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Latest EHE News, Events and Research
Stay up to Date on EHE by Reading The Pledge: Edition 19, Q4 – Oct-Dec, 2019
Click here to read the Pledge: Edition 19, Q4 – Oct-Dec, 2019
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Giving Tuesday 2019 WrapUp
We are THRILLED to announce that we surpassed our #GivingTuesday donations from last year! We are excited to share the total on Tuesday, December 10th. We are beyond GRATEFUL! THANK YOU to our many compassionate supporters for giving hope to those suffering from EHE. It is inspiring to know that our grassroots fundraising will continue to advance […]
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EHE Research Update Teleconference – Nov 2nd
Please join us for our annual “EHE Research Update” teleconference on Saturday, November 2, 2019 from 4:00 pm to 5:30 pm Eastern Standard Time (US). Jane Gutkovich, The EHE Foundation’s Director of Research, will be going over these main topics: What is EHE? Or rather EHEs? Why we all are so different? What have we […]
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International Sarcoma Kindred Study (ISKS)
What is ISKS? ISKS is . afree to participate global genetic, biological, epidemiological, clinical resource developed to understand the genetic basis of sarcoma in a population. ISKS has created a world first, one of a kind, database that is accessed by doctors, researchers and scientists across the globe. ISKS was developed by Australian EHE Medical […]
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Stay up to Date on EHE by Reading The Pledge: Edition 18, Q3 – July-Sept, 2019
Click here to read the Pledge: Edition 18, Q3 – July-Sept, 2019
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EHE Foundation at ASCO 2019!
EHE Foundation joined over 30,000 cancer experts from around the world in Chicago, IL in early June to learn of the latest clinical cancer research impacting patient care. The theme of this year’s conference is Caring for Every Patient, Learning From Every Patient. EHE Foundation board members and staff participated in the patient advocate track […]
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The Pledge: Edition 41, Q2 – April-June, 2025
Publication of The Pledge quarterly newsletter is led by the EHE Rare Cancer Charity (UK). EHE patient advocacy groups from around the globe provide content including research news, patient and fundraising stories, and much more. Click here to view the most recent edition of the online EHE newsletter, The Pledge.
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What You Need to Know About Tissue Donation
By Seth Haddix, PhD | EHE Biobank Coordinator When patients are thinking about surgery, a new biopsy, or other procedure, their minds are filled with decisions and worry. Tissue donation isn’t usually top of mind, and for more common cancers, it is not something we think about as a priority. For an ultra-rare cancer like […]
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Advancing EHE Research at the 9th Annual YAP/TAZ and TEADs Workshop in Telluride, Colorado
The 9th Annual YAP/TAZ and TEADs: At the Crossroads of Cancer workshop took place June 9-13, 2025, in the stunning mountain town of Telluride, Colorado. Hosted by the Telluride Science and Innovation Center and organized by Drs. Guy Weinberg and John Lamar, this unique gathering brought together top-tier researchers and clinicians from academia and industry […]
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