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Latest EHE News, Events & Research
Thank you to every sponsor, participant, and donor, for helping us make the 2023 EHE Fun Run and Walk the LARGEST in our history with 1,156 registrations and more than 60 teams! Registration for the event went through the month of April and supporters participated in the virtual event across the country mostly in May […]
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Publication of The Pledge quarterly newsletter is led by the EHE Rare Cancer Charity (UK). EHE patient advocacy groups from around the globe. provide content including research news, patient and fundraising stories, and much more! Click here to view the most recent edition of our online EHE newsletter, The Pledge.
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The EHE Foundation seeks to support and fund the most promising basic, translational, and clinical research that will expand our current understanding of EHE and accelerate the development of treatments, and a cure for EHE. Each year, the Foundation initiates a new Research Grants Cycle, inviting researchers and clinician scientists from around the world to […]
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Our Director of Research, Denise Robinson, attended the American Society of Clinical Oncology (ASCO) 2023 Annual Meeting and the Sarcoma Alliance for Research through Collaboration (SARC) Semi-annual Meeting in Chicago, IL, in early June. Over 30,000 people joined together in person to conquer cancer! ASCO is the world’s leading organization for oncology, bringing together clinicians, […]
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The EHE Foundation is pleased to announce that Tammy Silverthorne has been selected as Executive Director. With significant consideration given to the leadership skills, experience, and non-profit expertise needed to successfully guide the Foundation in its next phase of growth, the Board of Directors has selected Tammy Silverthorne to serve in this important leadership role. […]
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This research study is open to participants worldwide to advance understanding and treatments for epithelioid hemangioendothelioma (EHE), an ultra-rare vascular sarcoma. Hobart, Wisconsin. June 13, 2023 — The EHE Foundation and the National Organization for Rare Disorders (NORD®) have launched a global patient registry study to research epithelioid hemangioendothelioma (EHE), an ultra-rare vascular sarcoma for […]
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Lamar Lab at Albany Medical College Advancing EHE Research The EHE community is fortunate to have Dr. John Lamar, PhD, Associate Professor in the Department of Molecular and Cellular Physiology at Albany Medical College, and his team, working to advance our mission to find effective treatments for EHE. Dr. Lamar’s lab, the ‘Lamar Lab’, has […]
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Held on April 15, 2023, during EHE Awareness Month, the annual EHE 360 EMPOWERING PATIENTS 2023 Global Patient Conference featured an international group of clinicians and researchers presenting the latest clinical and research developments in epithelioid hemangioendothelioma (EHE). This virtual conference left EHE patients and families, doctors, researchers, and advocates empowered with a broader understanding of EHE […]
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In March Denise Robinson, our Director of Research joined Dr. Scott Okuno, Chief Medical Officer for SARC (Sarcoma Alliance for Research through Collaboration) to talk about EHE research and patient advocacy. Their discussion beautifully lays out the challenges of facilitating research in the ultra-rare disease landscape. Denise and Dr. Okuno also talked about the growth […]
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Together, the US, UK, and Australia EHE foundations team up to strengthen the force against EHE. This group provides a quarterly update, which is led by the UK and includes research news, patient and fundraising stories, and much more! Click here to view the most recent edition of our online EHE newsletter, The Pledge.
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