One-in-a-million people are living with EHE worldwide.

Our mission is to find treatments and a cure for this rare cancer by advancing research and driving collaboration between patients, researchers, and clinicians.

We envision a world where Epithelioid Hemangioendothelioma (EHE) is easily diagnosed and treatable. Join our dedicated community by subscribing to our emails.

2023 EHE Fun Run & Walk

Shine a light on rare cancer.

Thanks to our sponsors for the 2023 EHE Fun Run and Walk. Packets will arrive before the end of May.

EHE Global Patient Registry

Patients Powering Research for Epithelioid Hemangioendothelioma

The EHE Global Patient Registry empowers people with Epithelioid Hemangioendothelioma (EHE) to join together to improve our understanding of this ultra-rare sarcoma.

Patient Services

Whether you are newly diagnosed or have been living with EHE for a while, you are not alone. The EHE Community is stronger together and includes patients, their families and friends and the many specialists working tirelessly to find treatments and a cure. 

2023 Global Patient Conference


EHE patients, families, doctors, researchers, and advocates came together on Saturday, April 15th to collaborate and advance the fight for effective treatments and a cure for Epithelioid Hemangioendothelioma (EHE).

EHE Biobank

Patients are the key to finding new treatments for EHE! Researchers need tumor tissue, blood and fluid from EHE patients to understand disease progression and speed development of new drugs and therapies.

Latest EHE News, Events and Research

Good Vibes for McKenna Raised $25K at Fundraiser

Good Vibes for McKenna, A Celebration Benefiting Cancer Research

By The EHE Foundation | January 27, 2023

Thanks to “Good Vibes for McKenna, A Celebration Benefiting Cancer Research” for hosting an EXTRAORDINARY two-day event held January 21st and 22nd in Fort Myers, Florida. We truly appreciate their $25,000 donation to The EHE Foundation to support EHE research and for creating much needed EHE awareness! The event featured a fine dining experience and […]

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Champions of EHE

Champions of EHE

By The EHE Foundation | December 17, 2022

Our vision at The EHE Foundation is to live in a world where EHE is easily diagnosed and treatable. The support of our community directly impacts every single person diagnosed with EHE. Patients, donors, doctors and researchers help us make that vision a reality. ⁠⁠During our Giving Tuesday 2022 campaign, we featured these “Champions of […]

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Dr. Tamara Vesel & Dr. Maeve Baechler

NEW DATE: Cancer Identity Session #4: Integrating Cancer Identity Into the Self

By Maggie Cameron | December 17, 2022

We are pleased to present the fourth session with Dr. Tamara Vesel, Chief of Division of Palliative Care, Clinical Associate Professor of Medicine and Pediatrics, Tufts University School of Medicine and Dr. Maeve Baechler, LIFE Cancer Coaching. Continuing the discussion, “Who am I now? Integrating the cancer identity into the self,” Drs. Vesel & Baechler […]

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Hugh Leonard and Denise Robinson

Science Saturday – Highlights and Progress in EHE Research

By Maggie Cameron | December 17, 2022

Join Hugh Leonard (EHE Rare Cancer Charity, UK) and Denise Robinson (The EHE Foundation) as they highlight EHE advancements and ongoing research around the world. As an ultra-rare sarcoma (cancer) community, research and awareness relies strongly on patients and advocates to keep moving forward until there are toward better treatments and eventually, a cure. Find […]

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Thank you for The EHE Foundation's successful Giving Tuesday

Giving Tuesday 2023 a Great Success

By The EHE Foundation | December 16, 2022

Thank you for helping us reach our $150,000 goal on Giving Tuesday to fund the 2023 Research Grants Program!  A special thanks to the 374 donors, 16 people affected by EHE who held successful fundraisers, and the countless individuals that shared their personal EHE story and our mission. We are grateful for your contributions and […]

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Denise Robinson and Patty Cogswell attend CTOS 2022 on behalf of The EHE Foundation

The EHE Foundation Attends CTOS 2022

By The EHE Foundation | December 9, 2022

With sincere gratitude to each patient who has contributed to the EHE Biobank, patient-driven research was on the global stage! Denise Robinson, The EHE Foundation Director of Research and Patty Cogswell, EHE Biobank Coordinator, presented a poster on the EHE Biobank on behalf of The EHE Foundation last month at the CTOS 2022 Annual Meeting […]

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The Lamar Lab Team

EHE Research Grants – Your Support Makes a Big Impact

By The EHE Foundation | June 7, 2023

Lamar Lab at Albany Medical College Advancing EHE Research The EHE community is fortunate to have Dr. John Lamar, PhD, Associate Professor in the Department of Molecular and Cellular Physiology at Albany Medical College, and his team, working to advance our mission to find effective treatments for EHE. Dr. Lamar’s lab, the ‘Lamar Lab’, has […]

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David Casimir, PhD, JD

TEAD Talk – The Pursuit of a Treatment and Cure for EHE

By The EHE Foundation | May 23, 2023

Join David Casimir, PhD, JD as he provides a patient-level presentation addressing the questions:  What is the Hippo pathway and TEAD?  How do they relate to EHE?  How are they being used to develop EHE treatments?  How do these treatments move from the laboratory, through clinical trials, to patient care?

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EHE 360 - Empowering Patients - 2023 Global Patient Conference

2023 EHE 360 EMPOWERING PATIENTS Global Patient Conference

By The EHE Foundation | April 29, 2023

Held on April 15, 2023, during EHE Awareness Month, the annual EHE 360 EMPOWERING PATIENTS 2023 Global Patient Conference featured an international group of clinicians and researchers presenting the latest clinical and research developments in epithelioid hemangioendothelioma (EHE). This virtual conference left EHE patients and families, doctors, researchers, and advocates empowered with a broader understanding of EHE […]

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