Newly Diagnosed

Whether you are newly diagnosed or have been living with EHE for a while, you are not alone. We know there are many unwelcome emotions, symptoms, and worries associated with an EHE diagnosis and we hope this page will give you a good starting point in supporting you in this journey. We highly encourage you to browse our website, join our mailing list, and connect with The EHE Foundation on social media @ehefoundation on Facebook, LinkedIn, Instagram, and Twitter.

Our Patient Services Team aims to help you:

CONNECT – Connect your medical care team with an oncologist familiar with EHE and connect with others living with EHE.

STAY INFORMED – Learn about the latest news and research related to your EHE diagnosis through our website, articles, emails, and videos. Sign up for emails here.

MAKE A DIFFERENCE – Advocate for all EHE patients. Share your EHE story and contribute to research as a participant of our patient survey or as a biobank donor.

Here are some suggestions and resources that might help right away:

We hope this information is helpful as you start your EHE journey. We welcome you to reach out to us with questions and truly value your feedback. You can reach our Patient Services Team here or at 1-877-460-4240.

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