I am Sandy Meaders from Laurel, Mississippi. My wife Barbara and I are retired from the general rental, hardware, paint business. We have four grown children and five grandchildren. We are also rescuees of a dog named Apple.
During the pre-op for knee replacement, a tumor was detected in my chest. It was removed via a thoracotomy in December of 2018 and I was diagnosed with EHE in January of 2019. Because the tumor was encasing my vena cava, ten percent of it could not be removed. Since then, I have had regular scans and tests done at MD Anderson. Dr. Ravi has recommended a “watch and see” approach and I have not had any treatments to date. Like most others, I had never heard of EHE. This began an educational journey.
The EHE Foundation and its supportive community have been invaluable to my learning curve. EHE is challenging because it is extremely rare and therefore there is lack of data. This underscores the value of The EHE Foundation. The foundation funds EHE research, which is the best chance of finding a cure, providing effective treatments and giving hope to those who have been diagnosed. Again, The EHE Foundation has been a wonderful source of information. I was given an added level of hope when I found out about this special group. It has given me a sense of empowerment, inclusion and strength that I really needed.