One-in-a-million people are living with EHE worldwide.

Our mission is to find treatments and a cure for this rare cancer by advancing research and driving collaboration between patients, researchers, and clinicians.

We envision a world where Epithelioid Hemangioendothelioma (EHE) is easily diagnosed and treatable. Join our dedicated community by subscribing to our emails.

EHE Biobank

Patients are the key to finding new treatments for EHE! Researchers need tumor tissue, blood and fluid from EHE patients to understand disease progression and speed development of new drugs and therapies.

EHE Global Patient Registry

Patients Powering Research for Epithelioid Hemangioendothelioma

The EHE Global Patient Registry empowers people with Epithelioid Hemangioendothelioma (EHE) to join together to improve our understanding of this ultra-rare sarcoma.

Patient Services

Whether you are newly diagnosed or have been living with EHE for a while, you are not alone. The EHE Community is stronger together and includes patients, their families and friends and the many specialists working tirelessly to find treatments and a cure. 

Global Consensus Paper: Guidance For Managing EHE

The EHE consensus paper is an important resource for anyone diagnosed with EHE, providing a better understanding of this ultra-rare sarcoma and facilitating more informed discussions and decision-making with medical teams.

EHE 360 - EMPOWERING PATIENTS
2023 Global Patient Conference

RECORDINGS POSTED!

EHE patients, families, doctors, researchers, and advocates came together on Saturday, April 15th to collaborate and advance the fight for effective treatments and a cure for Epithelioid Hemangioendothelioma (EHE).

Latest EHE News, Events and Research

The Pledge: Edition 30, Q3 – July-September, 2022

The Pledge: Edition 30, Q3 – July-September, 2022

By The EHE Foundation | December 1, 2022

Together, the US, UK, and Australia EHE foundations team up to strengthen the force against EHE. This group provides a quarterly update, which is led by the UK and includes research news, patient and fundraising stories, and much more! Click here to view the most recent edition of our online EHE newsletter, The Pledge.

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2022 EHE Research Grant Awards

2022 EHE Research Grant Awards Announced

By The EHE Foundation | November 1, 2022

The EHE Foundation has completed its 2022 EHE Research Grant cycle and is pleased to share that it has awarded the largest grants funding in its history – totaling $291,600 grants to three outstanding applicants. This amazing sum is complemented by additional private funds totaling $250,000, bringing this year’s total research investment to $541,600 USD.  […]

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Fabio Vanoli, PhD

An Update from Memorial Sloan-Kettering Cancer Center – Investigating the Early Molecular Mechanisms of WWTR1::CAMTA1 and YAP1::TFE3 Gene Fusions in Driving the Pathogenesis of EHE

By The EHE Foundation | October 31, 2022

The EHE community, which includes cancer patients and their families from around the world, benefits from the world-class innovative research that takes place at Memorial Sloan-Kettering Cancer Center (MSKCC) in New York City (US). In 2019, MSKCC received a $1 million private donation to establish an International Center of Expertise in EHE and since that […]

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Dr. Tamara Vesel & Dr. Maeve Baechler

Cancer Identity Session #3: Integrating Cancer Identity Into the Self

By The EHE Foundation | October 20, 2022

Mark your calendars for our November Community Connection with Drs. Vesel and Baechler! Join us for the third session on “Who am I now? Integrating the cancer identity into the self.” All are welcome to join, even if you missed previous sessions! This session will NOT be recorded. If you haven’t yet – please complete […]

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Jane Gutkovich, EHE Foundation Board Member Emeritus

Immunotherapy: how it works and its role in the treatment of EHE

By The EHE Foundation | October 20, 2022

Jane Gutkovich will go over some basic principles of various types of immunotherapy, available predictive markers to patients response, and current knowledge of immunotherapy efficacy in EHE. Session Recording

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Group picture from Telluride Science Research Center workshop

The EHE Foundation Funds Fellowship Travel Grants

By The EHE Foundation | October 18, 2022

In June, the EHE Foundation provided two Fellowship Travel Grants supporting young investigators’ participation in a workshop entitled “YAP/TAZ and TEAD: At the Crossroads of Cancer.” The workshop is hosted annually by the Telluride Science Research Center (TSRC) and this year was co-led by notable EHE researchers and advocates – John Lamar, PhD, Albany Medical […]

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The Lamar Lab

Funded Research Project Update: Use of pre-clinical EHE models to identify druggable pathways to treat EHE

By The EHE Foundation | September 7, 2023

Investigator: John Lamar, PhD, Albany Medical College Dr. Lamar was awarded a 3-year grant by The EHE Foundation in 2022, that aims to identify FDA-approved drugs that inhibit EHE cell growth, and then test them in pre-clinical mouse models for the treatment of EHE. What does this mean for patients? This could mean a shorter […]

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Ajaybabu Pobbati

Funded Research Project Update: Repurposing an FDA-approved Drug for EHE Treatment

By The EHE Foundation | September 7, 2023

Investigator: Ajaybabu Pobbati, PhD, Cleveland Clinic – Lerner Research Institute In 2022, The EHE Foundation funded a grant to Dr. Pobbati for research that looks at a library of current FDA-approved drugs that act as TAZ-CAMTA1 (TC) or TEAD inhibitors, for use in EHE. What does this mean for patients? This could mean a shorter […]

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EHE Community Connections: Championing Our Cause - How patients drive fundraising support

Championing Our Cause: How Patients Support Fundraising

By The EHE Foundation | August 29, 2023

Join us for EHE Community Connections as we discuss “Championing Our Cause: How Patients Support Fundraising.” Collaborate with other patients and caregivers to explore the most creative and effective fundraising ideas. Together, let’s talk about how to better engage our own community of donors, create awareness and raise money for this one-in-a-million cancer!  This workshop […]

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