One-in-a-million people are living with EHE worldwide.

Our mission is to find treatments and a cure for this rare cancer by advancing research and driving collaboration between patients, researchers, and clinicians.

We envision a world where Epithelioid Hemangioendothelioma (EHE) is easily diagnosed and treatable. Join our dedicated community by subscribing to our emails.

Patient-Powered EHE Research

EHE Global Patient Registry

The EHE Global Patient Registry empowers people with Epithelioid Hemangioendothelioma (EHE) to join together to improve our understanding of this ultra-rare sarcoma. We need every EHE patient to join this critical tool used to support researchers searching for treatments and a cure for EHE.

EHE Biobank

Patients are the key to finding new treatments for EHE! Researchers need tumor tissue and fluid from EHE patients to understand disease progression and speed the development of new drugs and therapies.

As the leading research advocacy organization dedicated to finding treatments and a cure for epithelioid hemangioendothelioma (EHE), the EHE Foundation is committed to funding innovative and transformative research that will improve outcomes for individuals diagnosed with EHE.

Latest EHE News, Events and Research

Birthday Cake

Birthday Fundraisers Hosted by Facebook

By The EHE Foundation | August 12, 2018

Supporters continue to celebrate their birthdays (and other special occasions) by creating a fundraiser on Facebook to support The EHE Foundation. Facebook allows supporters to easily create the event, share their story, invite friends, and track their progress toward their goal.  This convenient online tool has allowed many of our supporters to increase awareness while […]

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Brian Frank

A Day of Fun Celebrating the Life of Brian Frank

By The EHE Foundation | August 10, 2018

Brian Frank passed away from EHE on September 2, 2014 at the age of 28. Brian had only been sick for about 6 months and was not properly diagnosed until he passed.  His family and friends, led by his mother, Darlene Frank, and his sister, Angela Osborn, organize an annual event in Brian’s memory, which […]

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Giving Tuesday

Giving Tuesday

By The EHE Foundation | January 2, 2018

Giving Tuesday is celebrated each year on the Tuesday following Thanksgiving and after the widely recognized Black Friday and Cyber Monday.  It is recognized as an international day of giving at the beginning of the holiday season and is fueled by the power of social media. The day known as “#GivingTuesday” proved to be a […]

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EHE cancer The Pledge

Stay up to Date on EHE by Reading The Pledge: 11th Edition

By The EHE Foundation | January 1, 2018

Click here to read the Pledge, 11th Edition

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Justin Herald

Softball Tournament in Memory of Justin Herald

By The EHE Foundation | June 4, 2017

Stephanie Herald and Courtney Walters, along with other family and friends of Justin Herald organized a memorial softball tournament in his memory in Hailey, Idaho on June 3-4 2017.   They had a spectacular event with outstanding community support, great weather, and a group of enthused players.  Justin was a full-time fireman and paramedic, a certified […]

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David Petrisko

Running 100 Miles for EHE

By The EHE Foundation | May 10, 2017

Jimmy Crook started the 100 mile challenge many years ago, while he was deployed to Afghanistan as a way to pass time and get people motivated through the tough holiday month of December. It has morphed into a nationwide group on Facebook (#Run4) that raises money for charity, encourages others on their fitness journey, and […]

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EHE Researchers at YAP/TAZ and TEADs Conference in Telluride, CO

Advancing EHE Research at the 9th Annual YAP/TAZ and TEADs Workshop in Telluride, Colorado

By The EHE Foundation | July 17, 2025

The 9th Annual YAP/TAZ and TEADs: At the Crossroads of Cancer workshop took place June 9-13, 2025, in the stunning mountain town of Telluride, Colorado. Hosted by the Telluride Science and Innovation Center and organized by Drs. Guy Weinberg and John Lamar, this unique gathering brought together top-tier researchers and clinicians from academia and industry […]

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Sarah McMullan

Supporting the Next Generation of EHE Researchers: Sarah McMullan of the Lamar Lab Attends International YAP/TAZ Workshop

By The EHE Foundation | July 15, 2025

The EHE Foundation is proud to support the next generation of scientists working to unlock the mysteries of epithelioid hemangioendothelioma (EHE). Recognizing the importance of academic and scientific conferences, the Foundation provides annual support to help young investigators overcome financial barriers that might otherwise prevent them from attending these crucial events. A 2025 Fellowship Travel […]

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2025 EHE Fun Run & Walk

2025 EHE Fun Run & Walk Raises More Than $90,000 for EHE Research!

By The EHE Foundation | July 11, 2025

This Spring, the EHE community showed up stronger than ever for the 2025 EHE Fun Run & Walk, raising an astounding $90,000+ to fund research aimed at improving outcomes in epithelioid hemangioendothelioma (EHE). This marks a record-breaking year for our signature awareness and fundraising event! Each year, the Fun Run & Walk brings together patients, […]

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