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Latest EHE News, Events and Research
International Sarcoma Kindred Study (ISKS)
What is ISKS? ISKS is . afree to participate global genetic, biological, epidemiological, clinical resource developed to understand the genetic basis of sarcoma in a population. ISKS has created a world first, one of a kind, database that is accessed by doctors, researchers and scientists across the globe. ISKS was developed by Australian EHE Medical […]
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Stay up to Date on EHE by Reading The Pledge: Edition 18, Q3 – July-Sept, 2019
Click here to read the Pledge: Edition 18, Q3 – July-Sept, 2019
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EHE Foundation at ASCO 2019!
EHE Foundation joined over 30,000 cancer experts from around the world in Chicago, IL in early June to learn of the latest clinical cancer research impacting patient care. The theme of this year’s conference is Caring for Every Patient, Learning From Every Patient. EHE Foundation board members and staff participated in the patient advocate track […]
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Stay up to Date on EHE by Reading The Pledge: Edition 17, Q2 – April-June, 2019
Click here to read the Pledge: Edition 17, Q2 – April-June, 2019
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The EHE Foundation and Cleveland Clinic Receive $1M Research Gift from the Margie and Robert E. Petersen Foundation
FOR IMMEDIATE RELEASE Contact: LeeAnn Conner, [email protected] Fundraising across the world will secure additional $1M through a matching grant from the Petersen Foundation August 15, 2019 (Hobart, WI): The EHE Foundation and Cleveland Clinic received a major gift from the Margie and Robert E. Petersen Foundation. One million dollars will be donated to Cleveland Clinic […]
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4th EHE 5K Virtual 5K Run/Walk a Huge Success!
Once again many individuals and small groups of families and friends joined together in neighborhoods, parks, or local trails all over the nation to participate in the 4th Annual EHE 5K Virtual 5K Run/Walk. We surpassed our goal (to exceed last year’s participants) by leaps and bounds with 1,006 participants and $47,538 raised of which […]
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Fueling Hope Through Research: Celebrating National Cancer Research Month
May is National Cancer Research Month, a time to honor the scientists, clinicians, and collaborators who are moving us closer to effective treatments and a cure for epithelioid hemangioendothelioma (EHE). Research is the EHE Foundation’s highest priority in our mission to find effective treatments and ultimately a cure for EHE. With no standard treatment available, […]
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Strengthening Global Collaboration in Sarcoma: Highlights from the 2025 SPAGN Annual Conference
From April 11–13, 2025, representatives of The EHE Foundation participated in the 15th Annual Conference of the Sarcoma Patient Advocacy Global Network (SPAGN), marking SPAGN’s first conference in the United States. The National Cancer Institute (NCI) co-hosted the event, underscoring the importance of international collaboration in sarcoma advocacy. Denise Robinson commented, “As a long-time supporter […]
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EHE Foundation Hosts EHE Patient Meetup in Washington, D.C.
Five people living with EHE, representing three countries, gathered on Sunday, April 13, 2025, for lunch and camaraderie, marking the first-ever meetup of its kind in the United States. The EHE Foundation was in Washington, D.C. that same weekend to participate in the Sarcoma Patient Advocacy Global Network (SPAGN) Annual Conference, and put out the […]
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