Latest EHE News, Events and Research

Jenni Kovach

Jenni Kovach

November 25, 2018

“Hi, my name is Jenni and I live in Columbus, Ohio. I am the mother of a wonderful, nine year old daughter and happily married to my spouse of 18 years. I enjoy camping, hiking, playing board games, and watching Ohio State Buckeyes football. I was diagnosed with EHE on December 29, 2018 after a […]

Read More
Zebrina Lauridsen

Zebrina Lauridsen

November 24, 2018

“My name is Zebrina Lauridsen. I am 24 years old, and I am the mother of a beautiful 2 year old little girl.  I was born and raised in the smack-dab in the middle of the US, Joplin, Missouri. I graduated from cosmetology school, and worked in a salon for a few years. Then I got […]

Read More
Fransheska Nazario

Fransheska Nazario

November 23, 2018

“My name is Fransheska Nazario, I’m 25 years old and I am from Bolingbrook Illinois. I have a daughter that is four years old and her name is Penelope and we have a pet rabbit named Clover. Spending time with my family is what keeps me going every day. I enjoy arts and crafts, cooking, […]

Read More
Kathy Field

Kathy Field

November 23, 2018

“Hello, my name is Kathy, and I live near Kalamazoo, Michigan. I have taught migrant and bilingual students for more than 35 years. My EHE was discovered in the spring of 2018, in both lungs. I cried at first, scared and not sure what to expect, but I decided to be as emotionally strong as I […]

Read More
John Lamb

John Lamb

November 22, 2018

“My name is John Wesley Lamb. I am 50 years old from rural South Arkansas. I say I am just an ordinary guy. I am married to my wonderful wife, Angelia, and have three children, Juliann (Married to Logan), Caleb (engaged to Rachael) & Joshua. We have two grandchildren, Elizabeth & Layton.  I love being […]

Read More
Fight EHE Giving Tuesday Graphic

Day of Giving – Tuesday, November 27, 2018

November 21, 2018

#GivingTuesday is a global movement to celebrate and encourage giving after Thanksgiving, Black Friday, and Cyber Monday. We are thrilled to announce that donations to The EHE Foundation will be DOUBLED on #GivingTuesday (Tues, Nov 27th) by our generous supporters. This is your chance to double your impact in helping those affected by this extremely rare cancer […]

Read More
Keren Stern

Keren Stern

November 21, 2018

“I, Keren Stern, am a wife and mother of two and I owe my life to The EHE Foundation. I live in Las Vegas, Nevada. I enjoy spending time with my family, traveling, and socializing with our friends in the autism community. Raising a child on the autism spectrum requires me to work from home, […]

Read More
Hannah Kiner

Hannah Kiner

November 20, 2018

“My name is Hannah Kiner. I live in Harrisburg, PA and I am a mommy to a 2 year old little boy. I like doing arts & crafts, dancing, traveling, outdoor adventuring, and spending time with my family. I am a member of the Westshoremen Senior Color Guard, am an Advocate for Mental Health Awareness, […]

Read More

Stay up to Date on EHE by Reading The Pledge: 14th Edition

October 11, 2018

Click here to read the Pledge, 14th Edition

Read More

3rd Annual EHE Virtual 5K Run/Walk

September 10, 2018

The EHE Foundation hosts an annual run/walk for all ages and abilities in April, which is EHE awareness month. This event is “virtual”, which means it can be done anywhere the participant is located.  Participants are asked to complete the 5K during the last week of April.  Registration includes a t-shirt, race bib, bracelet, and […]

Read More