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Archives for August 2015

Texas Hold ‘Em Fundraiser in Memory of Brian Frank

August 11, 2015 by The EHE Foundation

Brian FrankCOME OUT & PLAY: TEXAS HOLD’EM FUND RAISER FOR EHE CANCER RESEARCH IN MEMORY OF OUR SO LOVED AND MISSED, ALWAYS IN OUR HEART ……BRIAN FRANK

Saturday, August 29 at 12:30pm in PDT

20838 SE 240th St. Maple Valley WA 98038

EHE or Epithelioid Hemangioendothelioma is a extremely rare vascular cancer that only effects 100 people a year worldwide. It is very hard to diagnose due to the fact it is so rare. Many doctors have never even heard of it. Dr. Brian Rubin of the Cleveland Clinic is the only doctor that is actively studying EHE. He relies only on donations to fund his research.

Brian Frank passed away in September from this horrible cancer, he was only 28! He was sick for 6 months and not one doctor could tell him what he had. Unfortunately he passed before he was diagnosed. Autopsy showed that he had EHE. Brian’s tissue samples have been sent to Dr. Rubin. He is actively studying them in hopes to get some answers about EHE.

Every amount donated will greatly help another young person with EHE! I know Brian would love if we could help someone else and possibly save lives

What is EHE (Epithelioid Hemangio-Endothelioma) Cancer?

http://www.cravatfoundation.org/hemangioendothelioma/

Where your donations will go to:

http://ccf.convio.net/site/TR/DIY/CCFTeamRaiser?px=2538406&pg=personal&fr_id=1360#.VXsKykbLnFB

http://www.cravatfoundation.org/

Buy-in: $50

$30 goes to the cause; $20 goes to the pot.

CARDS IN THE AIR: 2:00!! So important….PLEASE be timely, there will be a lots of players and will take all night to play.

• Please show up early to eat and get comfortable, also to find your seat and buy your chips to start the game.

• There will be volleyball, horseshoes, and other lawn games for those who are not playing cards. Kids are welcomed, (just asking that the young ones not be around the game tables & away from the alcohol))

• We want this to be a BIG BBQ with lots of fun for family and friends kind a day!!

GAME RULES:

Winnings will be divided depending on how many people play. Example: with 50 players we can expect $1,000 in prize money. We also hope to have some gift cards & prizes to be included for winners. Each player starts with 5000 in chips, blinds start at 25/50 and go up every 20 minutes. Re-buys will be allowed for a set period of time. 100% of re-buys goes to the cause. This should allow for steady action. After the main tournament is over, additional single table ‘loser’ tournaments can form if there is interest (same format as above). Message us if you have any questions.

1. Charlie & Kendy will be supplying all the hamburgers, brats, hotdogs you can eat and we will have water bottles too!

2. Everyone will be responsible for their own drinks and Ice. Just bring your coolers.

3. Please if you can….bring a appetizer to share. For example: chips & salsa, hotwings, cheese dips, your favorite yummy appetizer. We need this to keep everyone full of energy for the long day and night.

4. We are asking that everyone leave their animals at home, please. This will help keep the distraction down and barking at bay. Much love.

*******************************UPDATE**********************
Time is sneaking up on us and we NEED help with the following items.

…………………..WHAT WE NEED HELP WITH………………….……

Please “COMMENT” on this post or message my FaceBook or email ([email protected]) me what you can help out with. I will keep a list of who is doing what.

1. If you have not yet replied “going” to attend please do so, I need to get an accurate head count for players and for food.

2. We NEED CHAIRS!!! any kind will work!

This will be a long day & night and if you are drinking PLEASE don’t drive!!! We have room so you can bring your motor-homes,campers,trailers, even tents, there is plenty of parking room. We have room for anyone that needs to stay and sleep!

Filed Under: Fundraising & Events

Mandy O’Connor

August 5, 2015 by The EHE Foundation

Mandy and Devin O'ConnorMandy O’Connor, a York native, Penn State graduate, and THON participant, fought Epithelioid Hemangioendothelioma (EHE) for more than a decade. EHE is a rare and often deadly vascular sarcoma (cancer) that largely affects adolescents and young adults. Mandy served on planning committees for Relay For Life and volunteered as a Team Captain and routinely spoke at American Cancer Society events. She was passionate about fighting cancer, especially those primarily targeting children. For her 30th birthday, she raised money for Alex’s Lemonade Stand, an organization trying to eradicate childhood cancer. Mandy passed away April 5th, 2015, at Johns Hopkins Hospital at the young age of 31.

Filed Under: Uncategorized

Ava’s Story

August 4, 2015 by The EHE Foundation

AvaAva is an eight year old girl from Langhorne, PA, where Sesame Place is located. We are about 25 miles from Center City Philadelphia. Ava loves swimming and going to Sesame Place, since it is a water park. Ava loves drawing and takes an Art class on Saturday mornings. She also takes dance class (Hip-Hop) and loves to sing.

Ava loves music. She loves Taylor Swift and One Direction. Her first concert was the Beach Boys when she was five years old. She has also seen One Republic in concert.

Ava is just finishing Second grade at Herbert Hoover Elementary. Ava likes school. She is outgoing and has many friends. Ava has an older brother, Nicholas, who is ten. They are very close. Ava also has eleven cousins and is very close with all of them too.

Ava was diagnosed with EHE February 2014. She has tumors in her liver and lungs and is currently stable and treated with Sirolimus with quarterly monitoring.

We are looking forward to a great summer, beginning with a trip to Hawaii through the Make-A-Wish foundation. We pray that we beat this disease and Just Live!

Filed Under: Uncategorized

ASCO Talks About EHE

August 4, 2015 by The EHE Foundation

The American Society Clinical Oncologists (ASCO) met in Chicago in May of 2015, for their annual meeting. The theme, Illumination and Innovation: Transforming Data into Learning, aims to improve patient care across the globe through the application of shared knowledge. This is especially important when talking about rare sarcomas. Jane Gutkovich, Vice President of The EHE Foundation, was able to coordinate a meeting of 13 sarcoma specialists to talk about specifically about EHE.

There was detailed discussion about current research and lack of treatment protocols. The Patient Registry at Patient Crossroads is seen as a vitally important source of information and data.

Dr. Rubin, of Cleveland Clinic, and the primary researcher for EHE suggested we arrange a full-day EHE conference some time in the next year.

For Jane’s full summary of the meeting, click here.

Filed Under: Latest Research

A Night out for EHE Research and Team Laney

August 4, 2015 by The EHE Foundation

Delaney Thank YouOn Sunday, July 12, 2015, Ernie’s Irish Pub in Escanaba, MI hosted a fundraiser to raise awareness and funds for EHE Research. It was a big success raising $6,705! It was great fun and the participation and support from the local community and businesses was overwhelming!

Filed Under: Fundraising & Events

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