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Latest EHE News, Events and Research
2022 EHE Research Grant Cycle Update
A pillar of The EHE Foundation’s mission is to seek treatments and a cure for EHE by pursuing scientific research, and one way we do this is by funding the most impactful EHE research projects possible. To support our mission, the Foundation issues a call for research grant proposals each year from the global scientific […]
The EHE Foundation Advisory Board Annual Meeting
The EHE Foundation’s Advisory (Ad) Board met with the Foundation’s research team in June for their annual meeting. The Ad Board is composed of nine renowned clinicians and researchers who generously give their time and talents to advise The Foundation, in addition to the countless hours they spend during their ‘day jobs’ with patients, research […]
Continued Discussion on Integrating Cancer Identity Into the Self
Drs. Vesel and Baechler facilitated our very first Community Connections event on May 14th. The topic was, “Who am I now? Integrating the cancer identity into the self.” Attendees discussed their own experiences with their diagnosis and how they’ve incorporated EHE into their identities. This will be a continuation of that topic and more! Dr. Vesel is […]
What Happened at ASCO? EHE Update with Jane Gutkovich
Jane is one of the founders of The EHE Foundation, and currently in the role of distinguished Board Member Emeritus. In this role, Jane works strategically with us to continue to support patients worldwide and recruit researchers to EHE. Jane recently attended the 2022 American Society of Clinical Oncology Meeting held annually in Chicago, IL. […]
The Pledge: Edition 28, Q1 – Jan-Mar, 2022
Together, the US, UK, and Australia EHE foundations team up to strengthen the force against EHE. This group provides a quarterly update, which is led by the UK and includes research news, patient and fundraising stories, and much more! Click here to view the most recent edition of our online EHE newsletter, The Pledge.
EHE Biobank: Patients Powering Research
You didn’t choose to have cancer, but you can make a difference in how the world fights it. Join Patty Cogswell, EHE Biobank Coordinator, in an informal, interactive conversation on the questions, challenges and benefits of donating tissue and fluids to the EHE Biobank. Learn how YOUR contributions can directly power research and help us […]
ASCO 2026: Conquering Cancer on the Global Stage
What an amazing ASCO 2026 for so many people affected by cancer. The ASCO Annual Meeting in Chicago brought tens of thousands of global oncology professionals together with the same goal – to change lives. EHE Foundation Executive Director Denise Robinson was there to represent the EHE community, raise awareness of patients’ needs, and connect […]
A Historic Day of Learning, Connection, and Community in Boston
For a cancer as rare as EHE, connection is something we intentionally create. On Saturday, April 11, 2026, EHE Foundation and Dana-Farber Cancer Institute hosted an inaugural EHE Education Day, bringing together patients, loved ones, clinicians, researchers, and advocates for a day of learning, discussion, and in-person connection. With more than 25 people in attendance, […]
Advocacy in Action: ESMO Sarcoma and Rare Cancers Congress & EHE Research Meeting
In March, EHE Foundation was represented at two important meetings in Europe focused on sarcoma, rare cancers, and EHE research. These gatherings were invaluable opportunities to connect with clinicians, researchers, and fellow advocates working to improve care, deepen understanding, and advance progress for people affected by EHE. Executive Director Denise Robinson attended on behalf of […]