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Latest EHE News, Events & Research
In October of 2015, Justin Bryan endured a 10-day trek up 19,341 feet of elevation as he scaled the peak of Mount Kilimanjaro in Tanzania. Not too shabby for a man who was told 12 years earlier that he would need to have his leg amputated due to EHE. The year was 2003, and Bryan […]
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COME OUT & PLAY: TEXAS HOLD’EM FUND RAISER FOR EHE CANCER RESEARCH IN MEMORY OF OUR SO LOVED AND MISSED, ALWAYS IN OUR HEART ……BRIAN FRANK Saturday, August 29 at 12:30pm in PDT 20838 SE 240th St. Maple Valley WA 98038 EHE or Epithelioid Hemangioendothelioma is a extremely rare vascular cancer that only effects 100 people […]
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Mandy O’Connor, a York native, Penn State graduate, and THON participant, fought Epithelioid Hemangioendothelioma (EHE) for more than a decade. EHE is a rare and often deadly vascular sarcoma (cancer) that largely affects adolescents and young adults. Mandy served on planning committees for Relay For Life and volunteered as a Team Captain and routinely spoke […]
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Ava is an eight year old girl from Langhorne, PA, where Sesame Place is located. We are about 25 miles from Center City Philadelphia. Ava loves swimming and going to Sesame Place, since it is a water park. Ava loves drawing and takes an Art class on Saturday mornings. She also takes dance class (Hip-Hop) […]
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The American Society Clinical Oncologists (ASCO) met in Chicago in May of 2015, for their annual meeting. The theme, Illumination and Innovation: Transforming Data into Learning, aims to improve patient care across the globe through the application of shared knowledge. This is especially important when talking about rare sarcomas. Jane Gutkovich, Vice President of The EHE […]
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On Sunday, July 12, 2015, Ernie’s Irish Pub in Escanaba, MI hosted a fundraiser to raise awareness and funds for EHE Research. It was a big success raising $6,705! It was great fun and the participation and support from the local community and businesses was overwhelming!
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The York EHE Foundation hosted its 1st Annual Golf Outing to benefit the EHE Foundation and Cleveland Clinic on Friday, July 17, 2015. The event was a huge success raising over $17,000 for our cause! Mandy O’Connor Mandy Elizabeth O’Connor was born in Seoul, South Korea, but became the daughter of Paul and Virginia […]
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Any golfers in the York, Pennsylvania area? Devin O’Connor is hosting a golf tournament to benefit EHE Research this summer. If you don’t golf, come out and enjoy a BBQ dinner, silent auction, and other raffles. Delaney and I are going and we would love to fill a table or two with our EHE family […]
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On April 22, 2014, Delaney was diagnosed with an extremely rare form of cancer called Epithelioid Hemangioendothelioma, also known as EHE. This form of cancer has absolutely zero funding or attention from outside sources because so few people are affected by it. Every penny of research has been funded by EHE patients, families, and friends. […]
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Georgiana has a very special place in the hearts of the people who knew her. She had an aggressive type of EHE that at the time of diagnosis already spread to many sites of her body. She underwent very tough treatments, harsh chemo, radiation, surgery, but was one of the most positive enthusiastic members of […]
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