Month: May 2021

The Pledge: Edition 24, Q1 - Jan-Mar 2021

The Pledge: Edition 24, Q1 – Jan-Mar, 2021

By The EHE Foundation / May 24, 2021 / Comments Off on The Pledge: Edition 24, Q1 – Jan-Mar, 2021

Together, the US, UK, and Australia EHE foundations team up to strengthen the force against EHE. This group provides a quarterly update, which is led by the UK and includes research news, patient and fundraising stories, and much more! Click here to view the most recent edition of our online EHE newsletter, The Pledge.

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Patty Cogswell

The Importance of Biobanking

By The EHE Foundation / May 17, 2021 / Comments Off on The Importance of Biobanking

Biobanking is a brand-new endeavor for us at The EHE Foundation. Researchers retain frozen and stored tissue and biological samples from surgeries, which usually remains within the institution where the procedure takes place. Today, biobanking is a game-changer for rare disease and patient-led organizations like ours. Biobanks accelerate research by safe-guarding high-quality, donated tissue samples […]

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