Latest EHE News, Events & Research
In March, EHE Foundation was represented at two important meetings in Europe focused on sarcoma, rare cancers, and EHE research. These gatherings were invaluable opportunities to connect with clinicians, researchers, and fellow advocates working to improve care, deepen understanding, and advance progress for people affected by EHE. Executive Director Denise Robinson attended on behalf of […]
Following the publication of results from a phase 2 study of eribulin in two vascular sarcomas, angiosarcoma and EHE, Dr. Tom Chen of National Taiwan University College of Medicine shared commentary in Clinical Cancer Research. He praised the investigators for their collaborative study while also pointing to important considerations for future research. Although angiosarcoma and […]
Vanessa’s Story: Finding Answers After Years of Pain Vanessa had been living with abdominal pain and cramping since she was about 13 years old. Again and again, it was dismissed as “just part of being a woman.” But over time, the pain became harder to ignore and eventually unbearable. “I constantly felt like I was […]
The EHE Foundation is proud to announce $335,000 in funding through the 2026 EHE Foundation Research Grants Program to support two innovative research projects in epithelioid hemangioendothelioma (EHE). Selected for their scientific merit, potential impact, and clinical relevance, these projects address two important priorities in EHE research: biomarker development and new therapeutic approaches. Together, they […]
BreAnn’s Story: “Keep Fighting. Find Your Path, and Just Live.” BreAnn’s journey with epithelioid hemangioendothelioma (EHE) began with a moment that seemed almost ordinary at first — lifting her 1-year-old daughter out of her crib. “It all started with a broken back after lifting my then 1-year-old out of her crib,” BreAnn said. “I felt […]
Ashley’s Story: “Today Matters.” When Ashley discovered a mass in her own liver, her life changed in an instant. As a diagnostic medical sonographer, she was used to helping others navigate medical uncertainty. She never expected to face it herself. “I am a diagnostic medical sonographer, and I found a mass in my own liver,” […]
Publication of The Pledge quarterly newsletter is led by the EHE Rare Cancer Charity (UK). EHE patient advocacy groups from around the globe provide content, including research news, patient and fundraising stories, and much more. Click here to view the most recent edition of the online EHE newsletter, The Pledge.
The European Organisation of Research and Treatment of Cancer (EORTC) is conducting research to better understand health-related quality of life (HRQoL) concerns among people living with rare cancers. Recently, researchers analyzed results from a group of 31 people with EHE from 11 different countries who participated in the study. The findings showed that pain–and the […]
Prior research has shown that a class of medications called microtubule inhibitors may be effective at controlling the growth of EHE tumors. Recently, researchers conducted a phase 2 study to test whether the microtubule inhibitor eribulin is a safe and effective way to treat patients whose tumors continued to grow after prior treatment. Six (6) […]
EHE Foundation is pleased to announce the appointment of two distinguished physician-scientists to its Scientific & Medical Advisory Board: Nam Quoc Bui, MD, and Benjamin A. Nacev, MD, PhD. Their expertise in sarcoma medical oncology and translational research will greatly strengthen the Foundation’s advisory capacity as we work to accelerate progress in understanding and treating […]