Latest EHE News, Events and Research

Harrison Pluta

Harrison Pluta

December 3, 2019

I am Missy and I lost my son, Harrison, to EHE. Harrison grew up in Portage, Michigan. He was a good student and young man of faith, who enjoyed being around friends and family. He participated in cross country and track in high school and continued his love of running until his cancer diagnosis. His […]

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Sarah Bright

Sarah Bright

December 3, 2019

Greetings fellow EHE warriors, caregivers, and supporters! My name is Sarah Bright and I live in Williamsburg, Virginia with my husband and two young kids. I am an entrepreneur that combined a background in the musical arts with management of not for profit organizations. In 2008, I started my company, The Bright Solutions, partnering with […]

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Amanda Holland

Amanda Holland

December 2, 2019

I’m Amanda Holland and I live in Anchorage, Alaska. My husband Logan and I have been married since 2011. When we were married I was blessed to become a mom to his son, Logan M. (18 years old), and we have two beautiful little girls: Madilyn (5) and Hope (6 months). I’m also a dog […]

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Melissa McPherson

Melissa McPherson

November 30, 2019

I’m Melissa McPherson from Springtown, Texas. I have been married to my husband, Scott, for 29 years and we have two children. Jessica is 25 and Logan, 22, is a senior at The University of Texas at Dallas. I am a high school counselor and cheer coach at Azle High School. I was diagnosed with […]

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Michael Proctor

Michael Proctor

November 27, 2019

I am Michael Proctor of Fayetteville, NC. I am a former Army Medic that was diagnosed with EHE while serving on active duty in Afghanistan. I have an 8 year old daughter, who is the light of my life. I also enjoy fishing.In early 2010, I was deployed to Afghanistan with Chosen Company of 2nd […]

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EHE Teleconference

EHE Research Update Teleconference – Nov 2nd

October 29, 2019

Please join us for our annual “EHE Research Update” teleconference on Saturday, November 2, 2019 from 4:00 pm to 5:30 pm Eastern Standard Time (US). Jane Gutkovich, The EHE Foundation’s Director of Research, will be going over these main topics: What is EHE? Or rather EHEs? Why we all are so different? What have we […]

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International Sarcoma Kindred Study

International Sarcoma Kindred Study (ISKS)

October 11, 2019

What is ISKS? ISKS is . afree to participate global genetic, biological, epidemiological, clinical resource developed to understand the genetic basis of sarcoma in a population. ISKS has created a world first, one of a kind, database that is accessed by doctors, researchers and scientists across the globe. ISKS was developed by Australian EHE Medical […]

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The Pledge Q3 2019

Stay up to Date on EHE by Reading The Pledge: Edition 18, Q3 – July-Sept, 2019

October 5, 2019

Click here to read the Pledge: Edition 18, Q3 – July-Sept, 2019

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EHE Foundation Medical Advisory Board

EHE Foundation at ASCO 2019!

October 1, 2019

EHE Foundation joined over 30,000 cancer experts from around the world in Chicago, IL in early June to learn of the latest clinical cancer research impacting patient care. The theme of this year’s conference is Caring for Every Patient, Learning From Every Patient. EHE Foundation board members and staff participated in the patient advocate track […]

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The Pledge Q2 2019

Stay up to Date on EHE by Reading The Pledge: Edition 17, Q2 – April-June, 2019

September 13, 2019

Click here to read the Pledge: Edition 17, Q2 – April-June, 2019

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