 2023. With support from the EHE community, we advanced critical research, provided educational information to patients and families, and amplified awareness about this ultra-rare disease.
Our accomplishments bring hope for a future where effective treatments exist and are available and accessible to those who need them. With every step, we are gaining scientific momentum, improving patient care, and celebrating with families where people diagnosed with EHE can Just Live!