Latest EHE News, Events & Research

Tonja Pektas

April 28, 2022

What do you want others to know about EHE? “The mental battle with EHE is monumental! The watching and waiting and the not knowing what it’s going to do in my body! That new pain in my ribs….could it be EHE? That weird reaction I had to something…could that be caused by EHE? I have […]

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Rick Harrington

April 27, 2022

What do you want others to know about EHE? “I was completely shocked when I received my “stage 4 lung cancer” diagnosis. I only had a slight cough–how could that be? But then the doctors were not sure what kind of cancer it was, so they started to perform different biopsies. It took several weeks […]

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Michelle Hughes

April 22, 2022

What do you want others to know about EHE? “Being diagnosed with EHE mere weeks after the birth of my third child was shocking and soul crushing. My head filled with so many negative thoughts after hearing “stage 4,” “metastatic” and “incurable.” I’m a 35 year old, healthy female…or so I thought. I read a […]

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Martha Iglesias

April 18, 2022

What do you want others to know about EHE? For me EHE is learning to live with the uncertainty, pain, and chronic fatigue. In the same day you can feel really well and then suddenly feel really bad. Although you may feel perfectly fine, the pain can hit you like a hammer. It’s also lonely […]

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Katherine Czyzewski

Katherine Czyzewski

April 15, 2022

What do you wish others knew about EHE “I wish people knew that even though it is rare, there are humans behind this diagnosis. Though I personally am not exhibiting symptoms at this time, scanxiety is something that is a constant cloud over our family. The unpredictable nature of EHE is difficult and different for […]

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Melissa McPherson

Melissa McPherson

April 11, 2022

What do you want others to know about EHE? “I want people to know that EHE can be very frustrating. I say this because EHE is so different for each of us. What works for one person, may not work for the next. It also can cause lots of anxiety for us as we wait […]

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Ikena Oncology Logo

Planned Ikena Oncology Clinical Trial to Include EHE Patients

January 31, 2022

The planned Phase 1 clinical trial includes patients with tumor types with a high frequency of Hippo pathway alterations, including NF2-deficient malignant mesothelioma and some soft tissue sarcomas with YAP/TAZ genetic fusions, including Epithelioid Hemangioendothelioma (EHE), a rare form of soft tissue sarcoma that has a significant unmet medical need with no currently approved therapy […]

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The Pledge: Edition 27, Q4 – Oct-Dec, 2021

The Pledge: Edition 27, Q4 – Oct-Dec, 2021

January 25, 2022

Together, the US, UK, and Australia EHE foundations team up to strengthen the force against EHE. This group provides a quarterly update, which is led by the UK and includes research news, patient and fundraising stories, and much more! Click here to view the most recent edition of our online EHE newsletter, The Pledge.

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DONATIONS DOUBLED TODAY

Stronger Together on Giving Tuesday, November 30th

November 27, 2021

As the season of giving and gratefulness is upon us, we want to thank you for being a part of The EHE Foundation family.  We appreciate you following our progress and investing in our passion: discovering effective treatments and a cure for EHE. We are thankful for our supporters, partners, and volunteers who make our […]

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2021 EHE Fun Run & Walk

2021 EHE Fun Run & Walk a Huge Success!

November 2, 2021

Thank you to our wonderful participants, supporters, and sponsors for making our 2021 EHE Fun Run and Walk a tremendous success! Together, more than 900 supporters across the nation helped raise more than $45,000. Thanks to the backing of our sponsors, every penny brought in for this event will go directly to EHE research. This […]

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