Katherine Czyzewski

What do you wish others knew about EHE

“I wish people knew that even though it is rare, there are humans behind this diagnosis. Though I personally am not exhibiting symptoms at this time, scanxiety is something that is a constant cloud over our family. The unpredictable nature of EHE is difficult and different for all so raising awareness is key!”

~ Katherine Czyzewski
Katherine Czyzewski
Posted in