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Maggie Cameron
Colton’s Story: Fighting EHE with Strength, Hope, and Connection From the very beginning, Colton’s life was marked by resilience. He and his twin brother, Bryson, were born seven weeks early on August 13, 2012. After spending a month in the NICU, Colton faced another serious hurdle at just seven weeks old, when he was admitted […]
Cato’s Story: Learning to Live in the Present For Cato, the beginning of her EHE story did not come with dramatic symptoms or a clear warning sign. It began quietly, almost invisibly, with fatigue and a routine blood test that seemed, at first, to lead to something minor. That first test showed abnormal liver values […]
Norm’s Story: A Family’s Love, Search for Answers, and Life After Loss When Norm went in for a routine health appointment in late 2022, neither he nor his family imagined how quickly life was about to change. A chest X-ray revealed something concerning in his right lung. Until then, Norm had only noticed what felt […]
In March, EHE Foundation was represented at two important meetings in Europe focused on sarcoma, rare cancers, and EHE research. These gatherings were invaluable opportunities to connect with clinicians, researchers, and fellow advocates working to improve care, deepen understanding, and advance progress for people affected by EHE. Executive Director Denise Robinson attended on behalf of […]
Publication of The Pledge quarterly newsletter is led by the EHE Rare Cancer Charity (UK). EHE patient advocacy groups from around the globe provide content including research news, patient and fundraising stories, and much more. Click here to view the most recent edition of the online EHE newsletter, The Pledge.
I was first diagnosed with fibrosarcoma in April of 2008 after severe pain in my brachial plexus, right side. At the time, I was 48 years old and teaching middle school. I had just finished a master’s degree a few years prior to my diagnosis and planned to teach until I was at least 62. […]