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Join Dr. Tamara Vesel, Chief of Palliative Care at Tufts Medical Center in Boston, MA, and her Research Assistant, MD/MPH candidate, Abigail Lebowitz for an interactive session exploring the topic of non-pharmacological management of cancer pain. Dr. Vesel is a globally recognized palliative care specialist with expertise in pain and symptom management, integrative medicine, clinical […]
Read MoreIn March Denise Robinson, Director of Research for The EHE Foundation attended the ESMO Sarcoma and Rare Cancers Congres 2024 in Lugano, Switzerland. This congress brought together world-renowned experts including researchers and clinicians, to present and discuss the latest advancements in the treatment of sarcomas and rare cancers. Topics ranged from the role of immune […]
Read MoreUnder the umbrella of the Connective Tissue Oncology Society (CTOS), the Ultra-rare Sarcoma Working Group, a broad group representing the global sarcoma community, including clinicians, scientists, patient advocates, and non-profit organizations has come together to establish a consortium, PUSH, to collect and make the best use of all available evidence to facilitate the development of […]
Read More“The patient perspective on sirolimus for epithelioid hemangioendothelioma (EHE): results of a community survey highlighting the importance of equitable access to treatments” was published on February 25, 2024, in the scientific journal Frontiers in Oncology. In early 2023, EHE patient advocates surveyed the global EHE community to gain patients’ perspectives on sirolimus to generate information […]
Read MoreOn Saturday, February 24, 2024, Denise Robinson, Director of Research provided an update to the global EHE community focused on ‘Patient-Powered EHE Research’. Denise highlighted research projects The EHE Foundation is funding and supporting through resources, and projects initiated by the foundation including the EHE Global Patient Registry and EHE Biobank. Denise highlights progress made […]
Read MoreThe EHE Foundation is delighted to announce that Guy Weinberg, MD, has joined our Board of Directors. Internationally recognized in the field of anesthesiology, he is, importantly, the father of an EHE patient, bringing a multifaceted expert and personal perspective to The EHE Foundation, helping us advance our mission to find effective treatments for this […]
Read MoreThe Bock Foundation, the philanthropic arm of Ernest Bock & Sons, Inc., a construction and hospitality conglomerate in Pennsylvania, has been making substantial contributions to charitable causes for decades. Back in 1992, a Bock employee was tragically killed in an automobile accident. The Bock family aided in funeral expenses, and quickly realized the organization could […]
Read MoreThis run/walk is an all ages and abilities event for EHE. EHE is short for Epithelioid Hemangioendothelioma, an extremely rare and often deadly vascular sarcoma (cancer) that primarily affects adolescents and young adults. This event is “virtual”, which means it can be done anywhere you are. You can complete the 3.1 miles by running, walking, […]
Read MoreSaturday, January 30, 2016 2:30 PM Gotham Comedy Club – The Vintage Lounge 208 W 23rd St New York, NY 10011 Click here for tickets! Mandy O’Connor, a Penn State graduate and THON participant, fought Epithelioid Hemangioendothelioma (EHE) for more than a decade. EHE is a rare and often deadly vascular sarcoma (cancer) that largely […]
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