One-in-a-million people are diagnosed with EHE worldwide.

Our mission is to find treatments and a cure for this rare cancer by advancing research and driving collaboration between patients, researchers, and clinicians.

We envision a world where Epithelioid Hemangioendothelioma (EHE) is easily diagnosed and treatable. Join our dedicated community.

Patient Services

Whether you are newly diagnosed or have been living with EHE for a while, you are not alone. The EHE Community is stronger together and includes patients, their families and friends and the many specialists working tirelessly to find treatments and a cure. 

EHE Biobank

Patients are the key to finding new treatments for EHE! Researchers need tumor tissue, blood and fluid from EHE patients to understand disease progression and speed development of new drugs and therapies.

Latest EHE News, Events and Research

Patty Cogswell

The Importance of Biobanking

By The EHE Foundation | May 17, 2021

Biobanking is a brand-new endeavor for us at The EHE Foundation. Researchers retain frozen and stored tissue and biological samples from surgeries, which usually remains within the institution where the procedure takes place. Today, biobanking is a game-changer for rare disease and patient-led organizations like ours. Biobanks accelerate research by safe-guarding high-quality, donated tissue samples […]

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Researchers Engineer Much-Needed Mouse Model of a Rare Vascular Sarcoma

By The EHE Foundation | April 20, 2021

Dr. Rubin used a novel approach to target the gene fusion that causes epithelioid hemgioendothelioma, engineering a novel, first-of-its-kind mouse model of the disease, which will help advance studies to identify new treatments. Click here to read the full article. Sharing exciting news highlighting Dr. Brian Rubin’s research at the Lerner Research Institute at Cleveland […]

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Leah Heinrich

Leah Heinrich Participates on Scientific Peer Review Panel

By The EHE Foundation | March 2, 2021

For Immediate Press Release:  SCIENTIFIC PEER REVIEW OF CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAMS’ RARE CANCERS RESEARCH PROGRAM FOR THE DEPARTMENT OF DEFENSE The Congressionally Directed Medical Research Programs’ (CDMRP), Rare Cancers Research Program (RCRP) consumer advocate Leah Heinrich recently participated in the evaluation of research applications submitted to the RCRP. Leahwas nominated for participation in […]

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The Pledge Q4 2020

The Pledge: Edition 23, Q4 – Oct-Dec, 2020

By The EHE Foundation | February 17, 2021

Together, the US, UK, and Australia EHE foundations team up to strengthen the force against EHE. This group provides a quarterly update, which is led by the UK and includes research news, patient and fundraising stories, and much more! Click here to view the most recent edition of our online EHE newsletter, The Pledge.

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The Pledge Q3

Stay up to Date on EHE by Reading The Pledge: Edition 22, Q3 – Jul-Sep, 2020

By The EHE Foundation | November 10, 2020

Click here to read the Pledge: Edition 20, Q3 – Jul-Sep, 2020

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EHE Circle of Friends

EHE Circle of Friends Monthly Giving Program Kicks Off!

By The EHE Foundation | October 27, 2020

We invite you to join our Circle of Friends! With so much uncertainty around us, your consistent support means more than ever. Why a monthly giving campaign? It’s Sustained Support: Monthly gifts allow us to predict our donations and plan ahead by expanding research and strengthen The EHE Foundation It’s a Community: Becoming an EHE […]

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Fabio Vanoli, PhD

An Update from Memorial Sloan-Kettering Cancer Center – Investigating the Early Molecular Mechanisms of WWTR1::CAMTA1 and YAP1::TFE3 Gene Fusions in Driving the Pathogenesis of EHE

By The EHE Foundation | October 31, 2022

The EHE community, which includes cancer patients and their families from around the world, benefits from the world-class innovative research that takes place at Memorial Sloan-Kettering Cancer Center (MSKCC) in New York City (US). In 2019, MSKCC received a $1 million private donation to establish an International Center of Expertise in EHE and since that […]

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Group picture from Telluride Science Research Center workshop

The EHE Foundation Funds Fellowship Travel Grants

By The EHE Foundation | October 18, 2022

In June, the EHE Foundation provided two Fellowship Travel Grants supporting young investigators’ participation in a workshop entitled “YAP/TAZ and TEAD: At the Crossroads of Cancer.” The workshop is hosted annually by the Telluride Science Research Center (TSRC) and this year was co-led by notable EHE researchers and advocates – John Lamar, PhD, Albany Medical […]

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Jenni Kovach & Medha Deoras-Sutliff

An important message from Jenni Kovach, President, The EHE Foundation Board of Directors

By The EHE Foundation | October 5, 2022

I am writing today to share an organizational change to The EHE Foundation. After four years as a part-time contractor, Medha Deoras-Sutliff has ended her engagement with the foundation to pursue other opportunities. Medha will continue to provide her services to the foundation until the end of November to ensure a smooth transition.  Medha came […]

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