EHE Foundation

Less than 1 in a million people live with EHE.

Improving lives requires all of us.

Working together to accelerate science, improve care, and build a better future.

EHE Foundation

Hope starts here.

Voice of the Patient

EHE Foundation is raising $175,000 by December 31 to create a Voice of the Patient Report. This extensive project memorializes the disease burden, lived experiences, and priorities of people affected by EHE, ensuring drug development and treatment approaches align with what matters most to people with EHE.

Put EHE on the Record

About EHE

Learn the basics of epithelioid hemangioendothelioma (EHE), an ultra-rare subtype of sarcoma cancer, including its biology, diagnosis, and disease presentations.

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For People with EHE

Explore resources to navigate your diagnosis, plan care, find support, and feel empowered along the way.

Next Steps

For Researchers & Clinicians

Find professional resources to advance EHE science, clinical care, and global collaboration.

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Driving Progress

EHE Foundation is paving the path toward better treatments, and one day, a cure.

By accelerating research through global collaboration and empowering patients with knowledge and connection, we are creating better outcomes for people living with EHE.

A woman enters an MRI machine with her arms above her head.

Improving Care

Advancing EHE treatment and management to support better care.

A 3d strand of DNA takes shape in the middle of a glowing research table with a microscope.

Leading Research

Facilitating global collaboration to advance EHE research

Two hands holding an orb with data points and icons floating around it.

Building Knowledge

Providing trusted EHE education to support informed decisions.

A group of people with their arms in the air holding hands.

Supporting Community

Fostering connection and support for people living with EHE.

The hardest part isn't the surgeries...

For Joe, diagnosed with EHE at age 9, the hardest part isn’t something that is captured in most research and in the drug development process. It’s the anxiety. The uncertainty of living with a cancer no one can predict.

No scan can show that burden. But it deserves to be on the record.

The first Voice of the Patient Report for EHE will bring experiences like Joe’s forward to inform clinical care, research, and drug development.

Put EHE on the Record

View All Stories of EHE

Newly diagnosed with EHE?

A diagnosis of epithelioid hemangioendothelioma (EHE) can be overwhelming. Get clear, trusted steps to help you understand your diagnosis, prepare for your appointments, and move forward with confidence.

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On the left, a sitting doctor is writing and on the right, a patient is also sitting with their hands together.

scientists standing in front of the San Juan mountains

YAP/TAZ & TEAD: At the Crossroads of Cancer

Small Workshop, Big Impact

The early science that leads to treatments is largely invisible. It takes place in laboratories and in conversations that happen off the page, years before it becomes a clinical trial or an approved therapy. Learn about EHE Foundation’s commitment to supporting basic science.

A short film from YAP/TAZ and TEAD: At the Crossroads of Cancer, Telluride, Colorado. Produced, directed, and edited by Joy Weinberg.

Strategy & Impact

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