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Latest EHE News, Events and Research
Retrospective study from Charité–Universitätsmedizin Berlin, Germany
A new retrospective study from Charité–Universitätsmedizin Berlin describes 41 people with EHE treated at the center between 1997 and 2022, offering a single-center picture of EHE presentation and outcomes. It was published in the Journal of Cancer Research and Clinical Oncology in July 2026. In this report, women made up the majority of cases (61%), […]
Be the Key – How one in a million can unlock progress!
Join Denise Robinson, Executive Director, and Kristi Oristian, Director of Research, for an interactive community conversation about why individual patient experiences are a critical need and an important component in unlocking progress for everyone affected by EHE. If you have EHE, you are one in a million, and you hold a key that can lead […]
EHE Foundation Welcomes Two New Board Members
We are pleased to welcome two new members to our Board of Directors: Amy Gilmore, CPA, and Dinesh Bande, MBBS, MD, MBA, FACP. Both bring extensive experience, leadership, and passion to our mission. As the leading global non-profit dedicated to finding effective treatments and a cure for EHE, we are grateful that they are lending […]
EHE Community Celebrates Sarcoma Awareness Month
Building awareness. Finding community. Many thanks to everyone who joined in for Sarcoma Awareness Month this July! By sharing photos and content, you helped raise awareness of sarcomas, like EHE. Wear Yellow Wednesday, EHE T-Shirt Tuesday, and Sunflower Sunday were just a few of the ways our community showed up and spread the word about […]
ADCs–Unlocking Future Treatment Advances for EHE
Why this matters for people with EHE For people living with EHE, finding an effective treatment and understanding who best benefits from treatments is one of the greatest challenges of this disease. Traditional chemotherapy is often ineffective for EHE, and the search for more effective treatment options is central to our mission at the EHE […]
A Powerful Community Gathering at the 2026 EHE 360 Global Conference
The EHE Foundation hosted the sixth annual virtual convening of the EHE 360 Global Conference on April 31 – May 1, 2026. The conference brought together patients, caregivers, clinicians, researchers, regulators, and industry partners from around the world to promote education, broaden research collaborations, and advance therapeutic development for epithelioid hemangioendothelioma (EHE), an ultra-rare sarcoma. […]
EHE Stabilization with Sirolimus: Results From POEM, a Prospective Multicentric Observational Study
Drs. Claudia Giani, Anna Maria Frezza, Silvia Stacchiotti, and colleagues from the Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy, and Royal Marsden Hospital, London, UK, presented results from POEM: a prospective observational study on Epithelioid Haemangioendothelioma at ESMO Congress 2025. The data presented included 57 consecutive molecularly confirmed EHE patients who entered the study, […]
Hanna Lab at Purdue University: ‘When cells in the body stop following the rules, cancer can take hold.’
You met Jason Hanna, PhD, at the 2025 EHE Global Patient Conference, where he highlighted work his lab is undertaking in EHE. We are thrilled to share a recent publication in Molecular Oncology from the Hanna Lab at Purdue University, highlighting their findings from a study focused on the YAP1-TFE3 subtype of EHE. The YAP1-TFE3 […]
Exciting Progress in EHE Research – Powered by Patients
We are thrilled to share a new publication, “EHE cell cultures are a platform for mechanistic and therapeutic investigation,” made possible by a partnership between the University of Iowa and the EHE Foundation. Under the leadership of Dr. Munir Tanas, Nicholas Scalora, PhD, and colleagues in the Tanas Lab sought to develop long-term EHE cell […]