EHE Community Connections
Jane Gutkovich, EHE Foundation Board Member Emeritus

What Happened at ASCO? EHE Update with Jane Gutkovich

Don't miss this virtual session as Jane Gutkovich shares what's new in EHE research as presented at the recent 2022 American Society of Clinical Oncology (ASCO) Annual Meeting. Please register to receive the Zoom link. 

Speaker: Jane Gutkovich, EHE Foundation Board Member Emeritus
Date: Saturday, July 23, 2022 
Time: 11:00 AM Eastern Time (US and Canada)

Dr. Tamara Vesel & Dr. Maeve Baechler

Next virtual session with Drs. Vesel and Baechler on August 6th!

Title of Session: Integrating the Cancer Identity into the Self.
Speaker: Dr. Tamara Vesel and Dr. Maeve Baechler
Date: Saturday, Aug 6, 2022 
Time: 11:00 AM Eastern Time (US and Canada)

Drs. Vesel and Baechler facilitated our very first Community Connections virtual gathering  on May 14th. The topic was, "Who am I now? Integrating the cancer identity into the self." Attendees shared their experiences with their diagnosis and how they've incorporated EHE into their identities. This will be a continuation of that topic and more! Please register to receive the Zoom link.

Dr. Vesel is interested in how patients envision EHE in their bodies. To submit a drawing or description, please click here. Attendance at the first session is not required to participate. All are welcome!

Epithelioid Hemangioendothelioma

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2022 EHE 360 International Conference

EHE 360 was held on January 28th (Scientific Symposium) and January 29th (Global Patient Conference). Thank you to our presenters, attendees and sponsors for a successful event!

Visit 2022 EHE 360 to learn more and view all recorded sessions. 

Patient Services

Whether you are newly diagnosed or have been living with EHE for a while, you are not alone. The EHE Community is stronger together and includes patients, their families and friends and the many specialists working tirelessly to find treatments and a cure. 

Research

Our efforts seek to support and fund the most promising basic, translational and clinical research in order to expand our understanding of EHE and accelerate the development treatments. 

The EHE Foundation’s mission is to seek treatments and a cure for Epithelioid Hemangioendothelioma (EHE) by increasing awareness, pursuing scientific research, advocating for and supporting EHE patients, and bridging information between researchers, providers and patients.

Latest EHE News, Events and Research

The Pledge Q1 2022

The Pledge: Edition 28, Q1 – Jan-Mar, 2022

By The EHE Foundation | June 8, 2022

Together, the US, UK, and Australia EHE foundations team up to strengthen the force against EHE. This group provides a quarterly update, which is led by the UK and includes research news, patient and fundraising stories, and much more! Click here to view the most recent edition of our online EHE newsletter, The Pledge.

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Scanxiety

Scanxiety

By Maggie Cameron | May 23, 2022

What is scanxiety? Scanxiety describes the apprehension felt by people with cancer as they wait for their next scan. It’s a form of anticipatory anxiety. Scans are like emotional roulette. You’re trying really hard not to worry about the unknown, but your body has other plans. Recognizing the Signs of Scanxiety Symptoms of scanxiety vary […]

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Ikena Oncology Logo

Planned Ikena Oncology Clinical Trial to Include EHE Patients

By The EHE Foundation | January 31, 2022

The planned Phase 1 clinical trial includes patients with tumor types with a high frequency of Hippo pathway alterations, including NF2-deficient malignant mesothelioma and some soft tissue sarcomas with YAP/TAZ genetic fusions, including Epithelioid Hemangioendothelioma (EHE), a rare form of soft tissue sarcoma that has a significant unmet medical need with no currently approved therapy […]

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The Pledge: Edition 27, Q4 – Oct-Dec, 2021

The Pledge: Edition 27, Q4 – Oct-Dec, 2021

By The EHE Foundation | January 25, 2022

Together, the US, UK, and Australia EHE foundations team up to strengthen the force against EHE. This group provides a quarterly update, which is led by the UK and includes research news, patient and fundraising stories, and much more! Click here to view the most recent edition of our online EHE newsletter, The Pledge.

Read More
DONATIONS DOUBLED TODAY

Stronger Together on Giving Tuesday, November 30th

By The EHE Foundation | November 27, 2021

As the season of giving and gratefulness is upon us, we want to thank you for being a part of The EHE Foundation family.  We appreciate you following our progress and investing in our passion: discovering effective treatments and a cure for EHE. We are thankful for our supporters, partners, and volunteers who make our […]

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2021 EHE Fun Run & Walk

2021 EHE Fun Run & Walk a Huge Success!

By The EHE Foundation | November 2, 2021

Thank you to our wonderful participants, supporters, and sponsors for making our 2021 EHE Fun Run and Walk a tremendous success! Together, more than 900 supporters across the nation helped raise more than $45,000. Thanks to the backing of our sponsors, every penny brought in for this event will go directly to EHE research. This […]

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