Archives for September 2022

Kim Young is running the Maine Marathon on Oct 2nd!

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Kim was diagnosed with EHE in March 2021, and this is the second time she is running the Maine Marathon in support of The EHE Foundation. She is a champion for creating awareness for EHE, and we are grateful for her support.

Would you like to be a part of this amazing event? You can donate to Kim’s team or join her team and participate in the these events:
· 5K
· 10K
· Half Marathon
· Full Marathon
· Marathon Relay

Donate or sign up for an event at https://runsignup.com/fight-ehe
All donations to Kim’s team will benefit The EHE Foundation.

ESMO 2022 Congress

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EHE champions were on the global stage on September 9th, at the ESMO2022 Congress in Paris, France. ESMO, the European Society of Medical Oncology, is a leading professional organization for medical oncology education and information. Dr. Silvia Stacchiotti, a leading EHE clinical expert (Italy), and Hugh Leonard, Chair of Trustees of the EHE Rare Cancer Charity (UK), spoke in a session entitled Ultra-rare sarcoma: Navigating an endless sea. Dr. Stacchiotti discussed the drugs and research needed to better treat ultra-rare sarcomas, and Hugh eloquently presented the importance of collaboration and partnership among patients, advocates, researchers, doctors, government, and pharma in the effort to find effective treatments for EHE as an ultra-rare cancer.

Denise Robinson, Director of Research for the EHE Foundation, and Jane Gutkovich both attended ESMO virtually. Denise commented, “Hugh has placed EHE patients and advocates on one of the world’s largest oncology stages and clearly points out that collaboration with patients, and EHE research facilitated by patients is essential to finding treatments and cures for EHE.”