One-in-a-million people are living with EHE worldwide.

Our mission is to find treatments and a cure for this rare cancer by advancing research and driving collaboration between patients, researchers, and clinicians.

We envision a world where Epithelioid Hemangioendothelioma (EHE) is easily diagnosed and treatable. Join our dedicated community by subscribing to our emails.

Patient-Powered Research

Patients Powering Research for Epithelioid Hemangioendothelioma

EHE Global Patient Registry

The EHE Global Patient Registry empowers people with Epithelioid Hemangioendothelioma (EHE) to join together to improve our understanding of this ultra-rare sarcoma.

EHE Biobank

Patients are the key to finding new treatments for EHE! Researchers need tumor tissue, blood and fluid from EHE patients to understand disease progression and speed development of new drugs and therapies.

Patient Services

Whether you are newly diagnosed or have been living with EHE for a while, you are not alone. The EHE Community is stronger together and includes patients, their families and friends and the many specialists working tirelessly to find treatments and a cure. 

Latest EHE News, Events and Research

International Sarcoma Kindred Study

International Sarcoma Kindred Study (ISKS)

By The EHE Foundation | October 11, 2019

What is ISKS? ISKS is . afree to participate global genetic, biological, epidemiological, clinical resource developed to understand the genetic basis of sarcoma in a population. ISKS has created a world first, one of a kind, database that is accessed by doctors, researchers and scientists across the globe. ISKS was developed by Australian EHE Medical […]

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The Pledge Q3 2019

Stay up to Date on EHE by Reading The Pledge: Edition 18, Q3 – July-Sept, 2019

By The EHE Foundation | October 5, 2019

Click here to read the Pledge: Edition 18, Q3 – July-Sept, 2019

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EHE Foundation Medical Advisory Board

EHE Foundation at ASCO 2019!

By The EHE Foundation | October 1, 2019

EHE Foundation joined over 30,000 cancer experts from around the world in Chicago, IL in early June to learn of the latest clinical cancer research impacting patient care. The theme of this year’s conference is Caring for Every Patient, Learning From Every Patient. EHE Foundation board members and staff participated in the patient advocate track […]

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The Pledge Q2 2019

Stay up to Date on EHE by Reading The Pledge: Edition 17, Q2 – April-June, 2019

By The EHE Foundation | September 13, 2019

Click here to read the Pledge: Edition 17, Q2 – April-June, 2019

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EHE Partners

The EHE Foundation and Cleveland Clinic Receive $1M Research Gift from the Margie and Robert E. Petersen Foundation

By The EHE Foundation | August 14, 2019

FOR IMMEDIATE RELEASE Contact: LeeAnn Conner, [email protected] Fundraising across the world will secure additional $1M through a matching grant from the Petersen Foundation August 15, 2019 (Hobart, WI): The EHE Foundation and Cleveland Clinic received a major gift from the Margie and Robert E. Petersen Foundation. One million dollars will be donated to Cleveland Clinic […]

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4th Annual EHE 5K Run/Walk Wrap-Up

4th EHE 5K Virtual 5K Run/Walk a Huge Success!

By The EHE Foundation | August 14, 2019

Once again many individuals and small groups of families and friends joined together in neighborhoods, parks, or local trails all over the nation to participate in the 4th Annual EHE 5K Virtual 5K Run/Walk. We surpassed our goal (to exceed last year’s participants) by leaps and bounds with 1,006 participants and $47,538 raised of which […]

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Community Connections: Help is on the way! Non-pharmacologic Management of Cancer Pain

Help is on the way! Non-pharmacologic Management of Cancer Pain

By The EHE Foundation | April 16, 2024

Join Dr. Tamara Vesel, Chief of Palliative Care at Tufts Medical Center in Boston, MA, and her Research Assistant, MD/MPH candidate, Abigail Lebowitz for an interactive session exploring the topic of non-pharmacological management of cancer pain. Dr. Vesel is a globally recognized palliative care specialist with expertise in pain and symptom management, integrative medicine, clinical […]

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EHE Advocates at the ESMO Congress 2024

EHE Advocates at the ESMO Sarcoma and Rare Cancers Congress 2024

By The EHE Foundation | March 29, 2024

In March Denise Robinson, Director of Research for The EHE Foundation attended the ESMO Sarcoma and Rare Cancers Congres 2024 in Lugano, Switzerland. This congress brought together world-renowned experts including researchers and clinicians, to present and discuss the latest advancements in the treatment of sarcomas and rare cancers.  Topics ranged from the role of immune […]

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PUSH Project: Pushing Rare Sarcoma Beyond Hope

PUSH Project: Pushing Rare Sarcoma Beyond Hope

By The EHE Foundation | March 29, 2024

Under the umbrella of the Connective Tissue Oncology Society (CTOS), the Ultra-rare Sarcoma Working Group, a broad group representing the global sarcoma community, including clinicians, scientists, patient advocates, and non-profit organizations has come together to establish a consortium, PUSH, to collect and make the best use of all available evidence to facilitate the development of […]

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