Archives for November 2021

Stronger Together on Giving Tuesday, November 30th

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As the season of giving and gratefulness is upon us, we want to thank you for being a part of The EHE Foundation family.  We appreciate you following our progress and investing in our passion: discovering effective treatments and a cure for EHE. We are thankful for our supporters, partners, and volunteers who make our continued progress possible. 

#GivingTuesday (Tues, Nov 30, 2021) is a global movement to celebrate and encourage giving after Thanksgiving, Black Friday, and Cyber Monday.  We are thrilled to announce that all donations will be DOUBLED up to $64,000 with personal donations by our very own Board of Directors. Your donation may also be TRIPLED by Facebook matching, starting promptly at 8am (Eastern Time) on Nov 30th. There’s even a chance your donation will be QUADRUPLED if your employer matches your donation.

This is your chance to multiply your impact in helping those affected by this extremely rare cancer by:

  • Donating through our Facebook Page (fee free). Matching applies to donations to any fundraiser or donate button on our Facebook page. Anyone is welcome to create their own fundraiser here.
  • Donating online on our website here. You may use a credit card, direct deposit (ACH), or PayPal.
  • Mailing a check payable to The EHE Foundation, 1561 Hopi Ct, Hobart, WI 54313.

You can trust that your contribution will go a long way in continuing our forward momentum in research for EHE.  This year alone we have worked directly with Margie and Robert E. Petersen Foundation who have now gifted a total of $4 million to fight EHE. This substantial funding will help continue Dr. Rubin’s valuable EHE research at the Cleveland Clinic and allow us to push forward towards our mission.  Explore the current funded research projects and initiatives here.

More About Matching

#GivingTuesay is a powerful day for giving and we are #StrongerTogether. Donations will be doubled and in some cases tripled and quadrupled!

The EHE Foundation Board of Directors
The EHE Foundation Board of Directors will personally match up to $64,000 of your donations made online, through Facebook, or mailed. This will DOUBLE your donation!

Facebook
Facebook will match up to $8 million of donations made via Facebook on #GivingTuesday. For the first $2 million, they will match 100% of donations made to The EHE Foundation.  This money goes very fast and starts promptly at 8am ET. For the remaining $6 million, Facebook will match 10% of donations made to The EHE Foundation. Matching caps are $100,000 per nonprofit and $20,000 per donor. Donors will be notified by Facebook in early 2022 if their donation was matched. This may TRIPLE your donation!

Employer Matching
After an employee or retiree makes a donation to an eligible nonprofit, such as The EHE Foundation, they fill out a matching gift submission request and submit it to their company’s HR department. Each company’s process varies. If the donation and our nonprofit meet the company’s guidelines, the company cuts a check to The EHE Foundation for the same amount as the employee’s donation (and sometimes even two, three, or four times that amount). This may QUADRUPLE your donation!

We know you have many options when it comes to giving, but we hope you will support those affected by EHE. If you would like more information or if you need assistance, please email us at [email protected] or call us at 1-877-460-4240 (toll-free in the US).

2021 EHE Fun Run & Walk a Huge Success!

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Thank you to our wonderful participants, supporters, and sponsors for making our 2021 EHE Fun Run and Walk a tremendous success! Together, more than 900 supporters across the nation helped raise more than $45,000. Thanks to the backing of our sponsors, every penny brought in for this event will go directly to EHE research.

This event does much more than create awareness and funding for EHE research. Each team represents an EHE patient with a very unique story.  The EHE Fun Run and Walk allows teams of families, friends, and other supporters to rally together and show their unwavering support for their loved one and other EHE patients.

“Year after year, we are amazed at the passion, drive, and dedication of our many supporters who help make the annual EHE Fun Run and Walk an extraordinary success,” said Julie Wahl, Vice President of The EHE Foundation, “For many families, it’s a time to reflect on the wonderful support system that surrounds us and come together in a positive and grateful atmosphere.”

“We had a huge outpouring of support for Team Joe and we thrive on their love, energy, and commitment to not only our family, but for EHE patients across the nation,” said Jennifer Mulligan of Team Joe supporters.  Team Joe was the top team for 2021.

Teams came together in a nationwide rally to fight against EHE and we’re excited to share many of their photos on our below. As a patient-led foundation, we understand the challenges of EHE, but we take comfort in knowing we are here to support each other and we are stronger together.

We are blown away by the effort of every individual and team. A huge applause for our top teams: Team Joe, Team Laney, #EthanStrong, Team Kristen Leigh, #JonathansWolfPack, Rick’s Incredible Cancer Killers, Team Matt, #teamjenni, Love for Lisa, Tiff’s Tribe, and Team John.