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Corona Virus (COVID-19)

We are sharing information and resources to help our community understand the impact of this virus on those affected by EHE.

2019 5K Group Photo

5th Annual EHE Fun Run and Walk!
It's time to register for our annual event. Click the link below for everything you need to know!

Medha Deoras-Sutliff

Read Medha's Rare Advocate Leader profile on GlobalGenes.org!

CZI GranteeCollage

The EHE Foundation Receives $450,000 Award from the Chan Zuckerberg Initiative

Memorial Sloan Kettering Cancer Center

The EHE Foundation Announces Creation of the First "International Center of Expertise in EHE Research" at Memorial Sloan Kettering Cancer Center!

Cleveland Clinic Miller Family Pavillion

The EHE Foundation and Cleveland Clinic Receive $1M Research Gift from the Margie and Robert E. Petersen Foundation

STAY INFORMED

Get email alerts about the latest treatments, research advances, and opportunities to get involved.

The EHE Foundation’s mission is to seek treatments and a cure for Epithelioid Hemangioendothelioma (EHE) by increasing awareness, pursuing scientific research, advocating for and supporting EHE patients, and bridging information between researchers, providers and patients.

The EHE Foundation’s mission is to seek treatments and a cure for Epithelioid Hemangioendothelioma (EHE) by increasing awareness, pursuing scientific research, advocating for and supporting EHE patients, and bridging information between researchers, providers and patients.

Latest EHE News, Events and Research

EHE Foundation Virtual Conference

EHE Virtual Community Conference – April 25, 2020

By The EHE Foundation | May 26, 2020 | 0 Comments

You are important to us! The EHE Foundation invites its patient community to view our first Virtual Community Conference! Learn who we are, what we do, and most importantly, how we address the challenges COVID-19 presents to our work and to EHE research. To view the recording, please click here:

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The Pledge Q4

Stay up to Date on EHE by Reading The Pledge: Edition 19, Q4 – Oct-Dec, 2019

By The EHE Foundation | February 19, 2020 | Comments Off on Stay up to Date on EHE by Reading The Pledge: Edition 19, Q4 – Oct-Dec, 2019

Click here to read the Pledge: Edition 19, Q4 – Oct-Dec, 2019

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Rare As One Logo

The EHE Foundation Receives $450,000 Award from the Chan Zuckerberg Initiative

By The EHE Foundation | February 3, 2020 | Comments Off on The EHE Foundation Receives $450,000 Award from the Chan Zuckerberg Initiative

FOR IMMEDIATE RELEASE Contact: Medha Deoras-Sutliff, mdeorassutliff@fightehe.org HOBART, Wis. (Feb. 3, 2020) — Today, The EHE Foundation announced it will receive a $450,000 award from the Chan Zuckerberg Initiative (CZI) to drive progress towards treatments and a cure for Epithelioid Hemangioendothelioma (EHE), a rare vascular cancer. The award recognizes The EHE Foundation as part of […]

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EHE Giving Tuesday 2019 Totals

Giving Tuesday 2019 WrapUp

By The EHE Foundation | December 27, 2019 | Comments Off on Giving Tuesday 2019 WrapUp

We are THRILLED to announce that we surpassed our #GivingTuesday donations from last year! We are excited to share the total on Tuesday, December 10th. We are beyond GRATEFUL! THANK YOU to our many compassionate supporters for giving hope to those suffering from EHE. It is inspiring to know that our grassroots fundraising will continue to advance […]

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EHE Teleconference

EHE Research Update Teleconference – Nov 2nd

By The EHE Foundation | October 29, 2019 | Comments Off on EHE Research Update Teleconference – Nov 2nd

Please join us for our annual “EHE Research Update” teleconference on Saturday, November 2, 2019 from 4:00 pm to 5:30 pm Eastern Standard Time (US). Jane Gutkovich, The EHE Foundation’s Director of Research, will be going over these main topics: What is EHE? Or rather EHEs? Why we all are so different? What have we […]

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International Sarcoma Kindred Study

International Sarcoma Kindred Study (ISKS)

By The EHE Foundation | October 11, 2019 | Comments Off on International Sarcoma Kindred Study (ISKS)

What is ISKS? ISKS is . afree to participate global genetic, biological, epidemiological, clinical resource developed to understand the genetic basis of sarcoma in a population. ISKS has created a world first, one of a kind, database that is accessed by doctors, researchers and scientists across the globe. ISKS was developed by Australian EHE Medical […]

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The Pledge Q3 2019

Stay up to Date on EHE by Reading The Pledge: Edition 18, Q3 – July-Sept, 2019

By The EHE Foundation | October 5, 2019 | Comments Off on Stay up to Date on EHE by Reading The Pledge: Edition 18, Q3 – July-Sept, 2019

Click here to read the Pledge: Edition 18, Q3 – July-Sept, 2019

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