EHE Community Connections
Jane Gutkovich, EHE Foundation Board Member Emeritus

What Happened at ASCO? EHE Update with Jane Gutkovich

Don't miss this virtual session as Jane Gutkovich shares what's new in EHE research as presented at the recent 2022 American Society of Clinical Oncology (ASCO) Annual Meeting. Please register to receive the Zoom link. 

Speaker: Jane Gutkovich, EHE Foundation Board Member Emeritus
Date: Saturday, July 23, 2022 
Time: 11:00 AM Eastern Time (US and Canada)

Dr. Tamara Vesel & Dr. Maeve Baechler

Next virtual session with Drs. Vesel and Baechler on August 6th!

Title of Session: Integrating the Cancer Identity into the Self.
Speaker: Dr. Tamara Vesel and Dr. Maeve Baechler
Date: Saturday, Aug 6, 2022 
Time: 11:00 AM Eastern Time (US and Canada)

Drs. Vesel and Baechler facilitated our very first Community Connections virtual gathering  on May 14th. The topic was, "Who am I now? Integrating the cancer identity into the self." Attendees shared their experiences with their diagnosis and how they've incorporated EHE into their identities. This will be a continuation of that topic and more! Please register to receive the Zoom link.

Dr. Vesel is interested in how patients envision EHE in their bodies. To submit a drawing or description, please click here. Attendance at the first session is not required to participate. All are welcome!

Epithelioid Hemangioendothelioma

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2022 EHE 360 International Conference

EHE 360 was held on January 28th (Scientific Symposium) and January 29th (Global Patient Conference). Thank you to our presenters, attendees and sponsors for a successful event!

Visit 2022 EHE 360 to learn more and view all recorded sessions. 

Patient Services

Whether you are newly diagnosed or have been living with EHE for a while, you are not alone. The EHE Community is stronger together and includes patients, their families and friends and the many specialists working tirelessly to find treatments and a cure. 

Research

Our efforts seek to support and fund the most promising basic, translational and clinical research in order to expand our understanding of EHE and accelerate the development treatments. 

The EHE Foundation’s mission is to seek treatments and a cure for Epithelioid Hemangioendothelioma (EHE) by increasing awareness, pursuing scientific research, advocating for and supporting EHE patients, and bridging information between researchers, providers and patients.

Latest EHE News, Events and Research

EHE Clinical Trials

The EHE Foundation Receives $1M Transformational Gift from the Margie and Robert E. Petersen Foundation

By The EHE Foundation | October 11, 2021

FOR IMMEDIATE RELEASEContact: Medha Deoras-Sutliff, [email protected] Hobart, Wisconsin. (October 12, 2021) — The EHE Foundation announced today that it has received a $1 million award from the Margie and Robert E. Petersen Foundation to drive forward progress towards treatments and a cure for Epithelioid Hemangioendothelioma (EHE), a rare vascular cancer. This support provides capacity-building resources […]

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The Pledge: Edition 26, Q3 – July-Sept, 2021

The Pledge: Edition 26, Q3 – July-Sept, 2021

By The EHE Foundation | September 30, 2021

Together, the US, UK, and Australia EHE foundations team up to strengthen the force against EHE. This group provides a quarterly update, which is led by the UK and includes research news, patient and fundraising stories, and much more! Click here to read this edition of our online EHE newsletter, The Pledge.

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The Pledge Q2 2021

The Pledge: Edition 25, Q2 – April-June, 2021

By The EHE Foundation | August 16, 2021

Together, the US, UK, and Australia EHE foundations team up to strengthen the force against EHE. This group provides a quarterly update, which is led by the UK and includes research news, patient and fundraising stories, and much more! Click here to view the most recent edition of our online EHE newsletter, The Pledge.

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The Pledge: Edition 24, Q1 - Jan-Mar 2021

The Pledge: Edition 24, Q1 – Jan-Mar, 2021

By The EHE Foundation | May 24, 2021

Together, the US, UK, and Australia EHE foundations team up to strengthen the force against EHE. This group provides a quarterly update, which is led by the UK and includes research news, patient and fundraising stories, and much more! Click here to view the most recent edition of our online EHE newsletter, The Pledge.

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Patty Cogswell

The Importance of Biobanking

By The EHE Foundation | May 17, 2021

Biobanking is a brand-new endeavor for us at The EHE Foundation. Researchers retain frozen and stored tissue and biological samples from surgeries, which usually remains within the institution where the procedure takes place. Today, biobanking is a game-changer for rare disease and patient-led organizations like ours. Biobanks accelerate research by safe-guarding high-quality, donated tissue samples […]

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DNA

Researchers Engineer Much-Needed Mouse Model of a Rare Vascular Sarcoma

By The EHE Foundation | April 20, 2021

Dr. Rubin used a novel approach to target the gene fusion that causes epithelioid hemgioendothelioma, engineering a novel, first-of-its-kind mouse model of the disease, which will help advance studies to identify new treatments. Click here to read the full article. Sharing exciting news highlighting Dr. Brian Rubin’s research at the Lerner Research Institute at Cleveland […]

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