One of the challenges of rare cancers like EHE is the lack of published research for doctors to rely on.
In December 2020, a group of more than 80 sarcoma experts from leading medical institutions around the world came together under the guidance of the European Society for Medical Oncology (ESMO) to develop treatment recommendations for EHE. This convening included expert representatives from multiple areas of specialty involved in treating EHE patients including medical, surgical, and radiation oncology as well as pathology and radiology.
As a result, the first publication of expert guidance for managing EHE was published in early 2021. You can find the physician's version of Epithelioid hemangioendothelioma, an ultra-rare cancer: a consensus paper from the community of experts below, which is highly technical. We encourage patients to share this version of the publication with their care team.
The EHE Group, a collaboration of EHE organizations around the world, worked closely with the experts to create a less technical, patient-friendly version of this document. This version gives patients and caregivers a better understanding of EHE and allows them to engage in more informed discussions and decision-making with their medical teams.
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