One-in-a-million people are diagnosed with EHE worldwide.

Our mission is to find treatments and a cure for this rare cancer by advancing research and driving collaboration between patients, researchers, and clinicians.

We envision a world where Epithelioid Hemangioendothelioma (EHE) is easily diagnosed and treatable. Join our dedicated community.

Patient Services

Whether you are newly diagnosed or have been living with EHE for a while, you are not alone. The EHE Community is stronger together and includes patients, their families and friends and the many specialists working tirelessly to find treatments and a cure. 

EHE Biobank

Patients are the key to finding new treatments for EHE! Researchers need tumor tissue, blood and fluid from EHE patients to understand disease progression and speed development of new drugs and therapies.

Latest EHE News, Events and Research

EHE Highlighted in Recent Cancer Today Article

By The EHE Foundation | October 13, 2020

For their Fall 2020 issue of Cancer Today magazine, the American Association of Cancer Research profiled our director, Medha Deoras-Sutliff! Medha talks about her own journey and how she came to work with The EHE Foundation. Ever the diligent advocate, she insisted the writer include some information about EHE. Read the full article here!

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The Pledge Q2 2020

Stay up to Date on EHE by Reading The Pledge: Edition 21, Q2 – Apr-Jun, 2020

By The EHE Foundation | July 1, 2020

Click here to read the Pledge: Edition 20, Q2 – Apr-Jun, 2020

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EHE Foundation Virtual Conference

EHE Virtual Community Conference – April 25, 2020

By The EHE Foundation | May 26, 2020

You are important to us! The EHE Foundation invites its patient community to view our first Virtual Community Conference! Learn who we are, what we do, and most importantly, how we address the challenges COVID-19 presents to our work and to EHE research. To view the recording, please click here:

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Medha Deoras-Sutliff

Medha Sutliff Profiled by Global Genes

By The EHE Foundation | April 9, 2020

Our own Executive Director, Medha Sutliff was profiled by Global Genes Rare Foundation Alliance as a RARE Leader. Click here to read Medha’s full profile!

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The Pledge Q1 2020

Stay up to Date on EHE by Reading The Pledge: Edition 20, Q1 – Jan-Mar, 2020

By The EHE Foundation | April 1, 2020

Click here to read the Pledge: Edition 20, Q1 – Jan-Mar, 2020

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Rare As One Logo

The EHE Foundation Receives $450,000 Award from the Chan Zuckerberg Initiative

By The EHE Foundation | February 3, 2020

FOR IMMEDIATE RELEASE Contact: Medha Deoras-Sutliff, [email protected] HOBART, Wis. (Feb. 3, 2020) — Today, The EHE Foundation announced it will receive a $450,000 award from the Chan Zuckerberg Initiative (CZI) to drive progress towards treatments and a cure for Epithelioid Hemangioendothelioma (EHE), a rare vascular cancer. The award recognizes The EHE Foundation as part of […]

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Fabio Vanoli, PhD

An Update from Memorial Sloan-Kettering Cancer Center – Investigating the Early Molecular Mechanisms of WWTR1::CAMTA1 and YAP1::TFE3 Gene Fusions in Driving the Pathogenesis of EHE

By The EHE Foundation | October 31, 2022

The EHE community, which includes cancer patients and their families from around the world, benefits from the world-class innovative research that takes place at Memorial Sloan-Kettering Cancer Center (MSKCC) in New York City (US). In 2019, MSKCC received a $1 million private donation to establish an International Center of Expertise in EHE and since that […]

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Group picture from Telluride Science Research Center workshop

The EHE Foundation Funds Fellowship Travel Grants

By The EHE Foundation | October 18, 2022

In June, the EHE Foundation provided two Fellowship Travel Grants supporting young investigators’ participation in a workshop entitled “YAP/TAZ and TEAD: At the Crossroads of Cancer.” The workshop is hosted annually by the Telluride Science Research Center (TSRC) and this year was co-led by notable EHE researchers and advocates – John Lamar, PhD, Albany Medical […]

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Jenni Kovach & Medha Deoras-Sutliff

An important message from Jenni Kovach, President, The EHE Foundation Board of Directors

By The EHE Foundation | October 5, 2022

I am writing today to share an organizational change to The EHE Foundation. After four years as a part-time contractor, Medha Deoras-Sutliff has ended her engagement with the foundation to pursue other opportunities. Medha will continue to provide her services to the foundation until the end of November to ensure a smooth transition.  Medha came […]

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