What do you want others to know about EHE?
“EHE changed how I see life. I received the diagnosis of EHE one year ago, lung removed and a heart bypass. It was gone! But then it returned this Christmas on my trachea. I am now on medication and hoping that the next scan will be stable. It is difficult, and I have had many ‘why me’ moments, but it has also changed me. I now appreciate every day, people and every opportunity even more. I am trying to not let it consume and define me. I truly live by the motto ‘Just live’.The picture is me in a t-shirt I had made for the Garth Brooks concert I am going to this month. The song ‘The Dance’ is about living life.”
~ Linda Beaulieu