One-in-a-million people are living with EHE worldwide.

Our mission is to find treatments and a cure for this rare cancer by advancing research and driving collaboration between patients, researchers, and clinicians.

We envision a world where Epithelioid Hemangioendothelioma (EHE) is easily diagnosed and treatable. Join our dedicated community by subscribing to our emails.

EHE 360 Recordings Available
EHE 360 Connect: Clinical Trials for EHE

EHE Biobank

Patients Powering Research for EHE

Patients are the key to finding new treatments for EHE! Researchers need tumor tissue and fluid from EHE patients to understand disease progression and speed the development of new drugs and therapies.

EHE Global Patient Registry

Patients Powering Research for EHE

The EHE Global Patient Registry empowers people with Epithelioid Hemangioendothelioma (EHE) to join together to improve our understanding of this ultra-rare sarcoma. We need every EHE patient to join this critical tool used to support researchers searching for treatments and a cure for EHE.

Consensus Paper on EHE Management

The Consensus Paper is a powerful, EHE-specific resource for patients, caregivers, and medical professionals that answers critical questions regarding diagnosis and treatment. Patients are encouraged to read it to better understand EHE and facilitate more informed discussions and decision-making with medical teams.

Patient Services

Whether you are newly diagnosed or have been living with EHE for a while, you are not alone. The EHE Community is stronger together and includes patients, their families and friends, and the many specialists working tirelessly to find treatments and a cure.

Visit Patient Services for resources, education, and support for patients and their caregivers.

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Latest EHE News, Events and Research

Mandy and Devin O'Connor

Mandy O’Connor

By The EHE Foundation | August 5, 2015

Mandy O’Connor, a York native, Penn State graduate, and THON participant, fought Epithelioid Hemangioendothelioma (EHE) for more than a decade. EHE is a rare and often deadly vascular sarcoma (cancer) that largely affects adolescents and young adults. Mandy served on planning committees for Relay For Life and volunteered as a Team Captain and routinely spoke […]

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Ava Featured Image

Ava’s Story

By The EHE Foundation | August 4, 2015

Ava is an eight year old girl from Langhorne, PA, where Sesame Place is located. We are about 25 miles from Center City Philadelphia. Ava loves swimming and going to Sesame Place, since it is a water park. Ava loves drawing and takes an Art class on Saturday mornings. She also takes dance class (Hip-Hop) […]

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ASCO Featured Image

ASCO Talks About EHE

By The EHE Foundation | August 4, 2015

The American Society Clinical Oncologists (ASCO) met in Chicago in May of 2015, for their annual meeting. The theme, Illumination and Innovation: Transforming Data into Learning, aims to improve patient care across the globe through the application of shared knowledge. This is especially important when talking about rare sarcomas. Jane Gutkovich, Vice President of The EHE […]

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Delaney Thank You

A Night out for EHE Research and Team Laney

By The EHE Foundation | August 4, 2015

On Sunday, July 12, 2015, Ernie’s Irish Pub in Escanaba, MI hosted a fundraiser to raise awareness and funds for EHE Research. It was a big success raising $6,705! It was great fun and the participation and support from the local community and businesses was overwhelming!

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EHE Golf Outing

Golf Outing to Benefit The EHE Foundation & Cleveland Clinic

By The EHE Foundation | June 10, 2015

Any golfers in the York, Pennsylvania area? Devin O’Connor is hosting a golf tournament to benefit EHE Research this summer. If you don’t golf, come out and enjoy a BBQ dinner, silent auction, and other raffles. Delaney and I are going and we would love to fill a table or two with our EHE family […]

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EHE Golf Outing

Golf Outing to Benefit The EHE Foundation & Cleveland Clinic Big Sucesss

By The EHE Foundation | June 10, 2015

The York EHE Foundation hosted its 1st Annual Golf Outing to benefit the EHE Foundation and Cleveland Clinic on Friday, July 17, 2015. The event was a huge success raising over $17,000 for our cause!   Mandy O’Connor Mandy Elizabeth O’Connor was born in Seoul, South Korea, but became the daughter of Paul and Virginia […]

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The EHE Foundation Attends ASCO 2024

Advancing our Mission, Representing EHE Patients at ASCO 2024

By The EHE Foundation | June 19, 2024

Our Interim Executive Director and Director of Research, Denise Robinson, recently represented epithelioid hemangioendothelioma (EHE) patients at the 2024 ASCO Annual Meeting in Chicago, Illinois, where nearly 40,000 global oncology professionals convened. The American Society of Clinical Oncology (ASCO), is the world’s leading organization for oncology, bringing together advocates, healthcare providers, and related professionals to […]

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2024 EHE Fun Run & Walk Recap

Reflecting on Success: 2024 EHE Fun Run & Walk Recap

By The EHE Foundation | June 18, 2024

With enthusiasm and gratitude, The EHE Foundation is proud to celebrate another successful year of the Annual EHE Fun Run & Walk. This event, dedicated to supporting The EHE Foundation’s mission to find treatments and a cure for epithelioid hemangioendothelioma (EHE), always brings our community together in an extraordinary way! With 1387 registrations, our hearts […]

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EHE community donations expand grant.

Planting Seeds for Future Developments: EHEF Research Grant Grows

By The EHE Foundation | June 14, 2024

The EHE Foundation invests in novel EHE research yearly through its EHE Research Grants Program. The program officially began in 2021, with only a few applicants interested in EHE research. Today, 10 applicants have submitted proposals in our 2024 grants cycle.  Along the way, we have had the good fortune to meet and collaborate with […]

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