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Latest EHE News, Events & Research
Brianna Carney was only 23 when she passed on December 26, 2022. She was full of life and lived it to the fullest. She was passionate about those she loved, her dogs, rescuing other dogs, helping people, and being the best version of herself through hard work. She was a first-generation graduate of Nova Southeastern […]
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The EHE Foundation was founded by patients, for patients. Continuing that tradition, we aredelighted to announce that EHE patient John McFadden, Ph.D., CRNA, APRN, has joined ourBoard of Directors. With more than 35 years of experience in health care, Dr. McFadden has held positions as anurse executive, hospital and university program accreditation surveyor, faculty member, […]
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During the busy holiday season, The EHE Foundation asks that you join us in celebrating Giving Tuesday, not just on Tuesday, November 28th, but throughout the month of November. All proceeds will support our vision: a world where EHE is easily diagnosed and treatable. Retailers are bombarding us with Black Friday and Cyber Monday advertisements. Let […]
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The EHE Foundation is proud to have awarded the 2023 Fellowship Travel Grant to Nicholas (Nick) Scalora, a 5th year graduate research assistant in the Tanas Laboratory, at the University of Iowa, where the team studies the role of the Hippo pathway in sarcomas. Dr. Munir Tanas, expert pathologist and researcher, was first author of […]
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Last week EHE Foundation Director of Research Denise Robinson, attended the Connective Tissue Oncology Society (CTOS) 2023 annual meeting in Dublin, Ireland. Every year, physicians, scientists, and advocates from around the world come together to advance patient care and increase knowledge in connective tissue tumors. EHE is one of over 100 subtypes of sarcoma, which […]
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Makenna is 14 years old and was diagnosed with EHE in June 2022. Makenna shared about her EHE diagnosis, “It has changed my life by showing me that I should be grateful for the things I have in my life. Examples of those would be my family, my friends, just being able to take a […]
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“The most difficult part of being diagnosed with EHE and living with it is how much it has changed me and my family. I have been so sick, I have lost so much weight, I barely have any energy, and I experience pain every day. My EHE is only in my liver. My family and […]
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Who or what inspires you most to keep fighting for a cure, and why? “My family, friends and support system. As well as all other patients who have been diagnosed with EHE and all those around them. Since EHE is a different path for each patient, and we still don’t understand how it happens/what causes […]
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Colin was diagnosed in 2021 with this one-in-a-million cancer. “EHE has changed my life because it has limited some of the sports and activities I can do. Before my diagnosis I had a lot of abdominal pain that impacted the sports I love, but with treatment I am able to keep playing baseball and basketball […]
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“EHE has changed every aspect of my life, and surprisingly, a lot of them, for the good. You think of a cancer diagnosis affecting the physical body, which it does. But for me, the most challenging part has been in my mind. Coming to terms with this new unwanted adjective/label, cancer patient, has been surreal. […]
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