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Month: May 2026
Painting Angels: Christine Jaksy’s Art as Response and Resilience Christine Jaksy’s life has been marked by extraordinary resilience. A former athlete, she has endured a series of disabling and life-threatening conditions—lupus, paralysis of her right arm, and partial paralysis of her other limbs. Then, in December 2023, she received another diagnosis: epithelioid hemangioendothelioma (EHE), a […]
One in a Million: Robbie Garrovillas’ Journey of Diagnosis, Treatment, and Faith When Robbie Garrovillas received his EHE diagnosis in 2025 and endured nine grueling cycles of chemotherapy, he faced not just a medical crisis, but an existential one. How do you make sense of a rare cancer that refuses to fit into neat categories? […]
For a cancer as rare as EHE, connection is something we intentionally create. On Saturday, April 11, 2026, EHE Foundation and Dana-Farber Cancer Institute hosted an inaugural EHE Education Day, bringing together patients, loved ones, clinicians, researchers, and advocates for a day of learning, discussion, and in-person connection. With more than 25 people in attendance, […]
Lila’s Story: Finding Strength in the Unexpected Lila’s EHE story began in a way no one could have planned. Her aunt, an ultrasound technician, was casually scanning her one day when she noticed something unusual on Lila’s liver. What seemed like an offhand moment quickly became something much more serious. “She instantly found 1-2 spots […]