One-in-a-million people are living with EHE worldwide.

Our mission is to find treatments and a cure for this rare cancer by advancing research and driving collaboration between patients, researchers, and clinicians.

We envision a world where Epithelioid Hemangioendothelioma (EHE) is easily diagnosed and treatable. Join our dedicated community by subscribing to our emails.

Patient-Powered EHE Research

EHE Biobank

Patients are the key to finding new treatments for EHE! Researchers need tumor tissue and fluid from EHE patients to understand disease progression and speed the development of new drugs and therapies.

EHE Global Patient Registry

The EHE Global Patient Registry empowers people with Epithelioid Hemangioendothelioma (EHE) to join together to improve our understanding of this ultra-rare sarcoma. We need every EHE patient to join this critical tool used to support researchers searching for treatments and a cure for EHE.

EMPOWER YOURSELF WITH KNOWLEDGE

Upcoming Foundation Events

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Consensus Paper on EHE Management

The Consensus Paper is a powerful, EHE-specific resource for patients, caregivers, and medical professionals that answers critical questions regarding diagnosis and treatment. Patients are encouraged to read it to better understand EHE and facilitate more informed discussions and decision-making with medical teams.

Latest EHE News, Events and Research

Medha Deoras-Sutliff

Medha Sutliff Profiled by Global Genes

By The EHE Foundation | April 9, 2020

Our own Executive Director, Medha Sutliff was profiled by Global Genes Rare Foundation Alliance as a RARE Leader. Click here to read Medha’s full profile!

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The Pledge Q1 2020

Stay up to Date on EHE by Reading The Pledge: Edition 20, Q1 – Jan-Mar, 2020

By The EHE Foundation | April 1, 2020

Click here to read the Pledge: Edition 20, Q1 – Jan-Mar, 2020

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Rare As One Logo

The EHE Foundation Receives $450,000 Award from the Chan Zuckerberg Initiative

By The EHE Foundation | February 3, 2020

FOR IMMEDIATE RELEASE Contact: Medha Deoras-Sutliff, [email protected] HOBART, Wis. (Feb. 3, 2020) — Today, The EHE Foundation announced it will receive a $450,000 award from the Chan Zuckerberg Initiative (CZI) to drive progress towards treatments and a cure for Epithelioid Hemangioendothelioma (EHE), a rare vascular cancer. The award recognizes The EHE Foundation as part of […]

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The Pledge Q4

Stay up to Date on EHE by Reading The Pledge: Edition 19, Q4 – Oct-Dec, 2019

By The EHE Foundation | January 3, 2020

Click here to read the Pledge: Edition 19, Q4 – Oct-Dec, 2019

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EHE Giving Tuesday 2019 Totals

Giving Tuesday 2019 WrapUp

By The EHE Foundation | December 27, 2019

We are THRILLED to announce that we surpassed our #GivingTuesday donations from last year! We are excited to share the total on Tuesday, December 10th. We are beyond GRATEFUL! THANK YOU to our many compassionate supporters for giving hope to those suffering from EHE. It is inspiring to know that our grassroots fundraising will continue to advance […]

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EHE Teleconference

EHE Research Update Teleconference – Nov 2nd

By The EHE Foundation | October 29, 2019

Please join us for our annual “EHE Research Update” teleconference on Saturday, November 2, 2019 from 4:00 pm to 5:30 pm Eastern Standard Time (US). Jane Gutkovich, The EHE Foundation’s Director of Research, will be going over these main topics: What is EHE? Or rather EHEs? Why we all are so different? What have we […]

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The Pledge: Edition 39, Q4 – October-December, 2024

The Pledge: Edition 39, Q4 – October-December, 2024

By The EHE Foundation | February 25, 2025

Publication of The Pledge quarterly newsletter is led by the EHE Rare Cancer Charity (UK). EHE patient advocacy groups from around the globe provide content including research news, patient and fundraising stories, and much more. Click here to view the most recent edition of the online EHE newsletter, The Pledge.

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CTOS 2024 Highlights

Highlights from CTOS 2024

By The EHE Foundation | December 30, 2024

In November, Denise Robinson, Executive Director and Director of Research attended the CTOS 2024 Annual Meeting in San Diego, CA. The Connective Tissue Oncology Society (CTOS), is a professional medical organization that brings together multi-disciplinary clinician-scientists, translational researchers, and advocates from all over the world to advance the treatment of sarcomas. Many of the world’s […]

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The Pledge: Edition 38, Q3 – July-September, 2024

The Pledge: Edition 38, Q3 – July-September, 2024

By The EHE Foundation | November 21, 2024

Publication of The Pledge quarterly newsletter is led by the EHE Rare Cancer Charity (UK). EHE patient advocacy groups from around the globe. provide content including research news, patient and fundraising stories, and much more. Click here to view the most recent edition of our online EHE newsletter, The Pledge.

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