A Powerful Community Gathering at the 2026 EHE 360 Global Conference

The EHE Foundation hosted the sixth annual virtual convening of the EHE 360 Global Conference on April 31 – May 1, 2026. The conference brought together patients, caregivers, clinicians, researchers, regulators, and industry partners from around the world to promote education, broaden research collaborations, and advance therapeutic development for epithelioid hemangioendothelioma (EHE), an ultra-rare sarcoma.

EHE 360 is the world’s only patient-led global forum dedicated exclusively to EHE, integrating lived experience with translational science and clinical care. The 2026 conference attracted 187 registrants from 19 countries across two full-day sessions, with 138 attendees.

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EHE Scientific Symposium

April 30, 2026

Focused on basic science, translational research, fusion protein biology, and emerging therapeutic development, featuring 8 research presentations across 3 sessions.

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EHE Clinical Care Summit

May 1, 2026

Centered on clinical diagnosis, disease management, active clinical trials, integrative medicine, and patient support, featuring 8 presentations and an Ask the Expert panel.

Key highlights from EHE 360 include:

9

Science presentations discussing fusion protein biology, druggable pathways, and collaborative discovery platforms

8

Clinical presentations covering diagnosis, disease management, clinical trials, and integrative care

2

Active clinical trials were presented: SARC046 (Nab-Sirolimus, NCT07104331) and ODM-212 (TEAD Inhibitor, NCT06725758)

67

Percent of all registrants were people with EHE and their families, demonstrating strong community engagement

19

Countries represented, spanning 5 continents

The 2026 conference deepened the community’s knowledge of translational and clinical science, expanded understanding of patient-centered and integrative care, and increased awareness of international clinical trials in EHE.

Overall, the presentations and discussions strengthened a community that is galvanized to advance research to improve outcomes for people affected with ultra-rare epithelioid hemangioendothelioma. 

EHE Foundation is grateful to the 2026 EHE 360 Global Conference sponsors, Aadi Biosciences and SpringWorks Therapeutics, and to the presenters who generously gave their time and talents to the EHE community. 

Explore recordings from the 2026 EHE 360 Global Conference at FightEHE.org/ehe-360.