EHE 360 Connect Educational Webinar
EHE 360 Connect Event
TOPIC:

Be the Key – How one in a million can unlock progress!

SPEAKER(S):
Denise Robinson, Executive Director and Kristianne Oristian, PhD, Director, Reserach & Engagement
DATE:
September 19, 2026
TIME:
11:00 am - 12:00 pm ET
Link to register will not be active after the event.

Join Denise Robinson, Executive Director, and Kristi Oristian, Director of Research, for an interactive community conversation about why individual patient experiences are a critical need and an important component in unlocking progress for everyone affected by EHE. If you have EHE, you are one in a million, and you hold a key that can lead to advancements in science, a better understanding of the disease, and ultimately a better future for everyone diagnosed with EHE. This discussion is for people newly diagnosed and those who have lived with an EHE diagnosis for years. Spend one hour learning how you can open doors to a better future for everyone with EHE.

Recording

If the event was recorded, the video will appear below after the event.