EHE Foundation at ASCO 2019!

EHE Foundation joined over 30,000 cancer experts from around the world in Chicago, IL in early June to learn of the latest clinical cancer research impacting patient care. The theme of this year’s conference is Caring for Every Patient, Learning From Every Patient.

EHE Foundation board members and staff participated in the patient advocate track and were given access to all scientific sessions and viewed posters focusing on sarcoma and EHE research. In addition, the Foundation attended the 2019 Annual SARC meeting – a four-hour meeting that includes scientific translational medicine presentation on new emerging science in the field of sarcoma and engages the sarcoma investigator community in the review of ongoing clinical research and discussion of opportunities for future research.

Also during ASCO, The EHE Foundation organized the annual Medical Advisory Board lunch meeting. Big thanks to AD Board members Drs. Okuno, Wilky & Burgess for the robust discussion with updates on fundraising, current research project portfolio, patient services, programmatic activities, and ideas for future directions.

The EHE Foundation and Cleveland Clinic Receive $1M Research Gift from the Margie and Robert E. Petersen Foundation

FOR IMMEDIATE RELEASE
Contact: LeeAnn Conner, leeannconner@fightehe.org

Fundraising across the world will secure additional $1M through a matching grant from the Petersen Foundation

August 15, 2019 (Hobart, WI): The EHE Foundation and Cleveland Clinic received a major gift from the Margie and Robert E. Petersen Foundation. One million dollars will be donated to Cleveland Clinic to support EHE research conducted by Brian Rubin, MD, PhD, Chair of the Robert J. Tomsich Pathology & Laboratory Medicine Institute and a member of the Cancer Biology Program of Cleveland Clinic’s Lerner Research Institute. Dr. Rubin is a global leader in Epithelioid Hemangioendothelioma (EHE) research and this generous gift will support an ambitious research effort to develop effective therapies to treat the disease.

Significantly, the Margie and Robert E. Petersen Foundation also has agreed to match an additional $1 million in research funding if The EHE Foundation can raise another $1 million over the next three years. This fundraising will be spearheaded worldwide by Cleveland Clinic, EHE Foundation (US), EHE Rare Cancer Charity (UK) and EHE Rare Cancer Foundation (Australia). All funds raised and matched will enable Dr. Rubin to hand-pick a research team from around the globe that will complement his research. This fundraising partnership will catalyze the already energized grassroots fundraising of The EHE Foundation’s passionate supporters worldwide while breaking ground on vital EHE research. Donate now to the EHE Foundation, and your generous gift will be matched by the Petersen Foundation.

“We are grateful for this gift from the Petersen Foundation, which solidifies our relationship with The EHE Foundation and provides much needed funds for EHE research. The matching funds are particularly vital as they will strengthen our worldwide collaborative research group as well as The EHE Foundation,” said Dr. Rubin. 

“This gift will greatly intensify the EHE research and collaboration efforts by Dr. Rubin. With very little public funding available for EHE research, a private gift of this size with the potential of matching up to an additional $1 million will substantially propel our research and fundraising efforts,” said Julie Wahl, President of The EHE Foundation.

EHE is an unpredictable, rare vascular cancer. Similar to many other cancers, EHE is caused by a genetic malfunction that encodes a unique cancer-causing protein. Dr. Rubin and his colleagues are studying this protein to discover vulnerabilities that can be exploited therapeutically. 

The Margie and Robert E. Petersen Foundation’s generous gift will allow Dr. Rubin and other collaborative researchers to continue their quest to treat and cure EHE. Automobile publishing giant Robert E. Petersen owned magazines such as Motor Trend and Hot Rod Magazine and founded the Petersen Automotive Museum in Los Angeles.    

4th EHE 5K Virtual 5K Run/Walk a Huge Success!

Once again many individuals and small groups of families and friends joined together in neighborhoods, parks, or local trails all over the nation to participate in the 4th Annual EHE 5K Virtual 5K Run/Walk. We surpassed our goal (to exceed last year’s participants) by leaps and bounds with 1,006 participants and $47,538 raised of which 100% will be used to fund EHE research.

No matter how or where you participated or supported, we want to say a huge THANK YOU for your extraordinary support. Thanks to those that hosted large groups to complete their 5K event together and those that encouraged friends and family to join their efforts across the nation. We measure the event’s success by its growth each year and YOU really helped us propel our accomplishments this year!

A “special” thanks to Kristen Carlton (Team Kristen Leigh), Joe (in memory of his wife, Yahaira), Jenni Kovach (#teamjenni), Katherine Czyzewski, and Julie Wahl (Team Laney) for hosting record sized groups for the event.

The Foundation also received wonderful support from a group of generous sponsors. We are grateful for the following sponsors of the 4th Annual EHE 5K.

Platinum: BWA South; Cushman & Wakefield; Giombetti Associates; Hansen Distribution Agency.

Gold: Ryczek Construction; V&P Hydraulic Products.

Silver: Monticello and Warren Animal Clinics; Team Laney; Team Kristen Leigh; #teamjenni