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Epithelioid Hemangioendothelioma

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Our Mission

To find treatments and a cure for Epithelioid Hemangioendothelioma (EHE) by advancing research and driving collaboration between patients, researchers, and clinicians.

Our Vision

We envision a world where Epithelioid Hemangioendothelioma (EHE) is easily diagnosed and treatable.

Patient Services

Whether you are newly diagnosed or have been living with EHE for a while, you are not alone. The EHE Community is stronger together and includes patients, their families and friends and the many specialists working tirelessly to find treatments and a cure. 

Research

Our efforts seek to support and fund the most promising basic, translational and clinical research in order to expand our understanding of EHE and accelerate the development treatments. 

2022 EHE 360 International Conference

EHE 360 was held on January 28th (Scientific Symposium) and January 29th (Global Patient Conference). Thank you to our presenters, attendees and sponsors for a successful event!

Visit 2022 EHE 360 to learn more and view all recorded sessions. 

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Latest EHE News, Events and Research

The Pledge: Edition 26, Q3 – July-Sept, 2021

The Pledge: Edition 26, Q3 – July-Sept, 2021

By The EHE Foundation | September 30, 2021

Together, the US, UK, and Australia EHE foundations team up to strengthen the force against EHE. This group provides a quarterly update, which is led by the UK and includes research news, patient and fundraising stories, and much more! Click here to read this edition of our online EHE newsletter, The Pledge.

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The Pledge Q2 2021

The Pledge: Edition 25, Q2 – April-June, 2021

By The EHE Foundation | August 16, 2021

Together, the US, UK, and Australia EHE foundations team up to strengthen the force against EHE. This group provides a quarterly update, which is led by the UK and includes research news, patient and fundraising stories, and much more! Click here to view the most recent edition of our online EHE newsletter, The Pledge.

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The Pledge: Edition 24, Q1 - Jan-Mar 2021

The Pledge: Edition 24, Q1 – Jan-Mar, 2021

By The EHE Foundation | May 24, 2021

Together, the US, UK, and Australia EHE foundations team up to strengthen the force against EHE. This group provides a quarterly update, which is led by the UK and includes research news, patient and fundraising stories, and much more! Click here to view the most recent edition of our online EHE newsletter, The Pledge.

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Patty Cogswell

The Importance of Biobanking

By The EHE Foundation | May 17, 2021

Biobanking is a brand-new endeavor for us at The EHE Foundation. Researchers retain frozen and stored tissue and biological samples from surgeries, which usually remains within the institution where the procedure takes place. Today, biobanking is a game-changer for rare disease and patient-led organizations like ours. Biobanks accelerate research by safe-guarding high-quality, donated tissue samples […]

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DNA

Researchers Engineer Much-Needed Mouse Model of a Rare Vascular Sarcoma

By The EHE Foundation | April 20, 2021

Dr. Rubin used a novel approach to target the gene fusion that causes epithelioid hemgioendothelioma, engineering a novel, first-of-its-kind mouse model of the disease, which will help advance studies to identify new treatments. Click here to read the full article. Sharing exciting news highlighting Dr. Brian Rubin’s research at the Lerner Research Institute at Cleveland […]

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Leah Heinrich

Leah Heinrich Participates on Scientific Peer Review Panel

By The EHE Foundation | March 2, 2021

For Immediate Press Release:  SCIENTIFIC PEER REVIEW OF CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAMS’ RARE CANCERS RESEARCH PROGRAM FOR THE DEPARTMENT OF DEFENSE The Congressionally Directed Medical Research Programs’ (CDMRP), Rare Cancers Research Program (RCRP) consumer advocate Leah Heinrich recently participated in the evaluation of research applications submitted to the RCRP. Leahwas nominated for participation in […]

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