People with EHE are

one-in-a-million!

Donations to support EHE cancer research are DOUBLED through Giving Tuesday, December 2, 2025. Give now to DOUBLE your impact!

We envision a world where Epithelioid Hemangioendothelioma (EHE) is easily diagnosed and treatable. Join our dedicated community by subscribing to our emails.

Patient-Powered EHE Research

EHE Biobank

Patients are the key to finding new treatments for EHE! Researchers need tumor tissue and fluid from EHE patients to understand disease progression and speed the development of new drugs and therapies.

Patient-Powered EHE Research

EHE Global Patient Registry

The EHE Global Patient Registry empowers people with Epithelioid Hemangioendothelioma (EHE) to join together to improve our understanding of this ultra-rare sarcoma. We need every EHE patient to join this critical tool used to support researchers searching for treatments and a cure for EHE.

Latest EHE News, Events and Research

EHE Foundation Advisory Board

The EHE Foundation Advisory Board Annual Meeting

By The EHE Foundation | July 17, 2022

The EHE Foundation’s Advisory (Ad) Board met with the Foundation’s research team in June for their annual meeting. The Ad Board is composed of nine renowned clinicians and researchers who generously give their time and talents to advise The Foundation, in addition to the countless hours they spend during their ‘day jobs’ with patients, research […]

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Dr. Tamara Vesel & Dr. Maeve Baechler

Continued Discussion on Integrating Cancer Identity Into the Self

By The EHE Foundation | June 23, 2022

Drs. Vesel and Baechler facilitated our very first Community Connections event on May 14th. The topic was, “Who am I now? Integrating the cancer identity into the self.” Attendees discussed their own experiences with their diagnosis and how they’ve incorporated EHE into their identities. This will be a continuation of that topic and more! Dr. Vesel is […]

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Jane Gutkovich, EHE Foundation Board Member Emeritus

What Happened at ASCO? EHE Update with Jane Gutkovich

By The EHE Foundation | June 23, 2022

Jane is one of the founders of The EHE Foundation, and currently in the role of distinguished Board Member Emeritus. In this role, Jane works strategically with us to continue to support patients worldwide and recruit researchers to EHE. Jane recently attended the 2022 American Society of Clinical Oncology Meeting held annually in Chicago, IL. […]

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The Pledge Q1 2022

The Pledge: Edition 28, Q1 – Jan-Mar, 2022

By The EHE Foundation | June 8, 2022

Together, the US, UK, and Australia EHE foundations team up to strengthen the force against EHE. This group provides a quarterly update, which is led by the UK and includes research news, patient and fundraising stories, and much more! Click here to view the most recent edition of our online EHE newsletter, The Pledge.

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Patty Cogswell, EHE Biobank Coordinator

EHE Biobank: Patients Powering Research

By The EHE Foundation | June 7, 2022

You didn’t choose to have cancer, but you can make a difference in how the world fights it. Join Patty Cogswell, EHE Biobank Coordinator, in an informal, interactive conversation on the questions, challenges and benefits of donating tissue and fluids to the EHE Biobank. Learn how YOUR contributions can directly power research and help us […]

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Dr. Tamara Vesel & Dr. Maeve Baechler

Who am I now? Integrating the cancer identity into the self.

By The EHE Foundation | June 7, 2022

You are invited to the EHE Community Connections session on Saturday, May 14th, at 11:00 AM Eastern Time (US). Dr. Tamara Vesel and Dr. Maeve Baechler will be facilitating the discussion and exploring questions like Why is it important to contemplate on identify after the cancer diagnosis. How does the issue of identity relates to symptoms during cancer treatment? Ups and down of resisting versus incorporating cancer diagnosis into one’s life.

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Drs. Claudia Giani and Anna Maria Frezza

EHE Stabilization with Sirolimus: Results From POEM, a Prospective Multicentric Observational Study

By The EHE Foundation | November 6, 2025

Drs. Claudia Giani, Anna Maria Frezza, Silvia Stacchiotti, and colleagues from the Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy, and Royal Marsden Hospital, London, UK, presented results from POEM: a prospective observational study on Epithelioid Haemangioendothelioma at ESMO Congress 2025. The data presented included 57 consecutive molecularly confirmed EHE patients who entered the study, […]

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Jason Hanna, PhD from the Hanna Lab at Purdue University

Hanna Lab at Purdue University: ‘When cells in the body stop following the rules, cancer can take hold.’

By The EHE Foundation | October 14, 2025

You met Jason Hanna, PhD, at the 2025 EHE Global Patient Conference, where he highlighted work his lab is undertaking in EHE. We are thrilled to share a recent publication in Molecular Oncology from the Hanna Lab at Purdue University, highlighting their findings from a study focused on the YAP1-TFE3 subtype of EHE.  The YAP1-TFE3 […]

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Tanas Lab at the University of Iowa

Exciting Progress in EHE Research – Powered by Patients

By The EHE Foundation | October 10, 2025

We are thrilled to share a new publication, “EHE cell cultures are a platform for mechanistic and therapeutic investigation,” made possible by a partnership between the University of Iowa and the EHE Foundation. Under the leadership of Dr. Munir Tanas, Nicholas Scalora, PhD, and colleagues in the Tanas Lab sought to develop long-term EHE cell […]

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