TISSUE DONATION IS CRITICAL TO FIND TREATMENTS! Click here to learn more.
With the generosity, heart, and determination of the EHE community and the EHE Foundation Board of Directors, we raised more than $155,000 — and counting — for EHE Research this Giving Tuesday! In a world with so many urgent needs, we are profoundly grateful for how this community continues to show up for one another to advance our mission of finding treatments and a cure for EHE. Thank you!
EMPOWER YOURSELF WITH KNOWLEDGE
For their Fall 2020 issue of Cancer Today magazine, the American Association of Cancer Research profiled our director, Medha Deoras-Sutliff! Medha talks about her own journey and how she came to work with The EHE Foundation. Ever the diligent advocate, she insisted the writer include some information about EHE. Read the full article here!
You are important to us! The EHE Foundation invites its patient community to view our first Virtual Community Conference! Learn who we are, what we do, and most importantly, how we address the challenges COVID-19 presents to our work and to EHE research. To view the recording, please click here:
Our own Executive Director, Medha Sutliff was profiled by Global Genes Rare Foundation Alliance as a RARE Leader. Click here to read Medha’s full profile!
FOR IMMEDIATE RELEASE Contact: Medha Deoras-Sutliff, [email protected] HOBART, Wis. (Feb. 3, 2020) — Today, The EHE Foundation announced it will receive a $450,000 award from the Chan Zuckerberg Initiative (CZI) to drive progress towards treatments and a cure for Epithelioid Hemangioendothelioma (EHE), a rare vascular cancer. The award recognizes The EHE Foundation as part of […]
Join the EHE Foundation for a special Science Saturday on Rare Disease Day, February 28, 2026, 11:00 am – 12:30 pm ET. This virtual event is designed for anyone affected by EHE who wants an up-to-date view of the EHE research landscape. This free, interactive presentation will highlight Foundation-led research, global scientific advances, and the […]
Scientists know that most EHE tumors are caused by specific genetic changes called gene fusions. In most people with EHE, two genes, WWTR1 and CAMTA1, are abnormally fused. In a smaller number of cases, a different fusion involving YAP1 and TFE3 is present. In a recent review published in Critical Reviews in Oncology/Hematology, the authors […]
A recent study published in the European Journal of Cancer represents the largest collection of data from people with EHE in Canada. Researchers found that EHE can behave very differently from person to person—about one-third of patients were diagnosed by chance and did not need immediate treatment, while others had more aggressive disease. About half […]