• Skip to main content

TISSUE DONATION IS CRITICAL TO FIND TREATMENTS! Click here to learn more.

Search
EHE Foundation Logo
  • Patient Services
    • What is EHE?
    • EHE Management
    • Newly Diagnosed
    • Provider Directory
    • Tissue Donation
    • Additional Resources
    • Contact Patient Services
    • Join our Community
  • Research
    • Research Projects & Initiatives
    • EHE Biobank
    • Patient Registry
    • Clinical Trials
    • Research Grants Program
    • EHE Library
    • Conferences & Events
      • 2021 EHE 360
      • 2022 EHE 360
  • Get Involved
    • Community Connections
    • Donate Now!
    • Circle of Friends
    • Fundraising & Events
    • 6th Annual EHE Fun Run and Walk
    • PAL Program
  • About Us
    • Our Story & Mission
    • Board of Directors
    • Meet Our Team
    • Advisory Board
    • Foundation Partners
    • Financial Information
    • Blog & News
    • Media/Press Releases
    • Just Live
  • Contact
×
  • Patient Services
    • What is EHE?
    • EHE Management
    • Newly Diagnosed
    • Provider Directory
    • Tissue Donation
    • Additional Resources
    • Contact Patient Services
    • Join our Community
  • Research
    • Research Projects & Initiatives
    • EHE Biobank
    • Patient Registry
    • Clinical Trials
    • Research Grants Program
    • EHE Library
    • Conferences & Events
      • 2021 EHE 360
      • 2022 EHE 360
  • Get Involved
    • Community Connections
    • Donate Now!
    • Circle of Friends
    • Fundraising & Events
    • 6th Annual EHE Fun Run and Walk
    • PAL Program
  • About Us
    • Our Story & Mission
    • Board of Directors
    • Meet Our Team
    • Advisory Board
    • Foundation Partners
    • Financial Information
    • Blog & News
    • Media/Press Releases
    • Just Live
  • Contact
DONATE NOW
EHE Foundation Logo
Search
  • Patient Services
    • What is EHE?
    • EHE Management
    • Newly Diagnosed
    • Provider Directory
    • Tissue Donation
    • Additional Resources
    • Contact Patient Services
    • Join our Community
  • Research
    • Research Projects & Initiatives
    • EHE Biobank
    • Patient Registry
    • Clinical Trials
    • Research Grants Program
    • EHE Library
    • Conferences & Events
      • 2021 EHE 360
      • 2022 EHE 360
  • Get Involved
    • Community Connections
    • Donate Now!
    • Circle of Friends
    • Fundraising & Events
    • 6th Annual EHE Fun Run and Walk
    • PAL Program
  • About Us
    • Our Story & Mission
    • Board of Directors
    • Meet Our Team
    • Advisory Board
    • Foundation Partners
    • Financial Information
    • Blog & News
    • Media/Press Releases
    • Just Live
  • Contact
DONATE NOW

Archives for August 2018

Birthday Fundraisers Hosted by Facebook

August 12, 2018 by The EHE Foundation

Supporters continue to celebrate their birthdays (and other special occasions) by creating a fundraiser on Facebook to support The EHE Foundation. Facebook allows supporters to easily create the event, share their story, invite friends, and track their progress toward their goal.  This convenient online tool has allowed many of our supporters to increase awareness while raising funds for our cause on a platform that is convenient and familiar to them.

Thanks to Diana Donohoo, Scott Herbert, Terry Neugeboren, Stephanie Badten, Cortney Walters, Robin Spielberger, Malcolm Barrah, David Kauffman, Tracey Kubica, Rachel Huver, Susie Harris Wood, Ed and Cindy Rivers, Ingrid Coddington, Connie Jones Skipper, Olivia Wahl, Katie Loehlein, Michaela Burrell, Jessica Kostelac, Patricia Ruth hoover, Delaney Wahl, Sarah Yaneza, Karen Workenaour, Heidi Tolton Chatterson, Mélisande Lieber Heckman, Jeanette Regelin Neese, Alison Hughes-Waters, Natasha Kilfoil, Missy Stewart Pluta, Stacey Stefan, Michael Beaupre, Julie Wahl, Ann Madigan Campbell, Jay Leonard Tyler, and Aaron Mathew Crumm for helping us raise over $28,000 through individual Facebook Fundraisers

Filed Under: Fundraising & Events

A Day of Fun Celebrating the Life of Brian Frank

August 10, 2018 by The EHE Foundation

Brian FrankBrian Frank passed away from EHE on September 2, 2014 at the age of 28. Brian had only been sick for about 6 months and was not properly diagnosed until he passed.  His family and friends, led by his mother, Darlene Frank, and his sister, Angela Osborn, organize an annual event in Brian’s memory, which consists of a golf tournament, poker tournament, raffle, and silent auction. They rally their entire community in Enumclaw, Washington to support The EHE Foundation’s mission in memory of Brian every year. This amazing group raised over $25,000 in the past three years to support The EHE Foundation’s mission.

Filed Under: Fundraising & Events

Additional Resources

Latest Events, News & Research

The Pledge Newsletter

Terms of Use / Privacy Policy

Affiliations

Nord 2022 Platinum Member
SARC Logo
http://fightehe.org/wp-content/uploads/2020/02/cropped-RareAsOne_SocialMediaProfileImage-1.png
MyPart Logo

Stay Informed

Get email alerts about the latest treatments, research advances, and opportunities to get involved.

SIGN UP TODAY!

Connect with Us

1-877-460-4240 (toll-free US)

1561 Hopi Court
Hobart, WI 54313

[email protected]

© 2022 The EHE Foundation. All Rights Reserved.