One-in-a-million people are living with EHE worldwide.

Our mission is to find treatments and a cure for this rare cancer by advancing research and driving collaboration between patients, researchers, and clinicians.

We envision a world where Epithelioid Hemangioendothelioma (EHE) is easily diagnosed and treatable. Join our dedicated community by subscribing to our emails.

EHE Global Patient Registry

Patients Powering Research for Epithelioid Hemangioendothelioma

The EHE Global Patient Registry empowers people with Epithelioid Hemangioendothelioma (EHE) to join together to improve our understanding of this ultra-rare sarcoma.

EHE Biobank

Patients are the key to finding new treatments for EHE! Researchers need tumor tissue, blood and fluid from EHE patients to understand disease progression and speed development of new drugs and therapies.

Global Consensus Paper: Guidance For Managing EHE

The EHE consensus paper is an important resource for anyone diagnosed with EHE, providing a better understanding of this ultra-rare sarcoma and facilitating more informed discussions and decision-making with medical teams.

Patient Services

Whether you are newly diagnosed or have been living with EHE for a while, you are not alone. The EHE Community is stronger together and includes patients, their families and friends and the many specialists working tirelessly to find treatments and a cure. 

Latest EHE News, Events and Research

Ajaybabu Pobbati

Funded Research Project Update: Repurposing an FDA-approved Drug for EHE Treatment

By The EHE Foundation | September 7, 2023

Investigator: Ajaybabu Pobbati, PhD, Cleveland Clinic – Lerner Research Institute In 2022, The EHE Foundation funded a grant to Dr. Pobbati for research that looks at a library of current FDA-approved drugs that act as TAZ-CAMTA1 (TC) or TEAD inhibitors, for use in EHE. What does this mean for patients? This could mean a shorter […]

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EHE Community Connections: Championing Our Cause - How patients drive fundraising support

Championing Our Cause: How Patients Support Fundraising

By The EHE Foundation | August 29, 2023

Join us for EHE Community Connections as we discuss “Championing Our Cause: How Patients Support Fundraising.” Collaborate with other patients and caregivers to explore the most creative and effective fundraising ideas. Together, let’s talk about how to better engage our own community of donors, create awareness and raise money for this one-in-a-million cancer!  This workshop […]

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The Pledge (Q2 2023)

The Pledge: Edition 33, Q2 – April-June, 2023

By The EHE Foundation | August 16, 2023

Publication of The Pledge quarterly newsletter is led by the EHE Rare Cancer Charity (UK). EHE patient advocacy groups from around the globe. provide content including research news, patient and fundraising stories, and much more! Click here to view the most recent edition of our online EHE newsletter, The Pledge.

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Support our mission with a recurring donation.

July is Sarcoma Awareness Month – Support Our Mission With a Monthly Donation

By The EHE Foundation | July 19, 2023

As we spread sarcoma awareness this month, we ask you to consider a monthly donation. A recurring donation creates a BIG impact in a rare sarcoma, like EHE. We’ve set a goal of 10 new monthly donors! Will you join our Circle of Friends? It’s very affordable and connects you to our small, but mighty […]

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TEAD Talk with David Casimir

TEAD Talk – The Pursuit of a Treatment and Cure for EHE

By The EHE Foundation | July 12, 2023

Thanks to David Casimir, PhD, JD, for his informative patient-level presentation on June 17, 2023, that addressed the questions: What is the Hippo pathway and TEAD? How do they relate to EHE? How are they being used to develop EHE treatments? How do these treatments move from the laboratory, through clinical trials, to patient care? […]

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2023 EHE Fun Run Event Breaks Record

2023 Fun Run Event Breaks Record

By The EHE Foundation | June 29, 2023

Thank you to every sponsor, participant, and donor, for helping us make the 2023 EHE Fun Run and Walk the LARGEST in our history with 1,156 registrations and more than 60 teams! Registration for the event went through the month of April and supporters participated in the virtual event across the country mostly in May […]

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John McFadden joins The EHE Foundation Board of Directors.

Welcome New Board Member John McFadden, Ph.D., CRNA, APRN

By The EHE Foundation | November 17, 2023

The EHE Foundation was founded by patients, for patients. Continuing that tradition, we aredelighted to announce that EHE patient John McFadden, Ph.D., CRNA, APRN, has joined ourBoard of Directors. With more than 35 years of experience in health care, Dr. McFadden has held positions as anurse executive, hospital and university program accreditation surveyor, faculty member, […]

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Together we give on Giving Tuesday

Giving Tuesday is November 28th

By The EHE Foundation | November 14, 2023

During the busy holiday season, The EHE Foundation asks that you join us in celebrating Giving Tuesday, not just on Tuesday, November 28th, but throughout the month of November. All proceeds will support our vision: a world where EHE is easily diagnosed and treatable. Retailers are bombarding us with Black Friday and Cyber Monday advertisements. Let […]

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Nick Scalora and Munir Tanas

Spotlight on Young Investigator Nicholas Scalora, Advancing the Science Behind EHE

By The EHE Foundation | November 14, 2023

The EHE Foundation is proud to have awarded the 2023 Fellowship Travel Grant to Nicholas (Nick) Scalora, a 5th year graduate research assistant in the Tanas Laboratory, at the University of Iowa, where the team studies the role of the Hippo pathway in sarcomas. Dr. Munir Tanas, expert pathologist and researcher, was first author of […]

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