TISSUE DONATION IS CRITICAL TO FIND TREATMENTS! Click here to learn more.
We envision a world where Epithelioid Hemangioendothelioma (EHE) is easily diagnosed and treatable. Join our dedicated community by subscribing to our emails.
Upcoming Foundation Events
Quick Links
Patients
Community
Latest EHE News, Events and Research
2nd Annual EHE Virtual 5K Run/Walk
Registration for this event is over, but if you are interested in purchasing EHE/Just Live merchandise, please contact us at [email protected]. For up-to-date information about this event, visit our Facebook event page: https://www.facebook.com/events/236969163428782 . We encourage you to upload pictures wearing your race shirt. The pictures can be taken before, during, or after the 5K. Your […]
Read More
Poker Tournament in Memory of Brian Frank Raises $11,000
Earlier this month, Angela Osborn, along with numerous family and friends, gathered for a night of poker in Washington in order to honor her late brother Brian Frank. Along with the poker tournament, a silent auction was held, T-shirts and sweatshirts featuring Brian’s initials and birthdate were sold, and at the end of the evening, a staggering $11,000 […]
Read More
Smoothie King Raises Money in Memory of Mandy O’Connor
Smoothie King in York, Pennsylvania, held its second fundraiser in memory of Mandy O’Connor on October 13. Sean and Nicky Krebs, Smoothie King franchisees and close friends of Mandy and Devin’s, once again donated 50 percent of their sales on what would have been Mandy’s 33rd birthday. Mandy died due to EHE on April 5, […]
Read More
The Hershey Company Donates to EHE Research
The Hershey Company has made a generous donation to The EHE Foundation. The world-famous confections company in Pennsylvania gave $500 to support ongoing research efforts into the rare cancer. The Foundation would like to thank Hershey employee Serena Wang for the support. Serena was a personal friend of Mandy O’Connor, who died from EHE in […]
Read More
Stay up to Date on EHE by Reading The Pledge: Sixth Edition
EHE is no longer some unknown rare cancer! The grassroots movement to raise awareness and help fund EHE research is now a worldwide effort! Thanks to Hugh Leonard, director of The EHE Rare Cancer Charity UK, for assembling EHE stories for the sixth edition of The Pledge. Download The Pledge here.
Read More
The EHE Foundation Advisory Board
Meet the Men & Women Fighting EHE in the Lab
Read More
Help is on the way! Non-pharmacologic Management of Cancer Pain
Join Dr. Tamara Vesel, Chief of Palliative Care at Tufts Medical Center in Boston, MA, and her Research Assistant, MD/MPH candidate, Abigail Lebowitz for an interactive session exploring the topic of non-pharmacological management of cancer pain. Dr. Vesel is a globally recognized palliative care specialist with expertise in pain and symptom management, integrative medicine, clinical […]
Read More
EHE Advocates at the ESMO Sarcoma and Rare Cancers Congress 2024
In March Denise Robinson, Director of Research for The EHE Foundation attended the ESMO Sarcoma and Rare Cancers Congres 2024 in Lugano, Switzerland. This congress brought together world-renowned experts including researchers and clinicians, to present and discuss the latest advancements in the treatment of sarcomas and rare cancers. Topics ranged from the role of immune […]
Read More
PUSH Project: Pushing Rare Sarcoma Beyond Hope
Under the umbrella of the Connective Tissue Oncology Society (CTOS), the Ultra-rare Sarcoma Working Group, a broad group representing the global sarcoma community, including clinicians, scientists, patient advocates, and non-profit organizations has come together to establish a consortium, PUSH, to collect and make the best use of all available evidence to facilitate the development of […]
Read More