One-in-a-million people are diagnosed with EHE worldwide.

Our mission is to find treatments and a cure for this rare cancer by advancing research and driving collaboration between patients, researchers, and clinicians.

We envision a world where Epithelioid Hemangioendothelioma (EHE) is easily diagnosed and treatable. Join our dedicated community by subscribing to our emails.

Patient Services

Whether you are newly diagnosed or have been living with EHE for a while, you are not alone. The EHE Community is stronger together and includes patients, their families and friends and the many specialists working tirelessly to find treatments and a cure. 

EHE Biobank

Patients are the key to finding new treatments for EHE! Researchers need tumor tissue, blood and fluid from EHE patients to understand disease progression and speed development of new drugs and therapies.

Latest EHE News, Events and Research

Fabio Vanoli, PhD

An Update from Memorial Sloan-Kettering Cancer Center – Investigating the Early Molecular Mechanisms of WWTR1::CAMTA1 and YAP1::TFE3 Gene Fusions in Driving the Pathogenesis of EHE

By The EHE Foundation | October 31, 2022

The EHE community, which includes cancer patients and their families from around the world, benefits from the world-class innovative research that takes place at Memorial Sloan-Kettering Cancer Center (MSKCC) in New York City (US). In 2019, MSKCC received a $1 million private donation to establish an International Center of Expertise in EHE and since that […]

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Group picture from Telluride Science Research Center workshop

The EHE Foundation Funds Fellowship Travel Grants

By The EHE Foundation | October 18, 2022

In June, the EHE Foundation provided two Fellowship Travel Grants supporting young investigators’ participation in a workshop entitled “YAP/TAZ and TEAD: At the Crossroads of Cancer.” The workshop is hosted annually by the Telluride Science Research Center (TSRC) and this year was co-led by notable EHE researchers and advocates – John Lamar, PhD, Albany Medical […]

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Jenni Kovach & Medha Deoras-Sutliff

An important message from Jenni Kovach, President, The EHE Foundation Board of Directors

By The EHE Foundation | October 5, 2022

I am writing today to share an organizational change to The EHE Foundation. After four years as a part-time contractor, Medha Deoras-Sutliff has ended her engagement with the foundation to pursue other opportunities. Medha will continue to provide her services to the foundation until the end of November to ensure a smooth transition.  Medha came […]

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Kim Young running the Maine Marathon on October 2, 2022

Congrats to Kim Young for Finishing the Maine Marathon on October 2, 2022.

By The EHE Foundation | September 20, 2022

Kim Young was diagnosed with EHE in March 2021, and Oct 2nd, 2022 was the second time she ran the Maine Marathon in support of The EHE Foundation. She is a champion for creating awareness for EHE, and we are grateful for her support. Kim teamed up with the Maine Marathon to allow the EHE […]

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ESMO 2022 Congress

ESMO 2022 Congress

By The EHE Foundation | September 13, 2022

EHE champions were on the global stage on September 9th, at the ESMO2022 Congress in Paris, France. ESMO, the European Society of Medical Oncology, is a leading professional organization for medical oncology education and information. Dr. Silvia Stacchiotti, a leading EHE clinical expert (Italy), and Hugh Leonard, Chair of Trustees of the EHE Rare Cancer […]

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The Pledge: Edition 29, Q2 – April-June, 2022

The Pledge: Edition 29, Q2 – April -June, 2022

By The EHE Foundation | September 6, 2022

Together, the US, UK, and Australia EHE foundations team up to strengthen the force against EHE. This group provides a quarterly update, which is led by the UK and includes research news, patient and fundraising stories, and much more! Click here to view the most recent edition of our online EHE newsletter, The Pledge.

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Good Vibes for McKenna Raised $25K at Fundraiser

Good Vibes for McKenna, A Celebration Benefiting Cancer Research

By The EHE Foundation | January 27, 2023

Thanks to “Good Vibes for McKenna, A Celebration Benefiting Cancer Research” for hosting an EXTRAORDINARY two-day event held January 21st and 22nd in Fort Myers, Florida. We truly appreciate their $25,000 donation to The EHE Foundation to support EHE research and for creating much needed EHE awareness! The event featured a fine dining experience and […]

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Champions of EHE

Champions of EHE

By The EHE Foundation | December 17, 2022

Our vision at The EHE Foundation is to live in a world where EHE is easily diagnosed and treatable. The support of our community directly impacts every single person diagnosed with EHE. Patients, donors, doctors and researchers help us make that vision a reality. ⁠⁠During our Giving Tuesday 2022 campaign, we featured these “Champions of […]

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Thank you for The EHE Foundation's successful Giving Tuesday

Giving Tuesday 2023 a Great Success

By The EHE Foundation | December 16, 2022

Thank you for helping us reach our $150,000 goal on Giving Tuesday to fund the 2023 Research Grants Program!  A special thanks to the 374 donors, 16 people affected by EHE who held successful fundraisers, and the countless individuals that shared their personal EHE story and our mission. We are grateful for your contributions and […]

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