• Skip to main content

TISSUE DONATION IS CRITICAL TO FIND TREATMENTS! Click here to learn more.

Search
EHE Foundation Logo
  • Patient Services
    • What is EHE?
    • EHE Management
    • Newly Diagnosed
    • Provider Directory
    • Tissue Donation
    • Additional Resources
    • Contact Patient Services
    • Join our Community
  • Research
    • Research Projects & Initiatives
    • EHE Biobank
    • Patient Registry
    • Clinical Trials
    • Research Grants Program
    • EHE Library
    • Conferences & Events
      • 2021 EHE 360
      • 2022 EHE 360
  • Get Involved
    • Community Connections
    • Donate Now!
    • Circle of Friends
    • Fundraising & Events
    • 6th Annual EHE Fun Run and Walk
    • PAL Program
  • About Us
    • Our Story & Mission
    • Board of Directors
    • Meet Our Team
    • Advisory Board
    • Foundation Partners
    • Financial Information
    • Blog & News
    • Media/Press Releases
    • Just Live
  • Contact
×
  • Patient Services
    • What is EHE?
    • EHE Management
    • Newly Diagnosed
    • Provider Directory
    • Tissue Donation
    • Additional Resources
    • Contact Patient Services
    • Join our Community
  • Research
    • Research Projects & Initiatives
    • EHE Biobank
    • Patient Registry
    • Clinical Trials
    • Research Grants Program
    • EHE Library
    • Conferences & Events
      • 2021 EHE 360
      • 2022 EHE 360
  • Get Involved
    • Community Connections
    • Donate Now!
    • Circle of Friends
    • Fundraising & Events
    • 6th Annual EHE Fun Run and Walk
    • PAL Program
  • About Us
    • Our Story & Mission
    • Board of Directors
    • Meet Our Team
    • Advisory Board
    • Foundation Partners
    • Financial Information
    • Blog & News
    • Media/Press Releases
    • Just Live
  • Contact
DONATE NOW
EHE Foundation Logo
Search
  • Patient Services
    • What is EHE?
    • EHE Management
    • Newly Diagnosed
    • Provider Directory
    • Tissue Donation
    • Additional Resources
    • Contact Patient Services
    • Join our Community
  • Research
    • Research Projects & Initiatives
    • EHE Biobank
    • Patient Registry
    • Clinical Trials
    • Research Grants Program
    • EHE Library
    • Conferences & Events
      • 2021 EHE 360
      • 2022 EHE 360
  • Get Involved
    • Community Connections
    • Donate Now!
    • Circle of Friends
    • Fundraising & Events
    • 6th Annual EHE Fun Run and Walk
    • PAL Program
  • About Us
    • Our Story & Mission
    • Board of Directors
    • Meet Our Team
    • Advisory Board
    • Foundation Partners
    • Financial Information
    • Blog & News
    • Media/Press Releases
    • Just Live
  • Contact
DONATE NOW

Archives for October 2016

Poker Tournament in Memory of Brian Frank Raises $11,000

October 31, 2016 by The EHE Foundation

EHE poker tournamentEarlier this month, Angela Osborn, along with numerous family and friends, gathered for a night of poker in Washington in order to honor her late brother Brian Frank. Along with the poker tournament, a silent auction was held, T-shirts and sweatshirts featuring Brian’s initials and birthdate were sold, and at the end of the evening, a staggering $11,000 had been raised to fight EHE!

“People absolutely love to come out and support a cause that they KNOW their money is going directly to research,” Osborn said. “We lost our Brian, but we all hope to save someone else from losing a loved one from EHE.”

Brian passed in September of 2014 at the young age of 28, but Angela’s family continues his fight. This was the second poker tournament in Brian’s honor. In 2015, the event raised $7,000!

From the entire EHE community, we thank the Osborn and Frank families for their ongoing support of EHE research!

Brian Frank EHE rare cancer
The poker tournament in memory of Brian Frank raised $11,000!
Brian Frank poker initials
Shirts featuring Brian’s initials and birthdate sold quickly!

Filed Under: Fundraising & Events

Smoothie King Raises Money in Memory of Mandy O’Connor

October 30, 2016 by The EHE Foundation

Smoothie King EHE cancer Mandy O'Connor
Smoothie King in York, PA, raised money in memory of Mandy O’Connor on what would have been her 33rd birthday.

Smoothie King in York, Pennsylvania, held its second fundraiser in memory of Mandy O’Connor on October 13. Sean and Nicky Krebs, Smoothie King franchisees and close friends of Mandy and Devin’s, once again donated 50 percent of their sales on what would have been Mandy’s 33rd birthday. Mandy died due to EHE on April 5, 2015.

Customers poured into the Smoothie King located at at 2609 E Market St in York throughout the day. When the Krebs’ closed their doors, $715.63 had been raised for EHE research.

The Krebs’ support is one of many ways Mandy’s family and friends are continuing to keep her fight alive. Along with Smoothie King and the annual York EHE Foundation Golf Tournament, upwards of $39,000 has been raised in memory of Mandy.

To Smoothie King, the Krebs, and everyone who enjoyed a delicious and nutritious smoothie, THANK YOU.

Filed Under: Fundraising & Events

The Hershey Company Donates to EHE Research

October 30, 2016 by The EHE Foundation

hershey-logo-hed-2014The Hershey Company has made a generous donation to The EHE Foundation. The world-famous confections company in Pennsylvania gave $500 to support ongoing research efforts into the rare cancer.

The Foundation would like to thank Hershey employee Serena Wang for the support. Serena was a personal friend of Mandy O’Connor, who died from EHE in 2015.

Filed Under: Fundraising & Events

Stay up to Date on EHE by Reading The Pledge: Sixth Edition

October 30, 2016 by The EHE Foundation

EHE is no longer some unknown rare cancer! The grassroots movement to raise awareness and help fund EHE research is now a worldwide effort! Thanks to Hugh Leonard, director of The EHE Rare Cancer Charity UK, for assembling EHE stories for the sixth edition of The Pledge.

Download The Pledge here.

Filed Under: The Pledge Newsletter

Additional Resources

Latest Events, News & Research

The Pledge Newsletter

Terms of Use / Privacy Policy

Affiliations

Nord 2022 Platinum Member
SARC Logo
http://fightehe.org/wp-content/uploads/2020/02/cropped-RareAsOne_SocialMediaProfileImage-1.png
MyPart Logo

Stay Informed

Get email alerts about the latest treatments, research advances, and opportunities to get involved.

SIGN UP TODAY!

Connect with Us

1-877-460-4240 (toll-free US)

1561 Hopi Court
Hobart, WI 54313

[email protected]

© 2022 The EHE Foundation. All Rights Reserved.