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Latest EHE News, Events and Research
Retrospective study from Charité–Universitätsmedizin Berlin, Germany
A new retrospective study from Charité–Universitätsmedizin Berlin describes 41 people with EHE treated at the center between 1997 and 2022, offering a single-center picture of EHE presentation and outcomes. It was published in the Journal of Cancer Research and Clinical Oncology in July 2026. In this report, women made up the majority of cases (61%), […]
Be the Key – How one in a million can unlock progress!
Join Denise Robinson, Executive Director, and Kristi Oristian, Director of Research, for an interactive community conversation about why individual patient experiences are a critical need and an important component in unlocking progress for everyone affected by EHE. If you have EHE, you are one in a million, and you hold a key that can lead […]
EHE Foundation Welcomes Two New Board Members
We are pleased to welcome two new members to our Board of Directors: Amy Gilmore, CPA, and Dinesh Bande, MBBS, MD, MBA, FACP. Both bring extensive experience, leadership, and passion to our mission. As the leading global non-profit dedicated to finding effective treatments and a cure for EHE, we are grateful that they are lending […]
EHE Community Celebrates Sarcoma Awareness Month
Building awareness. Finding community. Many thanks to everyone who joined in for Sarcoma Awareness Month this July! By sharing photos and content, you helped raise awareness of sarcomas, like EHE. Wear Yellow Wednesday, EHE T-Shirt Tuesday, and Sunflower Sunday were just a few of the ways our community showed up and spread the word about […]
ADCs–Unlocking Future Treatment Advances for EHE
Why this matters for people with EHE For people living with EHE, finding an effective treatment and understanding who best benefits from treatments is one of the greatest challenges of this disease. Traditional chemotherapy is often ineffective for EHE, and the search for more effective treatment options is central to our mission at the EHE […]
A Powerful Community Gathering at the 2026 EHE 360 Global Conference
The EHE Foundation hosted the sixth annual virtual convening of the EHE 360 Global Conference on April 31 – May 1, 2026. The conference brought together patients, caregivers, clinicians, researchers, regulators, and industry partners from around the world to promote education, broaden research collaborations, and advance therapeutic development for epithelioid hemangioendothelioma (EHE), an ultra-rare sarcoma. […]
GDF-15 Predicts Epithelioid Hemangioendothelioma Aggressiveness and is Down-regulated by Sirolimus Through ATF4/ATF5 Suppression
Drs. Silvia Stacchiotti, Sandro Pasquali, and Nadia Zaffaroni (IRCCS – INT, Milan, Italy) and colleagues published their promising findings in Clinical Cancer Research, September 16, 2024. This study, funded in part by The EHE Foundation in partnership with EHE Rare Cancer Charity (UK), aimed to assess the efficacy of sirolimus for the treatment of EHE […]
Harnessing Cyclin-dependent Kinase Inhibitors to Gain Mechanistic Insight Into the Regulation of the TAZ-CAMTA1 Fusion Protein
Ajay Pobbati, PhD, Brian Rubin, MD, PhD, and colleagues at the Cleveland Clinic published their findings from the study “CDK9 inhibition by dinaciclib is a therapeutic vulnerability in epithelioid hemangioendothelioma” in Clinical Cancer Research, September 13, 2024. This study, funded in part by a grant from The EHE Foundation, provides a strong rationale for investigating […]
EHE Community Connections for Caregivers: Anticipatory Grief
As a caregiver, it can be hard to not think about the future and what it may or may not hold. In doing so, it is common for caregivers to experience anticipatory grief, in which we mourn the loss of our loved one while they are still here as well as grieve the future that […]