Latest EHE News, Events & Research

Brian Frank

A Day of Fun Celebrating the Life of Brian Frank

August 10, 2018

Brian Frank passed away from EHE on September 2, 2014 at the age of 28. Brian had only been sick for about 6 months and was not properly diagnosed until he passed.  His family and friends, led by his mother, Darlene Frank, and his sister, Angela Osborn, organize an annual event in Brian’s memory, which […]

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EHE cancer The Pledge

Stay up to Date on EHE by Reading The Pledge: 11th Edition

January 1, 2018

Click here to read the Pledge, 11th Edition

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Justin Herald

Softball Tournament in Memory of Justin Herald

June 4, 2017

Stephanie Herald and Courtney Walters, along with other family and friends of Justin Herald organized a memorial softball tournament in his memory in Hailey, Idaho on June 3-4 2017.   They had a spectacular event with outstanding community support, great weather, and a group of enthused players.  Justin was a full-time fireman and paramedic, a certified […]

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David Petrisko

Running 100 Miles for EHE

May 10, 2017

Jimmy Crook started the 100 mile challenge many years ago, while he was deployed to Afghanistan as a way to pass time and get people motivated through the tough holiday month of December. It has morphed into a nationwide group on Facebook (#Run4) that raises money for charity, encourages others on their fitness journey, and […]

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2nd Annual EHE VIrtual 5K Run/Walk

2nd Annual EHE Virtual 5K Run/Walk

February 19, 2017

Registration for this event is over, but if you are interested in purchasing EHE/Just Live merchandise, please contact us at [email protected] For up-to-date information about this event, visit our Facebook event page: https://www.facebook.com/events/236969163428782 . We encourage you to upload pictures wearing your race shirt. The pictures can be taken before, during, or after the 5K. Your […]

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Brian Frank

Poker Tournament in Memory of Brian Frank Raises $11,000

October 31, 2016

Earlier this month, Angela Osborn, along with numerous family and friends, gathered for a night of poker in Washington in order to honor her late brother Brian Frank. Along with the poker tournament, a silent auction was held, T-shirts and sweatshirts featuring Brian’s initials and birthdate were sold, and at the end of the evening, a staggering $11,000 […]

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Smoothie King EHE cancer Mandy O'Connor

Smoothie King Raises Money in Memory of Mandy O’Connor

October 30, 2016

Smoothie King in York, Pennsylvania, held its second fundraiser in memory of Mandy O’Connor on October 13. Sean and Nicky Krebs, Smoothie King franchisees and close friends of Mandy and Devin’s, once again donated 50 percent of their sales on what would have been Mandy’s 33rd birthday. Mandy died due to EHE on April 5, […]

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Hershey's EHE cancer

The Hershey Company Donates to EHE Research

October 30, 2016

The Hershey Company has made a generous donation to The EHE Foundation. The world-famous confections company in Pennsylvania gave $500 to support ongoing research efforts into the rare cancer. The Foundation would like to thank Hershey employee Serena Wang for the support. Serena was a personal friend of Mandy O’Connor, who died from EHE in […]

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EHE cancer The Pledge

Stay up to Date on EHE by Reading The Pledge: Sixth Edition

October 30, 2016

EHE is no longer some unknown rare cancer! The grassroots movement to raise awareness and help fund EHE research is now a worldwide effort! Thanks to Hugh Leonard, director of The EHE Rare Cancer Charity UK, for assembling EHE stories for the sixth edition of The Pledge. Download The Pledge here.

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The EHE Foundation Advisory Board

September 26, 2016

Meet the Men & Women Fighting EHE in the Lab

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