One-in-a-million people are living with EHE worldwide.

Our mission is to find treatments and a cure for this rare cancer by advancing research and driving collaboration between patients, researchers, and clinicians.

We envision a world where Epithelioid Hemangioendothelioma (EHE) is easily diagnosed and treatable. Join our dedicated community by subscribing to our emails.

Patient-Powered EHE Research

EHE Biobank

Patients are the key to finding new treatments for EHE! Researchers need tumor tissue and fluid from EHE patients to understand disease progression and speed the development of new drugs and therapies.

Patient-Powered EHE Research

EHE Global Patient Registry

The EHE Global Patient Registry empowers people with Epithelioid Hemangioendothelioma (EHE) to join together to improve our understanding of this ultra-rare sarcoma. We need every EHE patient to join this critical tool used to support researchers searching for treatments and a cure for EHE.

Latest EHE News, Events and Research

Good Vibes for McKenna Raised $25K at Fundraiser

Good Vibes for McKenna, A Celebration Benefiting Cancer Research

By The EHE Foundation | January 27, 2023

Thanks to “Good Vibes for McKenna, A Celebration Benefiting Cancer Research” for hosting an EXTRAORDINARY two-day event held January 21st and 22nd in Fort Myers, Florida. We truly appreciate their $25,000 donation to The EHE Foundation to support EHE research and for creating much needed EHE awareness! The event featured a fine dining experience and […]

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Champions of EHE

Champions of EHE

By The EHE Foundation | December 17, 2022

Our vision at The EHE Foundation is to live in a world where EHE is easily diagnosed and treatable. The support of our community directly impacts every single person diagnosed with EHE. Patients, donors, doctors and researchers help us make that vision a reality. ⁠⁠During our Giving Tuesday 2022 campaign, we featured these “Champions of […]

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Dr. Tamara Vesel & Dr. Maeve Baechler

Cancer Identity Session #4: Integrating Cancer Identity Into the Self

By The EHE Foundation | December 17, 2022

We are pleased to present the fourth session with Dr. Tamara Vesel, Chief of Division of Palliative Care, Clinical Associate Professor of Medicine and Pediatrics, Tufts University School of Medicine and Dr. Maeve Baechler, LIFE Cancer Coaching. Continuing the discussion, “Who am I now? Integrating the cancer identity into the self,” Drs. Vesel & Baechler […]

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Hugh Leonard and Denise Robinson

Science Saturday – Highlights and Progress in EHE Research

By The EHE Foundation | December 17, 2022

Join Hugh Leonard (EHE Rare Cancer Charity, UK) and Denise Robinson (The EHE Foundation) as they highlight EHE advancements and ongoing research around the world. As an ultra-rare sarcoma (cancer) community, research and awareness relies strongly on patients and advocates to keep moving forward until there are toward better treatments and eventually, a cure. Find […]

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Thank you for The EHE Foundation's successful Giving Tuesday

Giving Tuesday 2022 a Great Success

By The EHE Foundation | December 16, 2022

Thank you for helping us reach our $150,000 goal on Giving Tuesday to fund the 2023 Research Grants Program!  A special thanks to the 374 donors, 16 people affected by EHE who held successful fundraisers, and the countless individuals that shared their personal EHE story and our mission. We are grateful for your contributions and […]

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Denise Robinson and Patty Cogswell attend CTOS 2022 on behalf of The EHE Foundation

The EHE Foundation Attends CTOS 2022

By The EHE Foundation | December 9, 2022

With sincere gratitude to each patient who has contributed to the EHE Biobank, patient-driven research was on the global stage! Denise Robinson, The EHE Foundation Director of Research and Patty Cogswell, EHE Biobank Coordinator, presented a poster on the EHE Biobank on behalf of The EHE Foundation last month at the CTOS 2022 Annual Meeting […]

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Jason Hanna, PhD from the Hanna Lab at Purdue University

Hanna Lab at Purdue University: ‘When cells in the body stop following the rules, cancer can take hold.’

By The EHE Foundation | October 14, 2025

You met Jason Hanna, PhD, at the 2025 EHE Global Patient Conference, where he highlighted work his lab is undertaking in EHE. We are thrilled to share a recent publication in Molecular Oncology from the Hanna Lab at Purdue University, highlighting their findings from a study focused on the YAP1-TFE3 subtype of EHE.  The YAP1-TFE3 […]

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Tanas Lab at the University of Iowa

Exciting Progress in EHE Research – Powered by Patients

By The EHE Foundation | October 10, 2025

We are thrilled to share a new publication, “EHE cell cultures are a platform for mechanistic and therapeutic investigation,” made possible by a partnership between the University of Iowa and the EHE Foundation. Under the leadership of Dr. Munir Tanas, Nicholas Scalora, PhD, and colleagues in the Tanas Lab sought to develop long-term EHE cell […]

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Guy Weinberg, MD

Uniting for a Cure: A New Chapter in the Fight Against EHE

By The EHE Foundation | October 8, 2025

FOR IMMEDIATE RELEASE Hobart, WI – October 9, 2025 – The Center for Research and Analysis of VAscular Tumors (CRAVAT) Foundation has donated its resources to The EHE Foundation in a powerful alignment of vision and commitment to the people affected by epithelioid hemangioendothelioma (EHE) and the EHE scientific community.  Founded in 2015 by Guy […]

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